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Roger Holt

Debunking 7 Common Myths About Autism | Care2 Causes - 0 views

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  • Autism spectrum disorders are surrounded by a haze of misconceptions, many of which are harmful for autistic children and adults. It’s time to straighten a few things out, and to spread the word on this complex series of cognitive and intellectual disabilities with a little good old-fashioned debunking. 1. Autistic people have no empathy. This is a common belief about autism; people think that because autistics are sometimes blunt or have difficulty navigating social norms, they aren’t empathetic. In fact, just the opposite seems to be true. Rather than not feeling enough, many autistics feel very intensely, and are easily overwhelmed by the emotions of those around them. 2. Autistic people can’t communicate. Autism spectrum disorders take a variety of forms, and some people with autism are nonverbal, but that doesn’t mean they can’t communicate. Some use communication boards and other methods to communicate with the people around them, but it requires patience to establish and maintain communication with them. Historically, people with more severe forms of autism were often isolated in institutions, but more modern treatment of autism encourages the use of therapy and other techniques to interact with patients and find a communication mode they feel comfortable with. 3. Autistic people are violent. This particularly damaging assumption about autism was widely bandied around in the aftermath of the horrific Sandy Hook shooting. In fact, autistic people are no more likely to commit acts of violence than anyone else, and when they are violent, self-harm is a much more significant concern. Autism and other disabilities also put people at an increased risk of violence, which means autistics have far more to fear about the world around them. Some autistic people do act out or have what are known as “meltdowns,” usually as expressions of frustration with themselves or situations, but this doesn’t equate to violence against other people; an autistic might throw objects in frustration, for example, without any desire or intent to hit people with them. 4. Autistic people are savants. Everyone who’s seen Rainman thinks autistic people are savants, capable of extreme feats of memorization and other amazing skills. While it’s true that some savants are autistic, not everyone with an autism spectrum disorder has these capabilities; some in fact have significant learning disabilities that require accommodations in the classroom. 5. Autism is the result of “refrigerator mothers.” This awful myth about autism has been largely debunked, but it’s still worth a mention. Some people used to believe that autism was caused by bad parenting, with a specific focus on cold or isolated mothers. The result was a lot of misinformation about autism, and terrible pressure on mothers who were already learning about how to navigate the world with autistic children. In fact, autism has no clear cause. 6. Autistics can’t make friends. Along with the belief that autistic people lack empathy comes the assumption that they live isolated lives and have difficulty making friends. Just like everyone else, though, autistics are perfectly capable of establishing and maintaining not just friendships but other kinds of relationships with the people around them. Isolating autistic people in a misguided attempt to protect them can be very harmful, just as it would be for anyone else. 7. Stimming (repetitive behavior like flapping or rocking), is undesirable and should be stopped. Stimming is familiar to many people who are at least vaguely familiar with autism — sadly, it’s often used in mockeries of autistic people, by individuals who think that making flapping gestures or imitative noises is funny. For autistic people, stimming is one way to deal with chaotic environments or stress, and rather than being something that should be suppressed, it can actually be a healthy method of personal expression and sometimes communication as well. Autistics who are forced to modify or hide their stimming behaviors can develop even more stress, which can interfere with focus, completing tasks of daily living, and other activities. It’s important to be aware that the autism spectrum is vast, and that autism spectrum disorders can manifest in a huge variety of ways. Every autistic is different, and every one deserves respect and dignity. That includes not perpetuating harmful stereotypes, and correcting people who falsely repeat them.
Sierra Boehm

Aspergers will no longer exist after May of 2013 - 0 views

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    The American Psychological Association (APA) is changing the definition of Autism Spectrum Disorders, a change which will occur in May of 2013. Click here to review he changes that will be included in the DSM-5. Note: A diagnosis of Aspergers does not qualify a student for eligibility under the disability category of Other Health Impairment. The OHI criteria require that the student has a health problem and Aspergers is a psychological disorder. There are several changes which concern parents, education professionals and people with autism spectrum disorders. Very briefly, these changes are: The new APA criterion for autism spectrum disorders is different from the current APA, IDEA and Montana educational criteria for autism spectrum disorders. Asperger's Disorder and Pervasive Developmental Disorder (PDD) will no longer exist as separate APA diagnostic categories, but will be subsumed in the revised APA criteria for "Autism Spectrum Disorder." Aspergers and PDD will no longer exist. What will these changes mean for students with autism spectrum disorders in Montana's public schools? Montana is unlikely to change the current criteria for identification of a student as having autism until the Individuals with Disabilities in Education Act (IDEA) is reauthorized.The IDEA was last reauthorized in 2004 and the revised regulations were published in 2006. There is no anticipated date for when the next reauthorization will occur. Contact: ddoty@mt.gov Doug Doty, Statewide Coordinator OPI Montana Autism Education Project 406-459-5303    
Sierra Boehm

Recursos para el Autismo en Español - Autism Resources in Spanish - 1 views

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      Los siguientes videos y otros recursos que pueden ser útiles para las familias de habla hispana para hacer frente con el autismo. - ( The following videos and other resources can be helpful for Spanish speaking families coping with autism. ) Comprendiendo el Autismo - ( Understanding Autism - Spanish Version ) El Autismo: Investigaciones recientes y opciones en el tratamiento - ( Autism: Recent research and treatment options ) Hablar con los padres sobre el Autismo Kit de Acción - ( Talking to Parents About Autism Action Kit ) Download Manual_de_los_100_dias Además de estos recursos de vídeo, puede hacer clic aquí para descargar un manual para ayudar a las familias a obtener la información crítica que necesitan durante los primeros 100 días después de un diagnóstico de autismo. - ( In addition to these video resources, you can click here to download a handbook to help families get the critical information they need during the first 100 days after an autism diagnosis. ) Puede encontrar más recursos sobre autismo en Inglés o español en - ( You can find more resources regarding autism in English or Spanish
Roger Holt

Autism | Brief Report: Quantifying the Impact of Autism Coverage on Private Insurance P... - 0 views

  • Insurance premiums (monthly payments) would increase slightly for everyone if insurance companies pay for autism-related services and therapy. The authors calculated how many people have been getting autism-related therapy, and how much those therapies cost. Then they figured out how much it would cost private insurance companies to pay for it. They estimated that the monthly payments for all of the people insured by private companies would go up about 0.2-2%.
Terry Booth

April is Autism Awareness Month - 0 views

  • On behalf of the Autism Subcommittee of the Council on Children with Disabilities, please note the current AAP autism resources for health care professionals and parents. Find more information about these items as well as additional resources at: http://medicalhomeinfo.org/about/cocwd/autism.aspx. Be sure to check out the sneak preview of the autism toolkit contents - only for AAP members (see below). Sound Advice on Autism - The AAP has developed a series of audio interviews with medical experts and parents of children with autism who answer parents' frequently asked questions. Conversations include: screening, diagnosis, treatment, alternative therapies, prevalence and causes of autism. AUTISM: Caring for Children with Autism Spectrum Disorders: A Resource Toolkit for Clinicians - A clinical resource (on CD-ROM) to assist in the recognition, evaluation, and ongoing management of ASDs. SNEAK PREVIEW for AAP Members - including samples and additional content information!! Understanding Autism Spectrum Disorders (ASDs) - This booklet provides critical information about ASDs and answers parents' most common questions. This booklet will help to identify ASD symptoms so that an intervention program can be started as soon as possible.   Is Your One-Year Old Communicating with You? - This brochure encourages parents to share any concerns about their baby's language development with their pediatrician as early as possible. It also provides early language and social milestones checklists. 
Meliah Bell

Free Online Autism Training for Parents from the Montana Office of Public Instruction - 0 views

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    Click here to register for Autism Training Solutions What:
    The Montana Autism Education Project is providing a limited number of FREE parent subscriptions for the Autism Training Solutions online autism training program. The subscriptions will begin in mid-December and will last for three months. For each individual subscription, the parent watches short online videos and then answers quizzes. Parents will have 24/7 access to 13 hours of online video lessons teaching: Antecedent Interventions
          Consequence Interventions       Teaching New Behavior       Principles of Behavior: Behavior Reduction       Principles of Behavior: Reinforcement       Introduction to Austim Spectrum Disorders       Teaching to Request/Mand       Instructional Control  
    Participants will also be asked to complete a training survey at the conclusion
Roger Holt

Top 30 Autism Spectrum Blogs of 2013 at Babble - 0 views

  • As autism diagnoses keep increasing, so too do the number of blogs about autism. Self-advocates, parents with autism who have kids with autism, and non-autistic parents all bring their own viewpoints, and all need to be heard. Babble's 2013 Top 30 Autism Blogs brings you voices from a range of viewpoints: some familiar, some fresh. We're excited that this year's picks include several blogs that are new to our list, including Asperkids, Stimeyland, Just a Lil Blog, The Third Glance, and The Domestic Goddess.
Roger Holt

Families Living With Autism | Utah Parent Center - 0 views

  • Creating a Community and Solving Challenges 1. You, A Caregiver for a Child with Autism 2. Autism and the Family 3. Grandparents and the Extended Family 4. Safety at Home 5. Building Your Faith Community 6. Creating a Community in Your Neighborhood 7. Creating a Community at School 8. Evaluating Interventions, Treatments and Resources 9. Technology 10. Your Child’s Health Care Providers and Medical Home
Roger Holt

The top 30 autism Facebook fan pages of 2013! at Babble - 0 views

  • Whether they’re looking to find practical advice on therapies, filter out misinformation, or just vent about a rough day, many parents of children with autism have found support in the Facebook community. Babble’s trusted panel has once again been tasked with narrowing down this year’s Top 30 Autism Facebook Fan Pages. This list includes pages created by advocacy organizations, autism professionals, bloggers (some of whom also appear on our Top 30 Autism Blogs), and much more. We’re confident you’ll see some of your favorites here (if not, be sure to nominate them in the comments for consideration on next year’s list!), but we also hope you’ll find new sources of information and advice. — Barbara Spindel
Sierra Boehm

Targeted Treatments for Autism: From Genes to Pharmacology - Webinar - April 23, 2013 - 0 views

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    Click here to register for this webinar (Part 1)
    Click here to register for all 4 parts of the "Amazing Brain" webinar series What:
    This session will focus on translational research related to targeted drug development for core symptoms of autism based on the emerging understanding of autism neuroscience. Goal and Objectives:
    1) Explain the "targeted treatment" approach to drug development for autism.
    2) Identify the synapse as a convergence point for multiple genes associated with autism
    3) Describe the challenges to demonstrating treatment efficacy on the core symptoms of autism. The purpose of this webinar series is to introduce clinicians to exciting developments in neuroscience that provides complex and new understanding of developmental and behavioral disorders in children. Participants will gain a greater understanding of the structure and functioning of areas of the brain, novel ways to study the brain and emerging treatments. When:
    Tuesday, April 23, 2013
    10:00 am - 11:00 am Mountain

    Cost:
    $40.00 per session,
    $120.00 for the entire series
Roger Holt

Changes to the APA definition of Autism Spectrum Disorders - what will this mean for Mo... - 0 views

  • The American Psychological Association (APA) is changing the definition of Autism Spectrum Disorders, a change which will occur in May of 2013. You can view the draft criteria here and a short explanation here. There are several changes which concern parents, education professionals and people with autism spectrum disorders. Very briefly, these changes are: 1. The new APA criterion for autism spectrum disorders is different from the current APA, IDEA and Montana educational criteria for autism spectrum disorders. 2. Asperger's Disorder and Pervasive Developmental Disorder will no longer exist as separate APA diagnostic categories, but will be subsumed in the revised APA criteria for "Autism Spectrum Disorder." What will these changes mean for students with autism spectrum disorders in Montana's public schools? 1. Montana is unlikely to change the current criteria for identification of a student as having autism until the Individuals with Disabilities in Education Act (IDEA) is reauthorized. 2. The IDEA was last reauthorized in 2004 and the revised regulations were published in 2006. There is no anticipated date for when the next reauthorization will occur. 3. When the IDEA or Montana educational criteria for educational disabilities change, there is no requirement that students who are currently identified as eligible for special education and related services be reevaluated to determine eligibility under the new criteria. These students have previously been determined as eligible using the criteria which were in effect at the time of their identification. 4. Children and youth who are evaluated and diagnosed by non-school agencies as meeting the current or revised APA definition of Autism Spectrum Disorder are still required to have a separate educational evaluation by the school district. 5. If necessary, the OPI Division of Special Education will provide guidance and technical assistance in interpreting any differences between the new APA criteria for autism spectrum disorders and the current Montana educational criteria for autism. If you have questions, please contact Doug Doty, Statewide Coordinator of the OPI Montana Autism Education Project at ddoty@mt.govor 459-5303
Terry Booth

Get Your Autism Questions Answered in Brookes Publishing's Ask the Experts Q&As - 0 views

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    What:
    During Autism Awareness Month in April, Brookes Publishing Co. will host online Q&As with three of today's top experts: Dr. Paula Kluth and Drs. Robert and Lynn Koegel. Brookes, a leading publisher of resources that support positive outcomes for people with autism, is facilitating these Q&As to connect professionals and parents with authoritative answers to pressing questions. Brookes is accepting questions in March via Facebook and Twitter, and answers to selected questions will be posted in April. Robert and Lynn Koegel are co-founders of the renowned Autism Research Center at the University of California, Santa Barbara and have authored many books on autism, including Pivotal Response Treatments for Autism: Communication, Social, and Academic Development and the forthcoming title The PRT Pocket Guide. Questions for the Koegels can be submitted between March 15 - 30, 2012, and Brookes will post answers starting on April 9. Paula Kluth is a popular, highly respected consultant, author, and independent scholar who works with teachers and families to promote fully inclusive schools that support all learners. Questions for Dr. Kluth can be submitted between March 15 - April 16, 2012, and responses will be posted starting on April 23. 
Roger Holt

Autism Resource DVD - My Next Steps: A Parent's Guide to Understanding Autism - 0 views

  • My Next Steps: A Parent's Guide to Understanding Autism
  • A first-time diagnosis of autism in a child can be an overwhelming and stressful time for parents and families. My Next Steps: A Parent's Guide to Understanding Autism serves as a roadmap for parents dealing with this challenging period and seeks to provide answers to the many questions that arise during the journey from autism diagnosis to treatment. The DVD is produced by the University of Washington Autism Center and funded by Washington State legislature. Through interviews with experts and treatment providers, My Next Steps familiarizes parents with topics that are crucial in providing the best support for their child.
  • A first-time diagnosis of autism in a child can be an overwhelming and stressful time for parents and families. My Next Steps: A Parent's Guide to Understanding Autism serves as a roadmap for parents dealing with this challenging period and seeks to provide answers to the many questions that arise during the journey from autism diagnosis to treatment. The DVD is produced by the University of Washington Autism Center and funded by Washington State legislature. Through interviews with experts and treatment providers, My Next Steps familiarizes parents with topics that are crucial in providing the best support for their child.
Roger Holt

Autism: a Q&A with Uta Frith | OUPblog - 0 views

  • We spoke to Uta Frith, author of Autism: A Very Short Introduction and asked her about diagnosis, the perceived links between autism and genius, and how autism is portrayed in culture. Autism was not identified before the 1940s. Weren’t there any autistic people before this? Autism was not a new phenomenon starting in the middle of the 20th century, but it needed people like Leo Kanner and Hans Asperger to point out the striking constellation of poor social communication and stereotypic behaviours for others to see it too. Clinicians used the terms ‘infantile’ or ‘early childhood autism’ and located it among the neglected population of children who were born ‘mentally deficient’. Gradually clinicians became aware that most of this neglected population showed similar problems in varying degrees, and that specialist services were needed to educate children who could not communicate appropriately. They embraced the idea of the autism spectrum. So, just as there has been an increase in the autism spectrum diagnosis, there has been a corresponding decrease in the diagnosis of mental retardation.
Roger Holt

Autism Inc.: The Discredited Science, Shady Treatments and Rising Profits Behind Altern... - 0 views

  • The statistics weren’t comforting: In March 2012 the Centers for Disease Control estimated that one in 88 American children is somewhere on the autistic spectrum. We’re still not sure exactly what causes autism, and we’re not sure why the number of children with autism spectrum disorders (ASDs) has increased since the early 1990s. According to the National Academy of Sciences, it could be because people are more aware of autism spectrum disorders today; because pediatricians are doing more screening; and because there have been changes in how autism disorders have been defined and diagnosed. In other words, more children with milder symptoms are being identified as somewhere “on the spectrum,” where they wouldn’t have been in years before. But as the Dimicks discovered—like many other parents before them—plenty of doctors claimed to have all the answers. The road parents must navigate is made more perilous by medical professionals willing to prescribe all sorts of treatments, from hyperbaric oxygen chambers and chelation therapy (which removes heavy metals with chemicals) to shelves full of dietary supplements and other alternative remedies they say can treat, even cure, autism. At best these treatments remain unapproved by the U.S. Food and Drug Administration; at worst they are downright dangerous. To compound the problem, a host of celebrities act as unpaid marketing reps for these unproven treatments, touting a pervasive (but incorrect) belief that autism is caused by childhood vaccines. This misinformation campaign has led, in the last few years, to a decline in the number of children receiving lifesaving inoculations. And Texas has become a center for alternative autism treatment and the anti-vaccine crusade.
Roger Holt

Most Children With Autism Diagnosed at 5 or Older - 0 views

  • May 24, 2012 -- New research provides a snapshot of what life is like for school-aged children with autism spectrum disorder in the U.S. The findings, which appear in the NCHS Data Brief, highlight areas where there is room for improvement, including earlier diagnosis of autism spectrum disorder and access to behavioral therapies and other services. The new study looked at children aged 6 to 17 with special health care needs and autism spectrum disorder in 2011. More than half of school-aged kids were age 5 or older when they were first diagnosed with autism spectrum disorder, the study showed. Less than 20% were diagnosed by age 2. The American Academy of Pediatrics recommends that pediatricians screen children for autism at 18 months of age.
Roger Holt

Autism Treatment Acceleration Act (ATAA) - 0 views

  • Autism Treatment Acceleration Act of 2009 - Federal Autism Insurance Reform (S. 819, H.R. 2413)
  • The “Autism Treatment Acceleration Act of 2009” (ATAA) contains a total of twelve sections, each putting forth a different program for autism.  A key feature of the bill is Section 12, which contains the provisions for federal reform of autism insurance coverage.  If passed, Section 12 will require all insurance companies across the country to provide coverage for evidence-based, medically-necessary autism treatments and therapies.
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    Autism Treatment Acceleration Act (ATAA) in the U.S. House of Representatives. Introduced by Representatives Mike Doyle (D-PA), Chris Smith (D-NJ), Eliot Engel (D-NY), and Hank Johnson (D-GA), ATAA is comprehensive federal legislation that addresses several critical challenges facing the autism community, including increased funding for scientific research, treatment and services.
Sierra Boehm

Using the Autism Spectrum Disorders (ASD) Collection - Webinar - Multiple dates in April - 0 views

  •  
    Register for this webinar
    What:
    Autism Awareness Month IDEA Partnership Autism Collection Webinars! Join the IDEA Partnership staff and organization leaders in learning about Using the Autism Spectrum Disorders (ASD) Collection. A webinar on Using the Autism Spectrum Disorders (ASD) Collection will be offered every Thursday during the month of April. All are welcome. The webinar will be limited to 50 participants.

    When:
    April 4, 11, 18, & 25, 2013      
    11:00 am Mountain

    Cost:
    Free of charge

Roger Holt

CDC Online Newsroom - CDC estimates 1 in 88 children in United States has been identifi... - 0 views

  • The Centers for Disease Control and Prevention estimates that 1 in 88 children in the United States has been identified as having an autism spectrum disorder (ASD), according to a new study released today that looked at data from 14 communities.  Autism spectrum disorders are almost five times more common among boys than girls – with 1 in 54 boys identified.
  • The report, Prevalence of Autism Spectrum Disorders – Autism and Developmental Disabilities Monitoring Network, 14 Sites, United States, 2008, provides autism prevalence estimates from 14 areas. It was published today in the Morbidity and Mortality Weekly Report.
  • “This information paints a picture of the magnitude of the condition across our country and helps us understand how communities identify children with autism,” said Health and Human Services (HHS) Secretary Kathleen Sebelius.  “That is why HHS and our entire administration has been working hard to improve the lives of people living with autism spectrum disorders and their families by improving research, support, and services.” “One thing the data tells us with certainty – there are more children and families that need help,” said CDC Director Thomas Frieden, M.D., M.P.H. “We must continue to track autism spectrum disorders because this is the information communities need to guide improvements in services to help children.”
  • ...1 more annotation...
  • Study results from the 2008 surveillance year show 11.3 per 1,000 8-year-old children have been identified as having an ASD.  This marks a 23 percent increase since the last report in 2009.  Some of this increase is due to the way children are identified, diagnosed and served in their communities, although exactly how much is due to these factors is unknown.  “To understand more, we need to keep accelerating our research into risk factors and causes of autism spectrum disorders,” said Coleen Boyle, Ph.D., M.S.Hyg., director of CDC’s National Center on Birth Defects and Developmental Disabilities. 
Terry Booth

Autism Society National Conference and Exposition - San Diego - July 25-28, 2012 - 0 views

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    Click here for full information on this event What:
    The Autism Society recognizes that families and individuals living with an autism spectrum disorder have a range of issues and needs. Our National Conference addresses the range of issues affecting people with autism including early intervention, education, employment, behavior, communication, social skills, biomedical interventions and others, across the entire lifespan. Bringing together the expertise and experiences of family members, professionals and individuals on the spectrum, attendees are able to learn how to more effectively advocate and obtain supports for the individual with ASD. The ultimate goal is to empower family members, individuals on the spectrum and professionals to make informed decisions. When/Where:
    July 25-28, 2012
    San Diego, California
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