Click here to join the chat if you are already on Twitter
Click here to create a free Twitter account
What:
National Family Voices (@FamilyVoices) will partner with @DrBoyleCDC and @DrPeacockCDC of CDC (the Centers for Disease Control and Prevention), the American Academy of Pediatrics (@AmerAcadPeds), and additional partners including state departments of health for a Twitter chat about birth defects. During the chat you will learn about birth defects statistics, how families of children with birth defects can support their children in collaboration with their health care providers (with an emphasis on family-centered care and medical home), and prevention of birth defects.
When:
Wednesday, January 23, 2013
12:00 pm Mountain
Where:
Tweets about "#1in33chat"
Creating A Google Website October 24th, 2012 5:30pm-8:00pm MSUB College of Education Building, Room 122
In
this series of classes Ronda McManus will explore how to create and maintain a
workable website using Google Tools. Websites can be created for a personal
digital portfolio, a classroom, or a business. Participants will learn how to
use many Google tools such as calendar, documents, presentation, and forms and
how to incorporate them into a workable website.
Ronda will cover each Google tool and give participants an opportunity to
develop content that will be utilized to develop a website at the end of the
series.
Click here to register for Google Docs Google Docs November 7, 2012 5:30pm-8:00pm MSUB College of Education Building, Room 122
Google Docs is a suite of products that lets you create different kinds of
online documents, work on them in real time with other people, and store your
documents and your other files -- all online, and all for free. Learn how to
create various documents, presentations, drawings, spreadsheets, and forms. In
addition, learn how to use Google Docs professionally in teaching and in
collaboration with colleagues, from making Digital Kits to using forms to survey
parent and student interests.
Click here to register for Assistive Technology Assistive Technology December 5, 2012 5:30pm-8:00pm MSUB College of Education Building, Room 122
Participants will have an opportunity to learn and use a variety of
If you are looking for some great special needs resources the first place to start is Twitter. Even if you are not actively on the social network, Twitter is a great place to find special needs resources.
What: During Autism Awareness Month in April, Brookes Publishing Co. will host online Q&As with three of today's top experts: Dr. Paula Kluth and Drs. Robert and Lynn Koegel. Brookes, a leading publisher of resources that support positive outcomes for people with autism, is facilitating these Q&As to connect professionals and parents with authoritative answers to pressing questions. Brookes is accepting questions in March via Facebook and Twitter, and answers to selected questions will be posted in April.
Robert and Lynn Koegel are co-founders of the renowned Autism Research Center at the University of California, Santa Barbara and have authored many books on autism, including Pivotal Response Treatments for Autism: Communication, Social, and Academic Development and the forthcoming title The PRT Pocket Guide. Questions for the Koegels can be submitted between March 15 - 30, 2012, and Brookes will post answers starting on April 9.
Paula Kluth is a popular, highly respected consultant, author, and independent scholar who works with teachers and families to promote fully inclusive schools that support all learners. Questions for Dr. Kluth can be submitted between March 15 - April 16, 2012, and responses will be posted starting on April 23.
Autism spectrum disorders are surrounded by a haze of misconceptions, many of which are harmful for autistic children and adults. It’s time to straighten a few things out, and to spread the word on this complex series of cognitive and intellectual disabilities with a little good old-fashioned debunking.
1. Autistic people have no empathy. This is a common belief about autism; people think that because autistics are sometimes blunt or have difficulty navigating social norms, they aren’t empathetic. In fact, just the opposite seems to be true. Rather than not feeling enough, many autistics feel very intensely, and are easily overwhelmed by the emotions of those around them.
2. Autistic people can’t communicate. Autism spectrum disorders take a variety of forms, and some people with autism are nonverbal, but that doesn’t mean they can’t communicate. Some use communication boards and other methods to communicate with the people around them, but it requires patience to establish and maintain communication with them. Historically, people with more severe forms of autism were often isolated in institutions, but more modern treatment of autism encourages the use of therapy and other techniques to interact with patients and find a communication mode they feel comfortable with.
3. Autistic people are violent. This particularly damaging assumption about autism was widely bandied around in the aftermath of the horrific Sandy Hook shooting. In fact, autistic people are no more likely to commit acts of violence than anyone else, and when they are violent, self-harm is a much more significant concern. Autism and other disabilities also put people at an increased risk of violence, which means autistics have far more to fear about the world around them. Some autistic people do act out or have what are known as “meltdowns,” usually as expressions of frustration with themselves or situations, but this doesn’t equate to violence against other people; an autistic might throw objects in frustration, for example, without any desire or intent to hit people with them.
4. Autistic people are savants. Everyone who’s seen Rainman thinks autistic people are savants, capable of extreme feats of memorization and other amazing skills. While it’s true that some savants are autistic, not everyone with an autism spectrum disorder has these capabilities; some in fact have significant learning disabilities that require accommodations in the classroom.
5. Autism is the result of “refrigerator mothers.” This awful myth about autism has been largely debunked, but it’s still worth a mention. Some people used to believe that autism was caused by bad parenting, with a specific focus on cold or isolated mothers. The result was a lot of misinformation about autism, and terrible pressure on mothers who were already learning about how to navigate the world with autistic children. In fact, autism has no clear cause.
6. Autistics can’t make friends. Along with the belief that autistic people lack empathy comes the assumption that they live isolated lives and have difficulty making friends. Just like everyone else, though, autistics are perfectly capable of establishing and maintaining not just friendships but other kinds of relationships with the people around them. Isolating autistic people in a misguided attempt to protect them can be very harmful, just as it would be for anyone else.
7. Stimming (repetitive behavior like flapping or rocking), is undesirable and should be stopped. Stimming is familiar to many people who are at least vaguely familiar with autism — sadly, it’s often used in mockeries of autistic people, by individuals who think that making flapping gestures or imitative noises is funny. For autistic people, stimming is one way to deal with chaotic environments or stress, and rather than being something that should be suppressed, it can actually be a healthy method of personal expression and sometimes communication as well. Autistics who are forced to modify or hide their stimming behaviors can develop even more stress, which can interfere with focus, completing tasks of daily living, and other activities.
It’s important to be aware that the autism spectrum is vast, and that autism spectrum disorders can manifest in a huge variety of ways. Every autistic is different, and every one deserves respect and dignity. That includes not perpetuating harmful stereotypes, and correcting people who falsely repeat them.
Click here to register for the Social Media Webinar
What: With
millions of Americans using social media sites such as Facebook and
Twitter to share information, the relations among applicants, employers,
and employees are changing rapidly. What protections remain for people
with disabilities as the line between private and public information
becomes increasingly blurred? Joe Bontke and Erin Lawler will tackle
these emerging issues and predict how the legal landscape may continue
to change.
Participants will learn:
how employers are currently using social media to screen, hire, and recruit employees
what information can employers use legally - and what information could lead to a disability rights violation
what rights employees have when using social media at work
best practices for employers and employees regarding social media
When: November 14, 2012 12pm-1:30pm
Contact: ADA Audio Conference Great Lakes ADA Center (MC 728) 1640 W. Roosevelt Road, Room 405 Chicago, Illinois 60608 http://www.ada-audio.org/WebForms/ContactUs/?im=0
Watch the live webcast with a broadband or slower connection.
Note: The webcast links are only active during the date and time of the
session, but all sessions are archived for future viewing.
What: This session of Grand Rounds explored opportunities for optimal quality
of life for individuals with disabilities. One in 6 adult Americans
lives with a disability when defined by a limitation in function. Many
are at higher risk for multiple chronic conditions, injuries, and
increased vulnerability during disasters. Comparatively, people with
disabilities are 4 times more likely to report their health to be
fair/poor and 2.5 times more likely to have unmet health care needs than
non-disabled peers. $400 billion is spent annually on
disability-related health expenditures. Public health can help change
this by promoting wellness and preventing disease in people with
disabilities. CDC′s approach for a population who experiences diverse
functional limitations is to assure that mainstream public health
surveys, programs, and policies include people with disabilities across
the lifespan, a method that can be modeled by state and federal
programs.
This powerful session of Grand Rounds explored public health
opportunities for disease prevention, intervention and improvement to
enable people to live well with functional limitations. We also
highlighted accomplishments of partners and public health agencies in
creating and modifying health programs to accommodate people with
disabilities.
Tentative future Grand Rounds topics include venous thromboembolism
(VTE), HPV, teen pregnancy and immunization.
Target
Audience:
Physicians
nurses
epidemiologists
pharmacists
veterinarians
certified
Since 2011, the Twitter party with the hashtag #youmightbeanautismparentif has been alive and kicking. Every comment offers a little snapshot of the inner lives of families who love someone with autism. At times the conversation is poignant, but in the last few weeks it’s been mostly humorous. Here are 16 recent highlights from the party that never ends.
The Social Security Administration (SSA) is conducting the Youth Transition Demonstration (YTD) as part of a broader initiative to encourage disability beneficiaries to return to work. The demonstration provides youth ages 14 through 25 with employment-related services and waivers of certain rules governing the Supplemental Security Income and Social Security Disability Insurance programs, including childhood disability benefits. The waivers augment existing financial incentives for beneficiaries to work.
When I heard that Steve Jobs had passed away, I was boarding a train from New York to Philadelphia to visit my son. A friend phoned and then text-messaged me the news before I could read it on Twitter. It felt, I said later, as if someone had torn the hair out of my head.
When I did tweet, the first semi-coherent thought I was able to write about Jobs was also about my son:
I’m on my way to PHL to see my son, who uses a device Steve Jobs invented to help him talk. He will never know. He will never know.
We are all connected in a global web of interdependency.
Long before the Internet, when Twitter was a sound and Liking someone meant you actually liked them, Martin Luther King Jr. prophesized the nature of things in the 21st century: "We are all tied together in the single garment of destiny, caught in an inescapable network of mutuality." Today, given the ubiquity of technology, we are, indeed, inexorably connected in worldwide economic, social, environmental and other systems. That interdependence requires us to rethink the consequences of our actions and the potential scope of our influence. As adults and educators, it requires a conception of ourselves as global citizens and global advocates, responsible for the development of our own children, the children next door or thousands of miles away.
WASHINGTON, DC – As school districts around the country consider investing in technology as a way to improve student outcomes, a new report from the Alliance for Excellent Education and the Stanford Center for Opportunity Policy in Education (SCOPE) finds that technology—when implemented properly—can produce significant gains in student achievement and boost engagement, particularly among students most at risk.
Facebook and Twitter will be awfully quiet come Nov. 1 if a slew of autism advocacy groups have their way.
Advocates around the globe are pushing for a one day “communication shutdown” in an effort to create awareness and raise funds for autism organizations in more than 40 countries.
Believe it or not, Facebook and Twitter aren't the only cool social networking sites on the Web. If your kids are too young for Facebook, or you're concerned about privacy, consider looking into some lesser-known social networking sites geared for tweens, preteens, and yes, even teenagers. We've rounded-up some of the top social networking sites that allow kids to keep a tighter rein on their privacy. Our choices include sites that limit the ways you connect with friends, offer greater control over how you interact, or home in on specific interests. Some of the sites for kids on the younger end of the scale offer more parental controls, too, so you can have a better sense of what your kid is doing online.
The Interagency Autism Coordinating Committee (IACC) has posted the revised “Strategic Plan“. This is the document which is supposed to guide US Government funded autism research.
The Strategic Plan is written from a parent’s perspective. It is divided into 7 questions to be answered. Below I list the parts I think are the “meat” of the Plan—the proposed projects with estimated budgets.
Experience is a great teacher, but sometimes it's not the best way to learn, especially when it comes to your medical needs. Smart people learn from their mistakes, but wise people learn from other people's mistakes. In my ten years with diabetes, I have found that to eliminate problems, you need to anticipate your needs. A few moments of preparation can ensure a great afternoon of fun with your friends, a better grade on a test, or participation in a sporting competition without any complications.
There is an endless debate about why school kids in the Western world are falling behind everyone else. Some say it's a shameful lack of funding; others say kids these days are too lazy and too busy Twittering on their iPads about the Justin Biebers to learn calculus.
But there are actually things you can do to help kids learn that cost next to nothing. For instance, studies show that kids do better if you ...
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\Creating A Google Website\\ \October 24th, 2012\\ \5:30pm-8:00pm\\ \MSUB College of Education Building, Room 122\\
\\n\
In \\nthis series of classes Ronda McManus will explore how to create and maintain a \\nworkable website using Google Tools. Websites can be created for a personal \\ndigital portfolio, a classroom, or a business. Participants will learn how to \\nuse many Google tools such as calendar, documents, presentation, and forms and \\nhow to incorporate them into a workable website. \\nRonda will cover each Google tool and give participants an opportunity to \\ndevelop content that will be utilized to develop a website at the end of the \\nseries. \\n\
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Participants will have an opportunity to learn and use a variety of assistive \\ntechnology programs and devices including Dragon \\nNaturally Speaking \\ngives you complete voice control of your digital world. Turn ideas into text at \\nthe speed of thought. Turn speech into text by saying words and watch them \\nappear on your computer screen in Word, WordPerfect, Excel, Outlook, and more. Kurzweil \\n3000includes \\nsoftware and hardware designed to make text-based materials more accessible for \\npeople who have difficulty with reading. Options can include scanning, \\nreformatting, navigating, or speaking text out loud. These programs are helpful \\nfor those who have difficulty seeing or manipulating conventional print \\nmaterials; and people who comprehend better when they hear and see text \\nhighlighted simultaneously. FM \\nSystems \\nare like miniature radio stations operating on special frequencies. The personal \\nFM system consists of a transmitter microphone used by the speaker (such as the \\nteacher in the classroom, or the speaker at a lecture) that transmits to a \\nreceiver used by the listener. Livescribe \\nSmart Pens \\nwork with special dot paper and your computer. They record as you write and link \\nit to audio so that you don\'t miss what is being said in lectures or meetings. \\nTo hear what you recorded on paper just tap on what you wrote. You can transfer \\nyour notes and recordings to your computer to play them back by downloading the \\nsoftware to your desktop. The \'desktop\' software gives you a page viewer to \\nsearch, view and replay notes.\
\\n\
\
\\n\
\\Click here to register for Twitter for Professional Development\\\\ Twitter for Professional Development\ January 16, 2013\ 5:30pm-8:00pm\ MSUB College of Education Building, Room 122\\ With \\nTwitter educators can readily access a constant stream of links, ideas, \\nresources, and opinions from professionals and educators all over the world. \\nThis workshop will assist you in creating that network.\
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\\n\
Robert and Lynn Koegel are co-founders of the renowned Autism Research Center at the University of California, Santa Barbara and have authored many books on autism, including\ Pivotal Response Treatments for Autism: Communication, Social, and Academic Development \and the forthcoming title\ The PRT Pocket Guide\. Questions for the Koegels can be submitted between March 15 - 30, 2012, and Brookes will post answers starting on April 9.\
\\n\
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\What:\ \With\\n millions of Americans using social media sites such as Facebook and \\nTwitter to share information, the relations among applicants, employers,\\n and employees are changing rapidly. What protections remain for people \\nwith disabilities as the line between private and public information \\nbecomes increasingly blurred? Joe Bontke and Erin Lawler will tackle \\nthese emerging issues and predict how the legal landscape may continue \\nto change. \
\\n\
\\Participants will learn: \\\
\\n\
\\n\
how employers are currently using social media to screen, hire, and recruit employees\
\\n\
what information can employers use legally - and what information could lead to a disability rights violation \
\\n\
what rights employees have when using social media at work \
\\n\
best practices for employers and employees regarding social media \
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\Watch the live webcast\ with a \broadband\ or \slower connection\.\\n Note: The webcast links are only active during the date and time of the\\n session, but all sessions are archived for future viewing.\
\\n\
\What:\ \This session of Grand Rounds explored opportunities for optimal quality \\nof life for individuals with disabilities. One in 6 adult Americans \\nlives with a disability when defined by a limitation in function. Many \\nare at higher risk for multiple chronic conditions, injuries, and \\nincreased vulnerability during disasters. Comparatively, people with \\ndisabilities are 4 times more likely to report their health to be \\nfair/poor and 2.5 times more likely to have unmet health care needs than\\n non-disabled peers. $400 billion is spent annually on \\ndisability-related health expenditures. Public health can help change \\nthis by promoting wellness and preventing disease in people with \\ndisabilities. CDC′s approach for a population who experiences diverse \\nfunctional limitations is to assure that mainstream public health \\nsurveys, programs, and policies include people with disabilities across \\nthe lifespan, a method that can be modeled by state and federal \\nprograms.\\nThis powerful session of Grand Rounds explored public health \\nopportunities for disease prevention, intervention and improvement to \\nenable people to live well with functional limitations. We also \\nhighlighted accomplishments of partners and public health agencies in \\ncreating and modifying health programs to accommodate people with \\ndisabilities.\\nTentative future Grand Rounds topics include venous thromboembolism \\n(VTE), HPV, teen pregnancy and immunization.\
\\n\Target\\n Audience:\ \ \\n\
\\n\
Physicians \
\\n\
nurses \
\\n\
epidemiologists \
\\n\
pharmacists \
\\n\
veterinarians \
\\n\
certified health education specialists \
\\n\
laboratorians\
\\n\
\\n\
\When:\ \Tuesday, December 18\ 11am (MST)\
\\n\
\Email \your questions about this topic before or during the session. Follow us on Twitter #cdcgrandrounds.\
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