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"The National Institutes of Health today announced a new initiative aimed at speeding innovation, development and commercialization of COVID-19 testing technologies, a pivotal component needed to return to normal during this unprecedented global pandemic. With a $1.5 billion investment from federal stimulus funding, the newly launched Rapid Acceleration of Diagnostics (RADx) initiative will infuse funding into early innovative technologies to speed development of rapid and widely accessible COVID-19 testing. At the same time, NIH will seek opportunities to move more advanced diagnostic technologies swiftly through the development pipeline toward commercialization and broad availability. NIH will work closely with the U.S. Food and Drug Administration, the Centers for Disease Control and Prevention and the Biomedical Advanced Research and Development Authority (BARDA) to advance these goals."

"Today, the White House Office of Science and Technology Policy (OSTP) updated U.S. policy guidance to make the results of taxpayer-supported research immediately available to the American public at no cost. In a memorandum to federal departments and agencies, Dr. Alondra Nelson, the head of OSTP, delivered guidance for agencies to update their public access policies as soon as possible to make publications and research funded by taxpayers publicly accessible, without an embargo or cost. All agencies will fully implement updated policies, including ending the optional 12-month embargo, no later than December 31, 2025."

Recommended by Tyler Orion: "PCORI funds studies that can help patients and those who care for them make better-informed healthcare choices."

Tyler - Here are some important FAQs https://help.pcori.org/hc/en-us/categories/200010230-Applicant-Resources I think we might consider a project under their "Accelerating Patient-Centered Outcomes Research & Methodological Research" which is explained here https://www.pcori.org/about-us/our-programs/clinical-effectiveness-and-decision-science

James Walton Fund -- Rebranding

"Learn more Click here to subscribe to the CTRI News and Funding Opportunities monthly newsletter. Learn more   Director's Message I am pleased to announce the availability of the ACTRI Virtual Research Desktop (VRD) for UC San Diego Health research scientists and staff. The service is a collaboration between ACTRI and UC San Diego Health System Information Services (IS). The VRD is a HIPAA-compliant virtual desktop that operates in a secure private cloud server environment managed by the ACTRI and housed in a UC San Diego data center. Read more from Director Gary S. Firestein, MD"

"Blake is a program officer for the James Walton Fund of the Individually Directed Program. Prior to joining the foundation, Blake was a social studies teacher, social- emotional development coordinator, coach and charter school consultant in the Chicago Public Schools. His work continues to focus on improving the educational experience and outcomes for those people and groups, who are traditionally underserved by schooling."

"Board of directors for the UCSD Cardiovascular Center and the La Jolla Community Center. Co-founder of the Sanford-Burnham Medical Research Institute's Fishman Fund. Charter 100 Woman of the Year. Planner of many galas. For the last decade or so, Horowitz has been one of San Diego's busiest philanthropists. Her giving touch and knack for throwing a memorable fundraiser benefits more health, science and child-welfare causes than she can name, but the motivation comes from one bottomless source."

new project apollo patient. Co-Founder & President Company NameWholistic Research and Education Foundation Dates EmployedMay 2017 - Present Employment Duration1 yr 2 mos LocationGreater San Diego Area Wholistic Research and Education Foundation is a California-based nonprofit dedicated to exploring the health benefits of CBD-rich therapeutics. Our mission is to fund clinical and scientific research to better understand the "if, how and why" behind the potential healing power of hemp and cannabis across a multitude of ailments, as well as work to increase safe and legal access to those in need via advocacy and education. Co-Founder Company NameMana Artisan Botanics Dates EmployedMay 2017 - Present Employment Duration1 yr 2 mos LocationKona, Hawaii Mana Artisan Botanics is a purpose-driven hemp company based on the Big Island of Hawaii. We offer pure hemp extracts infused with sustainably grown Hawaiian herbs and spices - nature's mana. Each product is hand crafted artisan style, in small batches. We take great care to source our ingredients from conscientious farmers, supporting local and organic whenever available. All of our products are simple, pure and good for body and soil.

"We provide NSF-funded, online and in-person resources and services. Our goal is to facilitate-at little or no cost-the sharing of experiences, technologies, and practices of those working with science gateways."

"David Fajgenbaum, MD, MBA, MSc, is the co-founder and Executive Director of the Castleman Disease Collaborative Network (CDCN) and one of the youngest individuals to be appointed to the faculty at Penn Medicine, where he is an Assistant Professor of Medicine in Translational Medicine & Human Genetics, Founding Director of the Center for Study & Treatment of Castleman & inflammatory Lymphadenopathies (CSTL). An NIH-funded physician-scientist, he has dedicated his life to discovering new treatments and cures for deadly disorders like idiopathic multicentric Castleman disease (iMCD), which he was diagnosed with during medical school. As common as ALS and more deadly than lymphoma, iMCD involves the immune system attacking and shutting down the body's vital organs such as the liver, kidneys, bone marrow, and heart. After spending months hospitalized in critical condition, having his last rites read, and having four deadly relapses, he is now in his longest remission ever thanks to a treatment that he identified in the lab."

A message from Sharon: Please support Project Apollo Team as they "Ride Out Lyme to raise funds for Lyme research & to support patients! The 2nd annual event, we raised $10,000 last year. The money is split between BAL to support research and ROL for grants to patients over the age of 26 with financial need. We hope to earmark money raised by ROL La Jolla for San Diego patients in 2021, but this year the money is open to anyone in the US. The mission of Bay Area Lyme "to make Lyme disease easy to diagnose and simple to cure" and we plan to submit a "Measured Lyme" research proposal from Project Apollo in the coming year. Sharon, Mike and Meg will ride as part of the Project Apollo team. Others are welcome! We would love your support as a rider or with donations! To donate to Team Project Apollo visit https://rideoutlyme.salsalabs.org/lajolla2020/t/projectapollo/index.html Let's empower people to realize optimal health!

"The MIPACT study is a prospective cohort study designed to integrate multiple sources of digital data to better understand clinical phenotypes. Participants were recruited from Michigan Medicine and the surrounding communities and provided with an Apple Watch series 3 or 4 and an Omron Evolv Wireless Blood Pressure Monitor. Participants consented to provide access to parts of their electronic medical record and to provide a blood sample for laboratory and genetic analyses. Participants were asked to perform regular tasks including guided breathing, BP monitoring, and quarterly survey completion. The study was funded in part by Apple, Inc and performed in partnership with Michigan Medicine."

"Thank you for visiting! As you likely know, my name is Kabir Kadre, and I am partnering here with Help Hope Live, a registered 501(c)(3) nonprofit, in part because they provide both tax deductibility and fiscal accountability to those who wish to support the medical costs of my life with Spinal Cord Injury and the resulting quadriplegia and paralysis. Thanks to their efforts, and with your generous support, I am able to offset my substantial medical costs and focus on giving what I can to the world through the gift of my life."

"Sitting in freezer at Boston Children's Hospital is a drug you won't find anywhere else. It's called milasen, and the 18 g that the hospital custom-ordered nearly 2 years ago should last for decades. That's because milasen was designed to treat a single patient-a now 8-year-old girl named Mila Makovec. Milasen was built on decades of work on a class of drugs called antisense oligonucleotides. But after Boston Children's Hospital scientist Timothy Yu diagnosed Mila with a never-before-seen genetic mutation, he took only 10 months to go from idea to injection. It's a record-shattering sprint in the typical drug-development marathon, and an unprecedented degree of personalization for a chemical drug."

"San Diego philanthropist Denny Sanford made a major gift to UC San Diego for research into the biology of compassion, the university said on July 22, adding that such research could help train future generations of physicians."

"Prospective consent and governance principles for participant-led research Nine themes emerged from discussions and interviews relating to informed consent in and governance of PLR. As this PLR was driven by people with different backgrounds asking personal questions, we found that ethical reflection needed to be ongoing and tailored to the individual. For this reason, prospective governance principles were drafted rather than codified rules. Many of the themes were expressed over the course of our PLR as an ongoing informed consent. The process, fostered via frequent communication, helped to reinforce trust among participants and organisers.43 44 Transparency: All relevant information about the project should be actively shared among participants and participant-organisers, including the source of research funding, equipment selection, data management protocols, risks and benefits and conflicts of interest. Access to Expertise: Participant-led research (PLR) requires access to experts (eg, in experimental design, data analysis, research ethics) so that participants can rigorously carry out single-subject experiments.45 Data Access & Control: The participant has the right and ability to manage their own data, and has the final say in what they collect about themselves. Right to Withdraw: Participants have a right to reduce or withdraw their participation at any time. Relevance: PLR addresses questions of relevance to the participants. Beneficence: The participant actively reflects on the balance of benefits and risks of participation and freely choose whether to participate. Responsibility: PLR requires that the participant actively consider the potential benefits and harms of the project to both themselves and others. The responsibility to stay informed is an ongoing process, not a one-time decision. Flexibility: Ethical reflection in PLR should be tailored to individual needs and to the specific context, rather than be handled with 'one size fits all�

"About Us Co-founded in 2005 by Robert Redford and his son and board chair, James Redford, The Redford Center harnesses the power of film, video and new media to engage people through inspiring stories that galvanize environmental action. Drawing on the family's multi-generational expertise in filmmaking and activism, we produce, fund and fiscally sponsor impact-driven productions that showcase stories of individuals taking action to protect and restore the planet."