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This study is part of a series of studies that will explore how the mind and the brain work to cause episodes of uncontrollable shaking in people who have no known underlying brain or medical disorder. The study is conducted at NIH and at the Brown University Rhode Island Hospital.

Eunice Kennedy Shriver National Institute of child Health and Human Development (NICHD) Study to evaluate the safety of high-dose Erythropoietin (Epo) in infants who did not get enough oxygen during birth. Erythropoietin is a hormone normally found in the body that may protect brain cells from damage due to lack of oxygen.

The Metropolitan Atlanta Developmental Disabilities Study (MADDS) was the first U.S., population-based epidemiologic study of the prevalence of intellectual disabilities, cerebral palsy, hearing loss, vision impairment, and epilepsy in school-aged children. National Center on Birth Defects and Developmental Disabilities (NCBDDD) staff have written scientific papers using information from MADDS. These papers look at such topics as how common autism spectrum disorders are and what causes hearing loss in children. You can see a list of these papers (starting in 1990) by using the keyword search on the NCBDDD publications Web page. Choose "MADDS (Metropolitan Atlanta Developmental Disabilities Study)" in the keyword box on the search page. You can choose whether you want the list to be sorted by author or by date

NINDS definition of dystonia

A recent study using high-dose rhEpo (3000 U rhEpo/kg body weight at birth) for neuroprotection in very preterm infants revealed that no signs of adverse effects of early high-dose rhEpo treatment in very preterm infants were identified. Contrary to this, a recent study in PVL of a rat model revealed that using a low dose rhEpo (50-100 U/kg) was effective in the treatment of brain damage induced by hypoxia-ischemia and did not affect normal oligodendrocyte maturity. On this basis, the researchers intent to investigate (1) whether low-dose rhEpo (100 U/kg) or high-dose rhEpo (3,000 U/kg) given to very preterm infants (gestation age < 32 weeks) immediately after birth and subsequently during the first 2 days is safe and possesses neuroprotective properties;(2) whether there are gender differences in response to the hypoxia-ischemic insult and EPO treatment; (3)the pharmacokinetics of low dose and high dose rhEPO.

Cyanonosis / cyanotic article and definition in relation to seizures at Medline Plus, a service of the U.S. National Library of Medicine and NIH National Institutes of Health

Electroencephalogram (EEG) Definition at Medline Plus, a service of the U.S. National Library of Medicine and NIH National Institutes of Health

Hundreds of babies in the world are being treated with brain cooling to prevent brain injury after they lose oxygen at birth. This study will use the newly developed information from the magnet resonance image to determine the actual temperature of the brain. This will enable researchers to determine if the brain is being uniformly cooled and if techniques that provide cooling need to be changed to improve the injury prevention from cooling

The International Center for the Advancing Neonatal Health (ICANH) was established to foster the development of innovative approaches to neonatal health that are integrated with programs and health systems in developing countries. The Center is housed in the Department of International Health at the Johns Hopkins Bloomberg School of Public Health.

Provides information about: disabled travel, wheelchair travel, disabled holidays, disability travel, handicapped travel, accessible travel, accessable travel, vacations for disabled, mature travel.

Gastroparesis (delayed gastric emptying) information at the National Digestive diseases Information Clearninghouse (NDDIC)

Study to determine if a therapy regiment of the medication Hemin can improve symptoms in diabetic patients with gastroparesis (slow gastric emptying). We want to test the effects of this new medication on the rate at which food empties from your stomach and on your symptoms

The Center for Cerebral Palsy Research was founded in 1996 and is committed to understanding the mechanisms underlying the symptoms of cerebral palsy and developing evidence-based treatment approaches targeting these symptoms. The Center is a non-profit organization located at Teachers College, Columbia University, a leading institution of Education, Health and Psychology. Our Center is committed to improving the lives of children with cerebral palsy through research. These include both speech and motor disorders associated with CP.

The NICHD Neonatal Research Network's Follow-Up study is a multi-center cohort in which surviving extremely low birth-weight infants born in participating network centers receive neurodevelopmental, neurosensory and functional assessments at 18-22 months corrected age. Data regarding pregnancy and neonatal outcome are collected prospectively. The goal is to identify potential maternal and neonatal risk factors that may affect infant neurodevelopment.

2007 Icelandic study to assess the incidence, obstetric risk factors and the squela of severe asphyxia at Landspitali university hospital.

NCBI NIH PubMed.gov Abstract of Finland study investigating reproductive maternal risk factors of intrapartum fetal asphyxia. The study concluded that the incidence of intrapartum fetal asphyxia was 2.5%. Placental abruption, primiparity, alcohol use during pregnancy, low birth weight, preeclampsia, male fetuses, and small-for-gestational age births were independent risk factors of intrapartum asphyxia, with adjusted relative risks of 3.74, 3.10, 1.75, 1.57, 1.49, 1.48 and 1.33, respectively. Most cases of intrapartum fetal asphyxia occur in low-risk pregnancies and, therefore, risk screening in antenatal care cannot accurately predict which women will eventually need emergency care for fetal asphyxia.

The National Center on Accessibility NCA promotes access and inclusion for people with disabilities in parks, recreation and tourism. Based at Indiana University and established in 1992 through a cooperative agreement with the National Park Service, NCA has emerged as a leading authority on access issues unique to park and recreation programs and facilities. NCA is a major contributor to the study of disability and inclusion in the life sciences. Through the comprehensive services of Research, Technical Assistance and Education, NCA focuses on universal design and practical accessibility solutions creating inclusive recreation opportunities for people of all abilities. NCA links the preferences and needs of people with disabilities to those of practitioners designing facilities and planning programs.

The Clinical and Translational Science Center (CTSC) addresses the necessity of an integrated, comprehensive research support system that includes education, training and mentoring for clinical research investigators, coordinators and staff. Our mission is to support, advance, and promote clinical and translational research enterprises at WCMC

Children's Hospital Boston is a 396-bed comprehensive center for pediatric health care. As one of the largest pediatric medical centers in the United States, Children's offers a complete range of health care services for children from birth through 21 years of age. (Our Advanced Fetal Care Center can begin interventions at 15 weeks gestation, and in some situations, we treat adults.)

NINDS Information Sheet on Seizures and Epilepsy: Hope through Research