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The National Hydrocephalus Foundation (NHF) was incorporated in the state of Illinois in 1979 as a voluntary, not-for-profit, 501 C (3), public service organization. The objectives of NHF are: To assemble and disseminate information pertaining to hydrocephalus, its treatments and outcomes To establish and facilitate a communication network among affected families and individuals To help others gain a deeper understanding of those areas affected by hydrocephalus, such as education, insurance, tax and estate planning, employment and family To increase public awareness and knowledge of hydrocephalus To promote and support research on the causes, treatment and prevention of hydrocephalus

NINDS Hydrocephalus Information Page - Definition, treatment, prognosis, research, clinical trials, organizations and additional resources rom MEDLINE Plus

American Academy of Neurology - Hydrocephalus - Definition (Acquired hydrocephalus - Congenital hydrocephalus) 0 Treatment - Prognosis - Research - Organizations

The Hydrocephalus Association provides support, education and advocacy for people whose lives have been touched by hydrocephalus and the professionals who work with them. We strive to ensure that families are empowered with educational materials, informed about the latest research, and have access to quality health care.

Hydrocephalus Fact Sheet at National Institute of Neurological Disorders and StrokeNINDS - Definition, symptoms, causes, prognosis, types of hydrocephalus, treatment and research

The Hydrocephalus Foundation, Inc. (HyFI) is a registered, 501(c)(3) nonprofit organization dedicated to providing support, educational resources and networking opportunities to patients and families affected by hydrocephalus. The Foundation also promotes related research and facilitates the training of healthcare professionals to improve patient outcome.

The Guardians of Hydrocephalus Research Foundation (GHRF) was established in 1977 as a non-profit organization. Since then we have distributed over 10,000 information packets and received many phone calls every month answering important questions from concerned parents and worried individuals. Provides information to the public without cost so that a better understanding of hydrocephalus will be established. Provide counseling to families with children who have hydrocephalus to define specific problems that parents encounter and help resolve them as best as possible. We make many referrals to our doctors (more on page 3) who can assist individuals and their families through these tough times.

The mission of the Hydrocephalus Clinical Research Network is to dramatically improve the lives of kids suffering from hydrocephalus by conducting important and field-changing, multi-center clinical research.

The Hydrocephalus Association provides support, education and advocacy for people whose lives have been touched by hydrocephalus and the professionals who work with them. We strive to ensure that families are empowered with educational materials, informed about the latest research, and have access to quality health care. We advocate for increased research and funding to advance understanding, improve diagnosis and treatment, and find a cure.

Conservative Versus Surgical Management of Idiopathic Normal Pressure Hydrocephalus. This study aims to provide class 1 evidence supporting or refuting the existence of normal pressure hydrocephalus

Hydrocephalus - Definition - Types - Causes - symptoms - Diagnosis - Prognosis - Research and Treatment

University of California study compare two types of treatment of hydrocephalus: placement of a ventriculoperitoneal (VP) shunt versus an endoscopic third ventriculostomy (ETV). A second goal of this study will be to understand how the two different types of procedures, VP shunt versus ETV, affect brain blood flow and pressures.

Cincinnati Children's is conducting a research project to study the white matter of the brain in children with hydrocephalus (white matter connects areas in the brain responsible for normal function). Assessments will be done through MRIs and neuropsychological tests of behavior and development.

University of California, Irvine research project to determine which combination of tests will enable physicians to predict whether a patient with symptoms of normal pressure hydrocephalus (NPH) will improve with a shunt.

Study is to determine the predictive values and prognostic accuracies of CSF dynamic measures, the TAP -TEST (high-volume cerebrospinal fluid withdrawal), resistance to CSF outflow and compliance in the prediction of shunt-treatment outcome in patients with idiopathic normal pressure hydrocephalus.

BMC Pediatrics - Elevated nerve growth factor and neurotrophin-3 levels in cerebrospinal fluid of children with hydrocephalus

Study to test and compare the efficacy of Endoscopic Third Ventriculostomy with shunting of Cerbrospinal fluid (CSF) for treatment for patients of Normal pressure Hydrocephalus.

The purpose of this Registry is to compare shunt/catheter-related infection rates among various shunt systems when used according to hospital standard of care to treat hydrocephalus.

The Hospital for Sick Children study is to determine whether infants with triventricular hydrocephalus (TVH) have a better long-term outcome at 5 years when they are treated with a new procedure, endoscopic third ventriculostomy (ETV), than infants treated with the more traditional treatment, insertion of a cerebrospinal fluid (CSF) shunt.

ASBAH is a registered charity, which was formed in 1966, initially to help families and individuals affected by spina bifida and hydrocephalus