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Cahana: I will be moderating two one-hour panels on the use of #Blockchain in #Healthcare and #LifeSciences in our #covidー19 world. Specifically you will learn from our experts: Heather Leigh Flannery, Bernhard Salb, Synho Do and Ahmed Abdulla the latest about current solutions in data privacy, security, sovereignty as well as how to #incentivize data sharing to combat the global challenges we are facing. Many thanks to Caroline Dennis for her impeccable organization and the Boston Blockchain Association (BBA) Association for supporting this event.

"In a world where you don't own or control your data, we source a copy of your medical data, structure it to make it usable and valuable, and store it in your personal record to own as your personal property."

Recommended by Tyler Orion - "For data from wearable technology to apps to text messaging, ownership is determined by the terms and conditions you agree to. The Apple Watch and Google Fitbit, for example, are both designed to give you access to key indicators of your health but their terms and conditions don't give you ownership of your data - and users don't know how their data are being used. This landscape is further complicated by the status of data under property law, which isn't viewed as wholly "ownable." And since current laws don't view people as the owners of their personal data, health care and service providers treat data as under their ownership. And those data are lucrative."

Recommended by Tyler Orion- "As the future of our healthcare system moves towards electronic healthcare records, we need patient data ownership rights to protect patient care. 4 Principles 1. Patients co-own or fully own every health data point about themselves. 2. Health data generated about the patient by a provider is co-owned by both parties. 3. Health data generated by the patient is fully owned by the patient with a right to possess, share, sell, or destroy. 4. All uses of a patients' health data shall be consented in advance by the patient, other than uses required by law."

RARE‐X is committed to transforming rare disease by ensuring that patient communities, clinicians, researchers, and drug developers have access to the right data at the right time. At the heart of RARE‐X's approach is a belief that patients should own their data. In July 2021, RARE‐X launched itsfirst set of rare disease pilot programs on its data collection platform supported by data governance and consent that will ensure participants who spend the time to enter their data are able to share it with those stakeholders they choose.