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Lee Vander Loop

NIH Office of Rare Diseases Research (ORDR) - 1 views

rarediseases.info.nih.gov/Default.aspx

rare diseases genetic and rare diseases information center clinical trials research clinical trialgenetics information' nih

shared by Lee Vander Loop on 19 May 10 - Cached
  • Lee Vander Loop on 19 May 10
     
    National Institutes of Health NIH Office of Rare Diseases Research. Web site aims to answer questions about rare diseases and the activities of the ORDR for patients, their families, healthcare providers, researchers, educators, students, and anyone with concern for and interest in rare diseases. The site provides information about ORDR-sponsored biomedical research, scientific conferences, and rare and genetic diseases. It also serves as a portal to information on major topics of interest to the rare diseases community.
Lee Vander Loop

Disease Information from NORD, National Organization for Rare Disorders, Inc. - 1 views

www.rarediseases.org

NORD rarediseases.org rare diseases ataxic National Organization for Rare Disorders Disease Information from NORD

shared by Lee Vander Loop on 26 Mar 10 - Cached
  • Lee Vander Loop on 26 Mar 10
     
    Federation of individuals and organizations working together to build a better world for people affected by rare diseases. given a top (4-star) rating by a leading independent evaluator of nonprofit organizations
Lee Vander Loop

Rare Diseases Clinical Research Network (RDCRN) - 0 views

rarediseasesnetwork.epi.usf.edu

clinical trials rare diseases research clinical rarediseasesnetwork RDCRN

shared by Lee Vander Loop on 19 May 10 - Cached
  • Lee Vander Loop on 19 May 10
     
    The Rare Diseases Clinical Research Network (RDCRN) is made up of 19 distinctive consortia that are working in concert to improve availability of rare disease information, treatment, clinical studies, and general awareness for both patients and the medical community. The RDCRN also aims to provide up-to-date information for patients and to assist in connecting patients with advocacy groups, expert doctors, and clinical research opportunities
Lee Vander Loop

Disease Information from NORD, National Organization for Rare Disorders, Inc. - 0 views

www.rarediseases.org/...rdbdetail_abstract.html

cerebral palsy at the National Organization for Rare Disorders ataxia NORD ataxic cerebral palsy ataxic

shared by Lee Vander Loop on 01 Aug 10 - Cached
  • Lee Vander Loop on 01 Aug 10
     
    Cerebral Palsy at the National Organization for Rare Disorders NORD
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