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The National Hydrocephalus Foundation (NHF) was incorporated in the state of Illinois in 1979 as a voluntary, not-for-profit, 501 C (3), public service organization. The objectives of NHF are: To assemble and disseminate information pertaining to hydrocephalus, its treatments and outcomes To establish and facilitate a communication network among affected families and individuals To help others gain a deeper understanding of those areas affected by hydrocephalus, such as education, insurance, tax and estate planning, employment and family To increase public awareness and knowledge of hydrocephalus To promote and support research on the causes, treatment and prevention of hydrocephalus

American Academy of Neurology - Hydrocephalus - Definition (Acquired hydrocephalus - Congenital hydrocephalus) 0 Treatment - Prognosis - Research - Organizations

NINDS Hydrocephalus Information Page - Definition, treatment, prognosis, research, clinical trials, organizations and additional resources rom MEDLINE Plus

The Guardians of Hydrocephalus Research Foundation (GHRF) was established in 1977 as a non-profit organization. Since then we have distributed over 10,000 information packets and received many phone calls every month answering important questions from concerned parents and worried individuals. Provides information to the public without cost so that a better understanding of hydrocephalus will be established. Provide counseling to families with children who have hydrocephalus to define specific problems that parents encounter and help resolve them as best as possible. We make many referrals to our doctors (more on page 3) who can assist individuals and their families through these tough times.

The Hydrocephalus Association provides support, education and advocacy for people whose lives have been touched by hydrocephalus and the professionals who work with them. We strive to ensure that families are empowered with educational materials, informed about the latest research, and have access to quality health care.

The Hydrocephalus Foundation, Inc. (HyFI) is a registered, 501(c)(3) nonprofit organization dedicated to providing support, educational resources and networking opportunities to patients and families affected by hydrocephalus. The Foundation also promotes related research and facilitates the training of healthcare professionals to improve patient outcome.

Hydrocephalus Fact Sheet at National Institute of Neurological Disorders and StrokeNINDS - Definition, symptoms, causes, prognosis, types of hydrocephalus, treatment and research

The mission of the Hydrocephalus Clinical Research Network is to dramatically improve the lives of kids suffering from hydrocephalus by conducting important and field-changing, multi-center clinical research.

The Hydrocephalus Association provides support, education and advocacy for people whose lives have been touched by hydrocephalus and the professionals who work with them. We strive to ensure that families are empowered with educational materials, informed about the latest research, and have access to quality health care. We advocate for increased research and funding to advance understanding, improve diagnosis and treatment, and find a cure.

Conservative Versus Surgical Management of Idiopathic Normal Pressure Hydrocephalus. This study aims to provide class 1 evidence supporting or refuting the existence of normal pressure hydrocephalus

Cincinnati Children's is conducting a research project to study the white matter of the brain in children with hydrocephalus (white matter connects areas in the brain responsible for normal function). Assessments will be done through MRIs and neuropsychological tests of behavior and development.

University of California, Irvine research project to determine which combination of tests will enable physicians to predict whether a patient with symptoms of normal pressure hydrocephalus (NPH) will improve with a shunt.

Hydrocephalus - Definition - Types - Causes - symptoms - Diagnosis - Prognosis - Research and Treatment

Study is to determine the predictive values and prognostic accuracies of CSF dynamic measures, the TAP -TEST (high-volume cerebrospinal fluid withdrawal), resistance to CSF outflow and compliance in the prediction of shunt-treatment outcome in patients with idiopathic normal pressure hydrocephalus.

Study to assess the development and neurological status of all children who were diagnosed as "mild ventriculomegaly" during the pregnancy in the last 6 years and to prospectively follow up all the children who will be diagnosed from the beginning of the study on for 6 years.

Cerebrospinal Fluid Research is an open access, peer-reviewed, online journal that considers manuscripts on cerebrospinal fluid (CSF) and all brain barrier systems in health and disease.

Reseach Mission is to advance neuromuscular functional assessment using objective measurements of muscle tone, strength, and gait. Goal: To apply innovative techniques to facilitate improved treatment strategies and research evaluation.Our work includes measurement of neuromuscular and musculoskeletal function and dysfunction, with emphasis on quantification of the interrelationships of muscle tone, strength, and gait related to medical diagnosis such as: *Cerebral Palsy*Parkinson's Disease*Spinal Cord Injury *Primary Progressive Multiple Sclerosis*Normal Pressure Hydrocephalus*Obesity*Normal aging *Stroke*Transverse Myelitis*Traumatic Brain Injury