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National Institutes of Health NIH Office of Rare Diseases Research. Web site aims to answer questions about rare diseases and the activities of the ORDR for patients, their families, healthcare providers, researchers, educators, students, and anyone with concern for and interest in rare diseases. The site provides information about ORDR-sponsored biomedical research, scientific conferences, and rare and genetic diseases. It also serves as a portal to information on major topics of interest to the rare diseases community.

PDF link on site directs to a list of more than 240 organizations in the United States likely to help those looking for information, referrals, and other guidance in connection with brain-related disorders. Listings provide mailing addresses, toll-free numbers, e-mail and clickable Web site addresses, and identify the primary services each organization provides. Brain Connections is provided by the Dana Alliance for Brain Initiatives. Your Source Guide to Information on Brain Diseases and Disorders

Office of Special Education and Rehabilitative Services (OSERS) Communication and Media Support Services (CMSS)United States Department of Education - The Clearinghouse provides information to people with disabilities, or anyone requesting information, by doing research and providing documents in response to inquiries. Information provided includes areas of federal funding for disability-related programs. Clearinghouse staff is trained to refer requests to other sources of disability-related information, if necessary.

Clinical Chemistry - 1997 NACB Symposium - Evaluation of the newborn's blood gas status - This paper discusses considerations for interpretation of blood gases in the newborn period. Blood gas measurements and noninvasive estimations provide important information about oxygenation. Its determined that Blood gas measurements and complementary, noninvasive monitoring techniques provide the clinician with information essential to patient assessment, therapeutic decision making, and prognostication. Blood gas measurements are as important for ill newborn infants as for other critically ill patients, but unique challenges are provided by rapidly changing physiology, difficult access to arterial and mixed venous sampling sites, and small blood volumes.

Serves Kentucky residents of all ages with disabilities of all types, their families, employers and employment service providers, educators, health care and social service providers, and others seeking information about assistive technology (AT) and accessible information technology. Four Regional Resources Centers provide device demonstrations and short-term loan of assistive technology devices for up to six weeks.

The Fetal Hope Foundation's mission is to provide support, provide information, fund research, increase awareness and be an outlet for leading medical information pertaining to fetal distresses and syndromes. We are all about arming families and healthcare providers with information and helping to save babies' lives

Most children have a preconceived notion that every day of summer should be exciting and adventurous. Children with special needs are no exception. As parents, we feel an obligation to provide our children with memorable summer breaks, without breaking the bank! Determining how to manage that day-to-day challenge can be exhausting for parents of a special needs child, especially when you factor in possible accessibility issues that may arise for children in wheelchairs or with mobility challenges.

CBER is the Center within FDA that regulates biological products for human use under applicable federal laws, including the Public Health Service Act and the Federal Food, Drug and Cosmetic Act. CBER protects and advances the public health by ensuring that biological products are safe and effective and available to those who need them. CBER also provides the public with information to promote the safe and appropriate use of biological products.

National Institute of Arthritis and Musculoskeletal and Skin Diseases - Questions and Answers about Scoliosis in Children and Adolescents - This booklet defines scoliosis and provides information about how it is diagnosed and treated in children and adolescents. You may be interested in contacting one or more of the organizations listed on the site for more information.

MedWatch - FDA Safety Information and Adverse Event Report Program - MedWatch alerts provide timely new safety information on human drugs, medical devices, vaccines and other biologics, dietary supplements, and cosmetics. The alerts contain actionable information that may impact both treatment and diagnostic choices for healthcare professional and patient.

Provides links to information on Drug and Device Information, Device Approvals and Safety information as well as links to other information government and private sector web sites

At Princeton University, faculty with research interests in neuroscience can be found in many departments, including Applied Math, Chemistry, Engineering, Molecular Biology, Physics, Philosophy and Psychology. This diversity mirrors the interdisciplinary nature of contemporary neuroscience research and provides a rich set of opportunities for research and training in neuroscience

A Pilot Study to Assess the Efficacy and Effectiveness of High-Frequency Chest Wall Oscillation (HFCWO) in Preventing Pulmonary Exacerbations in Children With Muscle Weakness and Restrictive Lung Disease To further demonstrate that airway clearance provided by Vest therapy reduces the frequency of respiratory exacerbations requiring hospitalization or antibiotic utilization in patients with muscle weakness and restrictive lung disease.

Provides information about: disabled travel, wheelchair travel, disabled holidays, disability travel, handicapped travel, accessible travel, accessable travel, vacations for disabled, mature travel.

The National Disability Rights Network (NDRN) is the nonprofit membership organization for the federally mandated Protection and Advocacy (P&A) Systems and Client Assistance Programs (CAP) for individuals with disabilities. Collectively, the P&A/CAP network is the largest provider of legally based advocacy services to people with disabilities in the United States.

This notebook is intended to aid primary care providers in their pursuit of optimal care, well-informed patients, and healthy families.Content: This site is derived from a peripheral brain collection of medical notes and is divided over 4316 topics within 616 chapters and 31 subspecialty books. Information is gleaned from reputable sources, referenced where possible, taken from lectures and workshops, peer reviewed articles and bulletins, and key texts.

PubMed.gov - U.S. National Library of Medicine - National Institues of Health. PubMed comprises approximately 20 million citations for biomedical literature from MEDLINE, life science journals, and online books. PubMed citations and abstracts include the fields of medicine, nursing, dentistry, veterinary medicine, the health care system, and preclinical sciences. PubMed also provides access to additional relevant Web sites and links to the other NCBI molecular biology resources.PubMed is a free resource that is developed and maintained by the National Center for Biotechnology Information (NCBI), at the U.S. National Library of Medicine (NLM), located at the National Institutes of Health (NIH).

NHLBI ARDS Clinical Network web site. This site was established to provide information to the public on ARDS and the ARDS Network. In order to hasten the development of effective therapy for Acute Respiratory Distress Syndrome (ARDS), the National Heart, Lung, and Blood Institute, National Institutes of Heath, initiated a clinical network to carry out multi center clinical trials of ARDS treatments. The goal of the Network is to efficiently test promising agents, devices, or management strategies to improve the care of patients with ARDS.

U.S. Department of Education - My Child's Special Needs - A Guide to the Individualized Education Program (IEP) - Archived Information providing guidance to assist educators, parents, and state and local educational agencies in implementing the requirements of Part B of the Individuals with Disabilities Education Act (IDEA) regarding Individualized Education Programs (IEPs) for children with disabilities, including preschool-aged children. (This guide does not address the development of Individualized Family Service Plans (IFSP) for infants and toddlers.)

National Research Center on Learning Disabilities (NRCLD) conducts research on the identification of learning disabilities; formulates implementation recommendations; disseminates findings; and provides technical assistance to national, state, and local constituencies. Provides parents and educations on information regarding SLD determination, the IEP process and more