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Dennis OConnor

The Future of Care Preserving the Patient-Physician Relationship .pdf - 0 views

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    Recommended by Tyler Orion - John Noseworthy, M.D. Mayo Clinic - The New England Journal of Medicine,
Dennis OConnor

PCORI | - 0 views

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    Recommended by Tyler Orion: "PCORI funds studies that can help patients and those who care for them make better-informed healthcare choices."
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    Tyler - Here are some important FAQs https://help.pcori.org/hc/en-us/categories/200010230-Applicant-Resources I think we might consider a project under their "Accelerating Patient-Centered Outcomes Research & Methodological Research" which is explained here https://www.pcori.org/about-us/our-programs/clinical-effectiveness-and-decision-science
Dennis OConnor

Everything we know about coronavirus immunity, and plenty we still don't - 0 views

  • an accurate positive test may be hard to interpret: the virus is so new that researchers cannot say for sure what sort of results will signal immunity or how long that armor will last.
  • policymakers may be making sweeping economic and social decisions — plans to reopen businesses or schools, for example — based on limited data, assumptions, and what’s known about other viruses.
  • most experts do think an initial infection from the coronavirus, called SARS-CoV-2, will grant people immunity to the virus for some amount of time.
  • ...1 more annotation...
  • With data limited, “sometimes you have to act on a historical basis,” Anthony Fauci,
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    Recommended by Tyler Orion: "People who think they've been exposed to the novel coronavirus are clamoring for antibody tests - blood screens that can detect who has previously been infected and, the hope is, signal who is protected from another case of Covid-19."
Dennis OConnor

Lipid nanoparticles are vital to MRNA and shortages could slow Moderna and Pfizer/BioNT... - 0 views

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    Recommended by Tyler Orion: "Lipid nanoparticles are essential to the Moderna and Pfizer/BioNTech vaccines - and we're staring down a shortage. By Rebecca Heilweil Mar 3, 2021, 11:30am EST"
Dennis OConnor

Predicting 'Long COVID Syndrome' with Help of a Smartphone App - NIH Director's Blog - 0 views

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    Recommended by Tyler Orion, Endorsed by DeAunne Denmark, MD, PhD :This is an example of the high quality and thoughtful study design needed to accurately and meaningfully interpret real-world tracking data. This prediction signal would not have been detected in the larger (inconsistently reporting) group, or in those who hadn't tracked enough before getting sick. Which relates to the importance of creating a baseline health timeline and consistently collecting robust, standardized pre-intervention contextual data. And another illustration re: why I keep circling back to these in all of our n-of-1 discussions :)
Dennis OConnor

Success in Rare Diseases, Part I: - 0 views

shared by Dennis OConnor on 24 Jan 21 - No Cached
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    Recommended by Tyler Orion: Understanding the Rare Disease Ecosystem "Rare diseases (RDs) are different from more common ones, often presenting special challenges for patients, physicians, caregivers, payers, and pharma companies. Those differences and challenges are mostly a consequence of rarity (of patients, experts, data, resources, etc.) and the typically high disease burden. "
Dennis OConnor

Begin Within Today - 1 views

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    Recommended by Tyler Orion: Christina Kantzevekos
Dennis OConnor

Unbundling-Primary-Care-V2-2.pdf - 0 views

shared by Dennis OConnor on 24 Dec 20 - No Cached
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    Contributed by Tyler Orion
Dennis OConnor

You are the Master - enjoy Returning Home - 0 views

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    Tyler Orion: Just a reminder, there are spots available for more participants in Reyna and Dani's upcoming Qi retreats - "Returning Home. The Journey of YiYuanTi." You can register for a single session, a full day or a 3-day virtual retreat. If you need a good way to shake off the stress of the past few months, this might be a great way to find some healing and joy.
Dennis OConnor

I've Seen Over 50 Doctors And No One Knows What's Wrong With Me | HuffPost - 0 views

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    Tyler Orion recommends: "I appreciated her recognizing that she probably has a little bit of many things - but balancing the urge to have a diagnosis with learning to live well - was what struck me the most."
Dennis OConnor

EDNA - 0 views

shared by Dennis OConnor on 07 Feb 21 - No Cached
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    Discovered by Tyler Orion: "EDNA is the first Genetic Sequencing Service Provider to go far beyond hereditary or ancestral related reporting. EDNA allows individuals from anywhere in the world to own their personal encrypted whole genome sequence, and sell and/or donate their personal genome to accredited medical research teams from around the globe who share their personal ambitions of finding a cure for many of life's most debilitating and too often fatal disease"
Dennis OConnor

The epic battle against coronavirus misinformation and conspiracy theories - 0 views

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    Recommended by Tyler Orion: "For researchers who track how information spreads, COVID-19 is an experimental subject like no other. "This is an opportunity to see how the whole world pays attention to a topic," says Renée diResta at the Stanford Internet Observatory in California. She and many others have been scrambling to track and analyse the disparate falsehoods floating around - both 'misinformation', which is wrong but not deliberately misleading, and 'disinformation', which refers to organized falsehoods that are intended to deceive. "
Dennis OConnor

It's time for individuals to own their health data - STAT - 0 views

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    Recommended by Tyler Orion - "For data from wearable technology to apps to text messaging, ownership is determined by the terms and conditions you agree to. The Apple Watch and Google Fitbit, for example, are both designed to give you access to key indicators of your health but their terms and conditions don't give you ownership of your data - and users don't know how their data are being used. This landscape is further complicated by the status of data under property law, which isn't viewed as wholly "ownable." And since current laws don't view people as the owners of their personal data, health care and service providers treat data as under their ownership. And those data are lucrative."
Dennis OConnor

Own Your Health Data - 1 views

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    Recommended by Tyler Orion- "As the future of our healthcare system moves towards electronic healthcare records, we need patient data ownership rights to protect patient care. 4 Principles 1. Patients co-own or fully own every health data point about themselves. 2. Health data generated about the patient by a provider is co-owned by both parties. 3. Health data generated by the patient is fully owned by the patient with a right to possess, share, sell, or destroy. 4. All uses of a patients' health data shall be consented in advance by the patient, other than uses required by law."
Dennis OConnor

The Risks - Know Them - Avoid Them by Erin Bromage - 0 views

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    Recommended by Tyler Orion, "It seems many people are breathing some relief, and I'm not sure why. An epidemic curve has a relatively predictable upslope and once the peak is reached, the back slope can also be predicted. We have robust data from the outbreaks in China and Italy, that shows the backside of the mortality curve declines slowly, with deaths persisting for months. Assuming we have just crested in deaths at 70k, it is possible that we lose another 70,000 people over the next 6 weeks as we come off that peak. That's what's going to happen with a lockdown. "
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    Erin Bromage: I am a Comparative Immunologist and Professor of Biology (specializing in Immunology) at the University of Massachusetts Dartmouth. I balance Teaching, Research, and Public Service (that is, when we are allowed in our labs)."
Dennis OConnor

High-performance wearable thermoelectric generator with self-healing, recycling, and Le... - 0 views

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    Discovered by Tyler Orion: "Abstract Thermoelectric generators (TEGs) are an excellent candidate for powering wearable electronics and the "Internet of Things," due to their capability of directly converting heat to electrical energy. Here, we report a high-performance wearable TEG with superior stretchability, self-healability, recyclability, and Lego-like reconfigurability, by combining modular thermoelectric chips, dynamic covalent polyimine, and flowable liquid-metal electrical wiring in a mechanical architecture design of "soft motherboard-rigid plugin modules." A record-high open-circuit voltage among flexible TEGs is achieved, reaching 1 V/cm2 at a temperature difference of 95 K. Furthermore, this TEG is integrated with a wavelength-selective metamaterial film on the cold side, leading to greatly improved device performance under solar irradiation, which is critically important for wearable energy harvesting during outdoor activities. The optimal properties and design concepts of TEGs reported here can pave the way for delivering the next-generation high-performance, adaptable, customizable, durable, economical, and eco-friendly energy-harvesting devices with wide applications."
Dennis OConnor

Frequency and Types of Patient-Reported Errors in Electronic Health Record Ambulatory C... - 0 views

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    Recommended by Tyler Orion: Conclusions and Relevance In this study, patients who read ambulatory notes online perceived mistakes, a substantial proportion of which they found to be serious. Older and sicker patients were twice as likely to report a serious error compared with younger and healthier patients, indicating important safety and quality implications. Sharing notes with patients may help engage them to improve record accuracy and health care safety together with practitioners. Meaning  As health information transparency increases, patients may perceive important errors in their visit notes, and inviting them to report mistakes that they believe are very serious may be associated with improved record accuracy and patient engagement in safety."
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