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Cincinnati Children's is conducting a research project to study the white matter of the brain in children with hydrocephalus (white matter connects areas in the brain responsible for normal function). Assessments will be done through MRIs and neuropsychological tests of behavior and development.

Stanford trial and study to learn about upper extremity hypertonia (stiffness) in children and young adults with cerebral palsy. Specifically, they want to learn about ways to measure the stiffness in the joints of hypertonic arms. The information the research team will collect includes any physical exams or computer generated data about your arm movements.

University of Virginia Health System clinical study to look at how children's bones grow and mature when they have Cerebral Palsy. This information will be compared to growth in children that do not have Cerebral Palsy.

Baclofen Efficacy and Safety Trials - Pediatric Pharmacokinetic and Pharmacodynamic Study of Oral Baclofen for the Treatment of Spasticity Associated with Cerebral Palsy (BEST-PK/PD)

Study is to evaluate the pharmacokinetics (blood levels), pharmacodynamics (how the drug acts on the body), and the safety of rabeprazole sodium for the treatment of gastroesophageal reflux disease (GERD) in new borns and pre-term infants (less than 44 weeks of age).

Purpose of this completed study is to provide additional information on safety and tolerability after multiple doses of pantoprazole in infants

Future planned study being conducted by the University of California to determine the safety and pharmacokinetics of moderate to high doses of erythropoietin in newborn infants with birth asphyxia.

The purpose of this study is to provide additional information on safety and tolerability after multiple does of pantoprazole in infants

This study is an observational study to prove that a new device, which measures the force of delivering a baby, (US patent 6,684,165) functions as described in the patent. This is the first time this has been used with patients. The device measures the force (pounds/kilograms) that is exerted as a doctor/midwife pulls on a baby during the delivery

NINDS sponsored study will examine how certain language skills, such as naming objects, understanding spoken language and reading are organized in the brain and how they are affected by seizures.

NINDS sponsored study will investigate the role that a brain chemical called serotonin plays in seizures. Serotonin, present naturally in the brain, helps transmit signals between nerve cells. Glucose is a sugar that is the main fuel of the brain.

NINDS sponsored and multi-center collaborative study will establish a database of information about stroke in infants and children

Reseach Mission is to advance neuromuscular functional assessment using objective measurements of muscle tone, strength, and gait. Goal: To apply innovative techniques to facilitate improved treatment strategies and research evaluation.Our work includes measurement of neuromuscular and musculoskeletal function and dysfunction, with emphasis on quantification of the interrelationships of muscle tone, strength, and gait related to medical diagnosis such as: *Cerebral Palsy*Parkinson's Disease*Spinal Cord Injury *Primary Progressive Multiple Sclerosis*Normal Pressure Hydrocephalus*Obesity*Normal aging *Stroke*Transverse Myelitis*Traumatic Brain Injury

Planned future study investigating the protein composition of nutrition may affect the rate of gastric emptying and gastric pysiology. This is espesially important in children with neurologic impariment, who commonly rely on tube feedings, have feeding proThe intent is to find out whether 4 different protein sources affect the rate of gastric emptying and electrofysiology in this group of children

The National Heart, Lung, and Blood Institute (NHLBI) provides global leadership for a research, training, and education program to promote the prevention and treatment of heart, lung, and blood diseases and enhance the health of all individuals so that they can live longer and more fulfilling lives. NHLBI stimulates basic discoveries about the causes of disease, enables the translation of basic discoveries into clinical practice, fosters training and mentoring of emerging scientists and physicians, and communicates research advances to the public. Creates and supports a robust, collaborative research infrastructure in partnership with private and public organizations, including academic institutions, industry, and other government agencies

The Guardians of Hydrocephalus Research Foundation (GHRF) was established in 1977 as a non-profit organization. Since then we have distributed over 10,000 information packets and received many phone calls every month answering important questions from concerned parents and worried individuals. Provides information to the public without cost so that a better understanding of hydrocephalus will be established. Provide counseling to families with children who have hydrocephalus to define specific problems that parents encounter and help resolve them as best as possible. We make many referrals to our doctors (more on page 3) who can assist individuals and their families through these tough times.

The Fetal Hope Foundation's mission is to provide support, provide information, fund research, increase awareness and be an outlet for leading medical information pertaining to fetal distresses and syndromes. We are all about arming families and healthcare providers with information and helping to save babies' lives

The relation between eye movement and brain function is a subject of interest to the National Eye Institute. By comparing eye movement in healthy volunteers to research conducted on patients who have difficulty moving their eyes, the National Eye Institute hopes to develop and improve diagnostic procedures for people with eye diseases. Objectives: To study eye movement in 100 healthy adult and child volunteers. To understand how individuals see visual patterns and how eye movement affects the ability to see.

The congressional legislation that created the National Eye Institute (NEI) mandates research on amelioration of the impact of impaired vision and blindness on health and well- being. The current NEI research program on visual impairment and its rehabilitation can be divided into six areas. Laboratory research is a fundamental yet often underappreciated pillar of research on visual impairment and blindness. A major goal of this area is to develop a scientific basis for understanding normal visual functioning that can be extended to explain the disabilities experienced by people with low vision, blindness, and other visual processing deficits.

As part of the federal government's National Institutes of Health (NIH), the National Eye Institute's mission is to "conduct and support research, training, health information dissemination, and other programs with respect to blinding eye diseases, visual disorders, mechanisms of visual function, preservation of sight, and the special health problems and requirements of the blind."