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Passing My Disability On to My Children - The New York Times - 0 views

  • Occasionally, I come across the term “designer baby,” and I am reminded that some parents now have the option to screen or modify the genes of their unborn children to ensure or avoid certain traits. It always gives me a feeling of unease. Obviously, I did not take this route — partly because, at least with my son, I never had to actually make the decision. My third child, Eliza, was a late midlife accident. I chose to have her despite the possibility she would have XLH, but would I have made the same decision in a planned pregnancy or if given a choice much earlier in the process? I can’t help suspecting that because of advances in genetic mapping, genetic testing, the sheer range of prenatal choices, chances are that in a generation or two, there will be no one in the world who has XLH, no one who looks like me or my children — at least not in the so-called developed world — and I don’t know how to feel about that.
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Different rules apply | MZS | Roger Ebert - 0 views

  • I want to tell you a story about the difference between knowing and understanding.
  • All of which is a wind-up to say: having grown up in a mostly black neighborhood near Love Field airport in Dallas, and having been a diligent liberal for most of my adult life, I already knew there was such a thing as white privilege, and was properly horrified by it, but I didn't truly understand what it meant, on a deep level, until one summer night in 2006, when I was spared arrest or worse thanks to the color of my skin.
  • I went home. The other guy didn't. That's white privilege.White privilege sent me home to my kids.White privilege is the reason I've never told this story publicly.Extenuating personal circumstances, aside, I did something that I should not have done, and I escaped the consequences of my actions by accepting a benefit that never should have been bestowed.
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  • So much of the crosstalk, the shouting, the debate over Ferguson stems, I believe, from an inability to admit this fact of life, which was illustrated so plainly to me that night in front of the deli. I've never been profiled. I've never been stopped and frisked. I've never experienced anything of the sort because of the gift that my parents gave me, and that my son's parents gave him: white skin.
  • I already knew this stuff. But after that night in front of the deli, I understood it.
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Should a Sibling Be Told She's Adopted? - The New York Times - 0 views

  • My sister is the greatest blessing in my life. My parents and I were at the hospital when her birth mother went into labor, so she has been with us for her entire life. My parents never told her that she was adopted, and they asked me not to say anything. They planned on telling her when she was old enough to understand, but they kept putting it off. They know that I believe they have done her a serious disservice.
  • I think she suspects she’s different. She asks me sometimes why she’s so much shorter than the rest of us, for example. I do my best to deflect her questions, but it hurts every time. My sister and I are very close, and we see each other often. Keeping this lie feels like a giant burden, but, at this point, I don’t know that it would do her any good to know the truth. She was recently diagnosed with bipolar disorder and has been working hard to keep her life balanced. Finding out now that she’s adopted could throw her into a depression. I fear, however, that with the mail-in DNA tests available these days, or should a medical emergency arise, she’ll find out the truth and she won’t forgive me.
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How Science Saved Me from Pretending to Love Wine | The New Yorker - 2 views

  • was in my late forties when I finally admitted to myself that I would never love wine. As other women fake orgasms, I have faked hundreds of satisfied responses to hundreds of glasses—not a difficult feat, since my father schooled my brother and me in the vocabulary of wine from an early age. Confronted with another Bordeaux or Burgundy, I could toss around the terms I had learned at the dinner table (Pétillant! Phylloxera! Jeroboam!), then painstakingly direct the wine straight down the center of my tongue, a route that limited my palate’s exposure to what it perceived as discomfiting intensity.
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Pondering Miracles, Medical and Religious - The New York Times - 0 views

  • The tribunal that questioned me was not juridical, but ecclesiastical. I was not asked about my faith. (For the record, I’m an atheist.) I was not asked if it was a miracle. I was asked if I could explain it scientifically. I could not, though I had come armed for my testimony with the most up-to-date hematological literature, which showed that long survivals following relapses were not seen.
  • When, at the end, the Vatican committee asked if I had anything more to say, I blurted out that as much as her survival, thus far, was remarkable, I fully expected her to relapse some day sooner or later. What would the Vatican do then, revoke the canonization? The clerics recorded my doubts. But the case went forward and d’Youville was canonized on Dec. 9, 1990.
  • Respect for our religious patients demands understanding and tolerance; their beliefs are as true for them as the “facts” may be for physicians. Now almost 40 years later, that mystery woman is still alive and I still cannot explain why. Along with the Vatican, she calls it a miracle. Why should my inability to offer an explanation trump her belief? However they are interpreted, miracles exist, because that is how they are lived in our world.
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I Had My DNA Picture Taken, With Varying Results - NYTimes.com - 0 views

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    "So I decided to read the tea leaves of my DNA. I reasoned that it was worth learning painful information if it might help me avert future illness. Like others, I turned to genetic testing, but I wondered if I could trust the nascent field to give me reliable results. In recent years, a handful of studies have found substantial variations in the risks for common diseases predicted by direct-to-consumer companies. I set out to test the tests: Could three of them agree on me? The answers were eye-opening"
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Why I Changed My Mind About Confederate Monuments - The Atlantic - 1 views

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    "That summer, I traveled for the first time to Prague, in the former Soviet-bloc country of Czechoslovakia. I noticed almost immediately the concrete foundations and empty pedestals where monuments to communist leaders once stood. Some statues had been relocated to museums, while others were destroyed; skate boarders and sunbathers had since claimed their spot. The experience forced me to reconsider my position on the markers back home. I imagined stepping back in time to convince the residents of Prague that the monuments helped them face their past, or gave teachers an important tool with which to engage their students. This proved to be a futile exercise. "
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Looks Can Deceive: Why Perception and Reality Don't Always Match Up: Scientific American - 0 views

  • ll of us, even postmodern philosophers, are naive realists at heart. We assume that the external world maps perfectly onto our internal view of it—an expectation that is reinforced by daily experience. I see a coffee mug on the table, reach for a sip and, lo and behold, the vessel’s handle is soon in my grasp as I gingerly imbibe the hot liquid. Or I see a chartreuse-yellow tennis ball on the lawn, pick it up and throw it. Reassuringly, my dog appears to share my veridical view of reality: she chases the ball and triumphantly catches it between her jaws.
  • That there should be a match between perception and reality is not surprising, because evolution ruthlessly eliminates the unfit.
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Whose Picture Is It, Anyway? - NYTimes.com - 0 views

  • Could social media awareness be a new developmental milestone?  And if so, is my son part of the first wave of children who are nearing adolescence, and all the social awareness that entails, to realize their parents have been posting embarrassing pictures of them online since they were minutes old?Legally, I’m well within my rights as my son’s guardian, but what about ethically? Howard Cohen, a chancellor emeritus and a professor of philosophy at Purdue University Calumet in Hammond, Ind., said that depended upon whether I agreed with the teachings of Aristotle or those of Immanuel Kant.
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Everything Dies, Right? But Does Everything Have To Die? Here's A Surprise : Krulwich W... - 1 views

  • A puzzlement. Why, I wonder, are both these things true? There is an animal, a wee little thing, the size of a poppy seed, that lives in lakes and rivers and eats whatever flows through it; it's called a gastrotrich. It has an extremely short life. Hello, Goodbye, I'm Dead It hatches. Three days later, it's all grown up, with a fully adult body "complete with a mouth, a gut, sensory organs and a brain," says science writer Carl Zimmer. In 72 hours it's ready to make babies, and as soon as it does, it begins to shrivel, crumple ... and usually within a week, it's gone. Dead of old age. Sad, no? A seven-day life. But now comes the weird part. There's another very small animal (a little bigger than a gastrotrich) that also lives in freshwater ponds and lakes, also matures very quickly, also reproduces within three or four days. But, oh, my God, this one has a totally different life span (and when I say totally, I mean it's radically, wildly, unfathomably different) from a gastrotrich. It's a hydra. And what it does — or rather, what it doesn't do — is worthy of a motion picture. So we made one. Well, a little one. With my NPR colleague, science reporter Adam Cole, we're going to show you what science has learned about the hydra. Adam drew it, animated it, scored it, edited it. My only contribution was writing it with him, but what you are about to see is as close as science gets to a miracle.
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The Case for Banning Laptops in the Classroom : The New Yorker - 0 views

  • I banned laptops in the classroom after it became common practice to carry them to school. When I created my “electronic etiquette policy” (as I call it in my syllabus), I was acting on a gut feeling based on personal experience. I’d always figured that, for the kinds of computer-science and math classes that I generally teach, which can have a significant theoretical component, any advantage that might be gained by having a machine at the ready, or available for the primary goal of taking notes, was negligible at best. We still haven’t made it easy to type notation-laden sentences, so the potential benefits were low. Meanwhile, the temptation for distraction was high. I know that I have a hard time staying on task when the option to check out at any momentary lull is available; I assumed that this must be true for my students, as well. Over time, a wealth of studies on students’ use of computers in the classroom has accumulated to support this intuition. Among the most famous is a landmark Cornell University study from 2003 called “The Laptop and the Lecture,” wherein half of a class was allowed unfettered access to their computers during a lecture while the other half was asked to keep their laptops closed. The experiment showed that, regardless of the kind or duration of the computer use, the disconnected students performed better on a post-lecture quiz. The message of the study aligns pretty well with the evidence that multitasking degrades task performance across the board.
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How English Ruined Indian Literature - NYTimes.com - 1 views

  • “English is not a language in India,” a friend once told me. “It is a class.” This friend, an aspiring Bollywood actor, knew firsthand what it meant to be from the wrong class. Absurd as it must sound, he was frequently denied work in the Hindi film industry for not knowing English. “They want you to walk in the door speaking English. Then if you switch to Hindi, they like it. Otherwise they say, ‘the look doesn’t fit.’ ” My friend, who comes from a small town in the Hindi-speaking north, knew very well why his look didn’t fit. He knew, too, from the example of dozens of upper-middle class, English-speaking actors, that the industry would rather teach someone with no Hindi the language from scratch than hire someone like him.
  • India has had languages of the elite in the past — Sanskrit was one, Persian another. They were needed to unite an entity more linguistically diverse than Europe. But there was perhaps never one that bore such an uneasy relationship to the languages operating beneath it, a relationship the Sanskrit scholar Sheldon Pollock has described as “a scorched-earth policy,” as English.India, if it is to speak to itself, will always need a lingua franca. But English, which re-enacts the colonial relationship, placing certain Indians in a position the British once occupied, does more than that. It has created a linguistic line as unbreachable as the color line once was in the United States.Continue reading the main story
  • That student, Sheshamuni Shukla, studied classical grammar in the Sanskrit department. He had spent over a decade mastering rules of grammar set down by the ancient Indian grammarians some 2,000 years before. He spoke pure and beautiful Hindi; in another country, a number of careers might have been open to him. But in India, without English, he was powerless. Despite his grand education, he would be lucky to end up as a teacher or a clerk in a government office. He felt himself a prisoner of language. “Without English, there is no self-confidence,” he said.
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  • But around the time of my parents’ generation, a break began to occur. Middle-class parents started sending their children in ever greater numbers to convent and private schools, where they lost the deep bilingualism of their parents, and came away with English alone. The Indian languages never recovered. Growing up in Delhi in the 1980s, I spoke Hindi and Urdu, but had to self-consciously relearn them as an adult. Many of my background didn’t bother.
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My Great-Great-Aunt Discovered Francium. And It Killed Her. - NYTimes.com - 0 views

  • There is a common narrative in science of the tragic genius who suffers for a great reward, and the tale of Curie, who died from exposure to radiation as a result of her pioneering work, is one of the most famous. There is a sense of grandeur in the idea that paying heavily is a means of advancing knowledge. But in truth, you can’t control what it is that you find — whether you’ve sacrificed your health for it, or simply years of your time.
  • How quickly an element decayed and how it did so — meaning which of its component parts it shed — became the focus of researchers in radioactivity. Apart from purely scientific insights, there was a hope that radiation could lead to something marvelous. X-rays, a kind of radiation discovered by Wilhelm Roentgen and produced by accelerated electrons, had already been hailed as a major medical breakthrough and, in addition to showing doctors their patients’ insides, were being investigated as a treatment for skin lesions from tuberculosis and lupus. In her 1904 book “Investigations on Radioactive Substances,” Marie Curie wrote that radium had promise, too — diseased skin exposed to it later regrew in a healthy state. Radium’s curious ability to destroy tissue was being turned against cancer, with doctors sewing capsules of radium into the surgical wounds of cancer patients (including Henrietta Lacks, whose cells are used today in research). This enthusiasm for radioactivity was not confined to the doctor’s office. The element was in face creams, tonics, even candy. According to the Encyclopaedia Britannica article that Curie and her daughter wrote on radium in 1926, preliminary experiments suggested that radium could even improve the quality of soil.
  • Perhaps the most tragic demonstration of this involved workers at the United States Radium Corporation factory in Orange, N.J., which in 1917 began hiring young women to paint watch faces with glow-in-the-dark radium paint. The workers were told that the paint was harmless and were encouraged to lick the paintbrushes to make them pointy enough to inscribe small numbers. In the years that followed, the women began to suffer ghoulish physical deterioration. Their jaws melted and ballooned into masses of tumors larger than fists, and cancers riddled their bodies. They developed anemia and necrosis. The sensational court case started — and won — by the dying Radium Girls, as they were called, is a landmark in the history of occupational health. It was settled in June 1928, four months before Marguerite Perey arrived at the Radium Institute to begin a 30-year career of heavy exposure to radiation.
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  • We know now that alpha and beta particles emitted in radiation attack DNA and that the mutations they cause can lead to cancer. Ingested radioactive elements can concentrate in the bones, where they continue their decay, in effect poisoning someone for as long as that person lives. By the time Perey made her discovery, she was already heavily contaminated. She spent the last 15 years of her life in treatment for a gruesome bone cancer that spread throughout her body, claiming her eyesight, pieces of her hand and most of the years in which she had planned to study francium. As the disease progressed, she warned her students of the horrible consequences of radiation exposure. Francis, my grandfather, says he recalls hearing that when she walked into labs with radiation counters in her later years, they would go off.
  • Over the years, historians have pondered what drove the Curies to throw caution so thoroughly to the wind. Perhaps it was inconceivable to them that the benefits of their research would not outweigh the risks to themselves and their employees. In a field in which groundbreaking discoveries were being made and the competition might arrive there first, speed was put above other concerns, Rona noted. But you almost get the impression that in the Curie lab, dedication to science was demonstrated by a willingness to poison yourself — as if what made a person’s research meaningful were the sacrifices made in the effort to learn something new.
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Forgetting My First Language | The New Yorker - 1 views

  • No one prepared me for the heartbreak of losing my first language.
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Choking the Oceans With Plastic - NYTimes.com - 3 views

  • I have just returned with a team of scientists from six weeks at sea conducting research in the Great Pacific Garbage Patch — one of five major garbage patches drifting in the oceans north and south of the equator at the latitude of our great terrestrial deserts. Although it was my 10th voyage to the area, I was utterly shocked to see the enormous increase in the quantity of plastic waste since my last trip in 2009. Plastics of every description, from toothbrushes to tires to unidentifiable fragments too numerous to count floated past our marine research vessel Alguita for hundreds of miles without end. We even came upon a floating island bolstered by dozens of plastic buoys used in oyster aquaculture that had solid areas you could walk on.
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BBC - New Banksy artwork in Bristol removed with crowbar by local club - 2 views

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    A new Banksy has been removed from the wall and is 'held hostage' by a youth club that wants to raise money by letting the public view it. Ethical? Shouldn't art be public? Should we respect Banksy's views? As much as I would love to hang up his visual satires on my wall, they should stay on the public wall, really.
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Airy Hill Studio | My studio practice through the lens of the sketchbook - 0 views

  • Airy Hill Studio My studio practice through the lens of the sketchbook
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    Cory Wanamaker is a professional artist and sometimes-international-school teacher, part of the ISP community for several years (2012-2015+). This is his blog on process... and many aspects of the real work of being an artist.
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Why Your Name Matters : The New Yorker - 1 views

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    "We see a name, implicitly associate different characteristics with it, and use that association, however unknowingly, to make unrelated judgments about the competence and suitability of its bearer. The relevant question may not be "What's in a name?" but, rather, "What signals does my name send-and what does it imply?""
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Long Story Long: A Cartoon Controversy : The New Yorker - 0 views

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    "I was very pleased with the results of the cliché caption contest, but, while many people shared my opinion that the finalists were funny, some women took umbrage at this cartoon, considering it offensive to women"
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Dr. Bunsen / Coffee Experiments - 0 views

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    "A few years ago, I started using house guests as subjects in an experiment.1 My experiment was designed to test what variables in the coffee brewing process produce a perceptible improvement in coffee flavor. A frequent assertion is that numerous variables must be carefully considered to brew a good cup of coffee. I wanted to know if this premise was true as humans are really good at creating their own reality distortion fields. "
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