PHE - Resources

Recommended by Sharon Wampler "How we see the world shapes who we choose to be - and sharing compelling experiences can frame the way we treat each other, for the better. This is a powerful perspective. As someone with a chronic illness, I shouldn't have to advocate for myself when I'm at my most ill. Is it too much to expect doctors to believe the words that I have to force out, amidst spikes of pain, after I've dragged myself to the emergency room? Yet so often I've found that doctors only look at my patient history and actively ignore most of what I've said."

"Late last week, Carnegie Mellon University (CMU) and Lumen Learning jointly issued a press release announcing their collaboration on an effort to integrate the Lumen-developed RISE analytical framework for curricular materials improvement analysis into the toolkit that Carnegie Mellon announced it will be contributing via open licenses (and unveiling at the Empirical Educator Project (EEP) summit that they are hosting in May)."

Recommended by vicky newman

Recommended by Sharon Anderson Morri

Interview with Grace Chang, CEO of startup Kintsugi, an AI powered voice activated journaling app I've used intermittently for several months. ~ Dennis

Recommended by Kabir I've been enjoying this book on the subject of Positivity in the research that has been done on the construct. As it turns out there is a mathematical tipping point for when positivity in our lives moves from an inert force to one that can dramatically impact and improve the qualities of our experience. Roughly speaking this is 3 positive thoughts/emotional experiences to 1 negative thought or emotional experience. When we reach this ratio (which is above average) on a consistent basis, it has meaningful impact on our health and well-being. So I wanted to invite you to this exercise with me: Throughout your day, each time you notice a negative thought or emotion, first feel, recognize, and accept the experience, and then Complement it by recalling 3 distinct things that you are grateful for, love, or enjoy - in essence bring about 3 positive thoughts/emotional experiences. Let's see what this does for our health and well-being! :-)

Center for Medicinal Cannabis Research

"We leave a trail of digital data breadcrumbs as we go about our days. With access and good apps, we could make sense of this "small data" to help get a clearer picture of our personal health. Deborah Estrin, networked sensing pioneer, Professor of Computer Science at the new Cornell Tech campus in New York City and co-founder of the non-profit startup, Open mHealth, explains at TEDMED 2013."

"We hear a lot about how big data, smart devices, and all the '-omics' (for example, genomics, proteomics, metabolomics, and so forth) are going to transform medicine-and they will. But there is another force that is going to change the way we think about and practice health, and that is our small data-small data derived from our individual digital traces."

Dennis: "Simply Brilliant work". Potential SME

"Years after her son's tragic death, a bereaved mother is on an impassioned mission to un-silence grief in our modern culture that has buried and forgotten the essential art of grieving."

Camille Nebeker: And another that my colleague, Eleanor wrote entitled the Rise of the New Bio-Citizen speaks to the need for governance and safety considerations when doing DIY research.

"I started Crohnology because after living for Crohn's for 14 years, I realized that the data that I was gathering outside the doctor's office was just as important as, if not more than, what I was learning inside. Since my diagnosis at age 12, I have had a dozen major flare ups of the disease. I found that, for me, diets and supplements, stress reduction and mental relaxation, and exercise help. I heard many people on the internet claim that they had found the magic bullet, but I thought it was irresponsible to be so confident. Just because these things worked for me, I wasn't about to claim that they work for everybody. Instead, I decided to build a patient-powered research network that would allow patients everywhere to be contributing their own treatment experimentation in a way that could be aggregated for us to learn what actually works for whom. - Sean Ahrens"

Camille Nebeker: I'm writing a paper on mHealth and research ethics across regulated and unregulated sectors. Came across an article that you may appreciate - it's basically saying that people need to be trained when conducting scientific research. It was aimed at clinicians - not citizen scientists:

Spend Money on AI or Just Give Doctors More Time? Eric J. Topol, MD; Abraham Verghese, MD; Danielle Ofri, MD, PhD DISCLOSURES September 04, 2019

Let's remember to feel happy!