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APPLICATION—Montana Youth Leadership & Advocacy Summer Training - Anaconda - June 11 & 12, 2010 Click here to download the application (PDF) What: Training/workshop to develop leadership and advocacy skills in the system of care (SOC) for Mental Illness and in the community. Who: Youth (grades 8-12; ages 13-17) diagnosed with mental illness

This project explores the life stories of thirteen leaders in the self-advocacy movement and their perspectives on key issues and leadership challenges. Part of the broader disability rights movement, the self-advocacy movement is unique in that it has been led and informed by the individual and collective experiences of people with intellectual and developmental disabilities. Despite its widespread existence nationwide and internationally, few works have explored the rich history, culture, and significance of the self-advocacy movement. To help fill this void, Joe Caldwell, Ph.D., Department of Disability and Human Development, University of Illinois at Chicago, undertook this life history project and donated transcripts to The Bancroft Library for its Disability Rights and Independent Living Movement collection. More about Self-Advocacy Movement oral history project.

A Helena youth group is getting national recognition for their advocacy in mental health. The Hope & Advocacy Youth Group consists of four young adults that are paving the way in Montana with their message on dealing with mental health issues.

Thank you to the McCray, Fahey, Olko, Chavvaro and Gallagher families for sharing your experiences and participating in our new video about students with disabilities and self-advocacy!

Although there are a variety of school-based services available for children with learning, emotional, and social disabilities, one critical need often goes unfulfilled: providing guidance and strategies that instill self-advocacy.       Most students have only a superficial notion of the reasons they receive these special accommodations, and many children are completely uninformed. Resource teachers and specialists do not generally have the authority to label and enlighten students about their disabilities, the foundation for building self-advocacy. If children are to learn how to become better consumers of educational resources, especially as they grow older, someone must take the lead.      Parents of children with disabilities can fill this role by doing the following: Introduce children’s diagnoses to them in elementary school so that they can make sense out of their struggles Use a matter-of-fact tone of voice when explaining to children that they learn/behave/relate differently from other students and, therefore, need extra help to ensure that they can succeed just like their classmates Don’t leave out the disability label—such as writing disability, ADHD, or Aspergers Syndrome—since labels are a reality of their educational life Emphasize that the teachers and special staff at school who help them will be aware of this label and prepared to help in certain ways to make school a fairer place for them to learn and grow      It’s important to review with children the ways in which their school must provide special help and services. Emphasize that these accommodations are rules the school must follow. “You have the responsibility to do your best job, and teachers must follow the learning/behavior/friendship helping rules that make things fair for you,” is one way to put it. Explain how extra time on assessments, decreased homework, or social skills groups are examples of the helping rules that schools must follow. Discuss how there is a written promise called the individualized education plan (IEP), which includes all the helping rules and makes all of this clear.      Find child-friendly resources—such as books, websites, and videos—that explain in detail their specific disability and the ways other children have learned to cope and achieve despite these limitations. Use these materials as a springboard for deeper discussion about past times when their disability created significant stress or barriers to success. Reassure them that this was before their problem was known and that there is so much that can be done to build a plan for success now that it has been identified.      Point out that one of their most important responsibilities is to be able to discuss their disability with teachers and ask for extra help and accommodation when struggles are too great. Make sure that these discussions take place before middle school, when developmental factors make it harder to get such discussions started. Ensure that they know what practical steps are in their IEP at each grade so that they can respectfully remind teaching staff if necessary.      Having a disability is like having to wear glasses; students with glasses have accepted this fact as necessary to seeing clearly.

The goal of this tool kit is to provide a basic knowledge of advocacy and negotiation skills. The kit will show how to apply these skills to different situations throughout the lifespan of an individual with autism. The information in this kit has been provided by experts in the field who have both professional and personal experience with advocacy and autism. Each section has been prepared by a different person or group of people whose expertise is in that specific area. We hope you will find the information informative and relatable.

Every day individuals advocate on behalf of themselves or others to communicate needs, share experiences, and take steps to get what they want and need. The online Advocacy ATLAS is a toolkit created by Genetic Alliance, Parent to Parent USA, and Family Voices that provides individuals with special healthcare needs and their families with tools and strategies to advocate for whatever they may need. Resources are grouped by category on the Advocacy ATLAS landing page. Simply click one of the ten topic areas to get started browsing accessible tools!

About the Autistic Self-Advocacy Network Mission Statement: The Autistic Self Advocacy Network seeks to advance the principles of the disability rights movement in the world of autism. Drawing on the principles of the cross-disability community on issues such as inclusive education, community living supports and others, ASAN seeks to organize the community of Autistic adults and youth to have our voices heard in the national conversation about us. In addition, ASAN seeks to advance the idea of neurological diversity, putting forward the concept that the goal of autism advocacy should not be a world without Autistic people. Instead, it should be a world in which Autistic people enjoy the same access, rights and opportunities as all other citizens. Working in fields such as public policy, media representation, research and systems change, ASAN hopes to empower Autistic people across the world to take control of their own lives and the future of our common community. Nothing About Us, Without Us!

By far the most effective advocacy tool for my two kids with disabilities is letter and email writing. True, I am a professional writer, but even if you're not, putting pen to paper (or actually fingers to keyboard in my case) is something that you can do.

On any given day, the feeds of my social media accounts are brimming with resources, stories, and motivation about disabled people: parenting tips, educational advice, how to work with someone who has a disability, etc. About us, but too often not including us. There are countless communities geared towards supporting parents, family members, and professionals, sharing words of encouragement on how to be the best advocates for the disability community. And while I understand such support networks are usually well intentioned, in many cases, they take the power out of the hands of the people who know themselves and their needs best: people who are actually disabled. Don’t get me wrong – allies, or what I refer to as advocate-allies, are incredibly important to advocacy efforts. “Ally” implies being supportive, while “advocate-ally” paints a more accurate picture of people who join in along with self-advocates. And true advocate-allies deserve the utmost respect. But a real advocate-ally is someone who doesn’t overshadow the voices and efforts of the people who experience being disabled every single day. Of course, as a disabled child is just beginning life, parents and professionals have a responsibility to play a key role as advocates. Obviously, a four-year-old wouldn’t be able to discuss medical procedures or know what kind of environmental access modifications are needed, so we can hope that parents will make sound and informed decisions on their child’s behalf. But as disabled children grow older, if they can communicate effectively in any way, then the primary goal should be to embrace the child’s form of communication, working with them to develop their own voice for advocacy. It can become problematic if parents or professionals are reluctant to relinquish their positions of authority and move to the role of advocate-allies, advocating alongside, instead of on behalf of, disabled people. Therefore, as important as it is to step up as advocates, it’s more important to know when to step down.

WASHINGTON, DC (October 10, 2013) -- Autism Speaks today issued autism-specific resources to help families understand the Affordable Care Act and the new changes that will affect health insurance coverage, beginning in 2014. These resources are a prelude to the “Autism Speaks Insurance Link,” a new interactive web tool Autism Speaks will unveil shortly to help families determine whether they are eligible for autism benefits under their current coverage.

We receive wonderful stories about parents who have become seasoned and powerful advocates for their children. Now these parents are paying it forward by providing advice and information to others, developing advocacy study groups, or training parents, service providers, and educators in special education advocacy.

Self-Advocacy is learning how to speak up for yourself, making your own decisions about your own life, learning how to get information so that you can understand things that are of interest to you, finding out who will support you in your journey, knowing your rights and responsibilities, problem solving, listening and learning, reaching out to others when you need help and friendship, and learning about self-determination.

When: Wednesday, April 14, 2010 from 10:00am-11:30am Mountain Presented by: Kayla A. Bower, Esq., and Joy J. Turner, Esq. Cost: $50.00 (includes phone and Web access to 90-minute live event plus unlimited access to archived event and related materials) About the webinar: This presentation will provide an understanding of the many dimensions to ethics in special education advocacy and its key components in both the approach to substantive issues and the methods by which an advocate achieves an outcome.

The Individuals with Disabilities Education Act (IDEA) has been widely celebrated for providing millions of disabled children with broader educational and life opportunities. This Note seeks to improve the implementation of the IDEA by questioning one of its key assumptions: that parents possess the tools to advocate for their children in special education matters. This Note argues that many parents need assistance to achieve optimal outcomes for their children because of the complexity of both the disabilities involved and the formal rules of the system itself. Several policy options are considered in the hope that local educational agencies will implement pilot programs to further explore the issue of external advocacy in special education.