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Dennis OConnor

OSTP Issues Guidance to Make Federally Funded Research Freely Available Without Delay -... - 0 views

www.whitehouse.gov/...freely-available-without-delay

research

shared by Dennis OConnor on 26 Aug 22 - No Cached
  • Dennis OConnor on 26 Aug 22
     
    "Today, the White House Office of Science and Technology Policy (OSTP) updated U.S. policy guidance to make the results of taxpayer-supported research immediately available to the American public at no cost. In a memorandum to federal departments and agencies, Dr. Alondra Nelson, the head of OSTP, delivered guidance for agencies to update their public access policies as soon as possible to make publications and research funded by taxpayers publicly accessible, without an embargo or cost. All agencies will fully implement updated policies, including ending the optional 12-month embargo, no later than December 31, 2025."
Dennis OConnor

Health Literacy - CCMI - 0 views

centrecmi.ca/health-literacy

patient-centered collaboration health-literacy

shared by Dennis OConnor on 15 Dec 19 - No Cached
  • Dennis OConnor on 15 Dec 19
     
    "Empowering patients to have greater agency in, and control over health decisions. A patient's health literacy is their ability to read, understand and use health care information to make informed decisions and modify behaviours that affect their personal healthcare needs. Promoting health literacy among patients creates a more collaborative care environment, one that empowers patients to have greater agency in, and control over, their own care decisions. CCMI's Health Literacy programs introduce participants to concepts that support and emphasize the importance of being able to support patients and communicate clearly so that patients and family members can truly participate in care. Participants will gain an understating of Health Literacy concepts and learn practical skills for engaging with patients to ensure clear and effective communication."
Dennis OConnor

The Well - 0 views

www.the-well.com

Integrative-spaces

shared by Dennis OConnor on 31 Oct 19 - No Cached
  • Dennis OConnor on 31 Oct 19
     
    THE WELL is your complete ecosystem for wellness. We bring together Western doctors and Eastern healers to collaborate, developing online content and personalized products and experiences that empower our community to take greater agency for their health. At THE WELL, your health is integrated, proactive and personalized, leading to a more balanced you. Mike: THURS - breakfast at integrative wellness gym/spa club called THE WELL opening in Midtown. Met COO and marketing officers.
Dennis OConnor

The CDC and States Are Misreporting COVID-19 Test Data - The Atlantic - 0 views

www.theatlantic.com/...611935

testing covid antibodies

shared by Dennis OConnor on 22 May 20 - No Cached
  • A negative test result means something different for each test. If somebody tests negative on a viral test, a doctor can be relatively confident that they are not sick right now; if somebody tests negative on an antibody test, they have probably never been infected with or exposed to the coronavirus. (Or they may have been given a false result—antibody tests are notoriously less accurate on an individual level than viral tests.) The problem is that the CDC is clumping negative results from both tests together in its public reporting.
  • Mixing the two tests makes it much harder to understand the meaning of positive tests, and it clouds important information about the U.S. response to the pandemic, Jha said. “The viral testing is to understand how many people are getting infected, while antibody testing is like looking in the rearview mirror. The two tests are totally different signals,” he told us. By combining the two types of results, the CDC has made them both “uninterpretable,” he said.
  • “Combining a test that is designed to detect current infection with a test that detects infection at some point in the past is just really confusing and muddies the water,” Hanage told us.
  • Dennis OConnor on 22 May 20
     
    "The government's disease-fighting agency is conflating viral and antibody tests, compromising a few crucial metrics that governors depend on to reopen their economies. Pennsylvania, Georgia, Texas, and other states are doing the same."
Dennis OConnor

Invasive Yet Inevitable? Privacy Normalization Trends in Biometric Technology - 0 views

journals.sagepub.com/...20563051221129147

privacy tracking

shared by Dennis OConnor on 25 Oct 22 - No Cached
  • Dennis OConnor on 25 Oct 22
     
    Abstract As biometric technology relies on bodily, physical information, it is among the more intrusive technologies in the contemporary consumer market. Consumer products containing biometric technology are becoming more popular and normalized, yet little is known about public perceptions concerning its privacy implications, especially from the perspective of human agency. This study examines how people perceive biometric technologies in different societal contexts and via different agents in control. Our study revealed that, in large part, people's perceptions of biometric technology are context-dependent, based on who retrieves and who benefits from the information and the situation where the data are collected. Participants were much more comfortable with more intrusive biometric technology in airport security than in a grocery store, and if it was employed to improve their health. We conclude by considering the implications of the survey for new threats to personal privacy that arise out of emerging technologies. Keywords biometric, facial recognition, DNA identification, digital privacy, digital data sharing, emerging technology, surveillance technology, contextual integrity, situational privacy
Dennis OConnor

Present Moment Living - 0 views

www.presentmomentliving.org

Qigong ecosystem agency living

shared by Dennis OConnor on 10 Jul 18 - No Cached
  • Dennis OConnor on 10 Jul 18
     
    "ABOUT REYNA I believe in Present Moment Living. Each moment is a true gift, and the more we become aware of this we will reap the benefits, as well as those around us. I believe developing a personal practice is a powerful tool to enhance our innate ability to be well holsitically - mind, body and soul. I invite you to join me in a playful exploration of the potential that you ARE."
Dennis OConnor

Abridge | AppKaiju - 0 views

appkaiju.com/n7rn

data medical-records empowerment agency

shared by Dennis OConnor on 29 Sep 19 - No Cached
  • Dennis OConnor on 29 Sep 19
     
    "Why leave all the details behind when you leave the doctor's office, or settle for a printed visit summary that only tells half the story? Abridge records your health care as it happened. You record your health story: - Conversations with doctors and nurses - Discussions about treatment options with family or friends who've been through it before - Personal observations about your symptoms and health "
Dennis OConnor

RDMD - Be part of the solution for your rare disease - 0 views

www.rdmd.com

data medical-records empowerment agency

shared by Dennis OConnor on 29 Sep 19 - No Cached
  • Dennis OConnor on 29 Sep 19
     
    ""Patients shouldn't be bystanders in drug development." - Onno Faber (Founder of RDMD) Four years ago, I started experiencing hearing loss in my left ear. Doctors prescribed me steroids, thinking it was an infection, but the deterioration did not slow down. After numerous failed treatments, a specialist finally ordered an MRI, whereupon he discovered a large tumor on my left hearing nerve. Months later, another tumor was discovered in my right hearing nerve, and another on my spine. I was diagnosed with a rare genetic disease called NF2 (Neurofibromatosis Type 2), a disease that affects only 1 in 30,000 people. It completely changed my perspective. All my life, I've been a technology entrepreneur, beginning with a tech company I started in high school. I'm now applying everything I've learned throughout my career to build RDMD, where we're helping to accelerate treatments for patients with rare disease. Our mission is ambitious, but I can't imagine working on anything more important than this. - Onno"
Dennis OConnor

Apple and Google have a clever way of encouraging people to install contact-tracing app... - 0 views

www.theverge.com/...s-pros-cons-quarantine-testing

data tracking covid

shared by Dennis OConnor on 14 Apr 20 - No Cached
  • Apple and Google surprised us with an announcement that the companies are spinning up a system to enable widespread contact tracing in an effort to contain the COVID-19 pandemic.
  • The basic idea is that as jurisdictions flatten the curve of infection and begin to consider re-opening parts of society, they need to implement a comprehensive “test and trace” scheme.
  • First, the companies said that by phase two of their effort, when contact tracing is enabled at the level of the operating system, they will notify people who have opted in to their potential exposure to COVID-19 even if they have not downloaded the relevant app from their public health authority.
  • ...4 more annotations...
  • Apple and Google said they recognized the importance of not allowing people to trigger alerts based on unverified claims of a COVID-19 infection. Instead, they said, people who are diagnosed will be given a one-time code by the public health agency, which the newly diagnosed will have to enter to trigger the alert.
  • Google said it would distribute the operating system update through Google Play services, a part of Android controlled by the company that allows it to reach the majority of active devices.
  • Singapore saw only 12 percent adoption of its national contact-tracing app. Putting notifications at the system level represents a major step forward for this effort, even if still requires people to opt in.
  • the companies promised to use the system only for contact tracing, and to dismantle the network when it becomes appropriate.
Dennis OConnor

Home - NORD (National Organization for Rare Disorders) - 0 views

rarediseases.org

research agency ecosystem

shared by Dennis OConnor on 16 Mar 20 - No Cached
  • Dennis OConnor on 16 Mar 20
     
    ""This year, patients, families, caregivers, medical professionals, NORD staff and other stakeholders participated in over 25 Rare Disease Day advocacy events in 23 states.""
Dennis OConnor

I'm an Expert on My Own Body - So Why Aren't Doctors Listening? - 0 views

www.healthline.com/...doctors-listen-to-patients

empowerment agency

shared by Dennis OConnor on 27 Sep 19 - No Cached
  • Dennis OConnor on 27 Sep 19
     
    Recommended by Sharon Wampler "How we see the world shapes who we choose to be - and sharing compelling experiences can frame the way we treat each other, for the better. This is a powerful perspective. As someone with a chronic illness, I shouldn't have to advocate for myself when I'm at my most ill. Is it too much to expect doctors to believe the words that I have to force out, amidst spikes of pain, after I've dragged myself to the emergency room? Yet so often I've found that doctors only look at my patient history and actively ignore most of what I've said."
Dennis OConnor

On Teaching: Learning From Black Educators - The Atlantic - 0 views

www.theatlantic.com/...616048

diversity

shared by Dennis OConnor on 23 Sep 20 - No Cached
  • “You need a sincere love for children,” Grenell liked to remind Moore. “Never give up on a child.”
  • firm and demanding, but also warm and encouraging.
  • She was named Mississippi Teacher of the Year in 2001 and won the prestigious Milken Award.
  • ...13 more annotations...
  • Students will go to great lengths to hide from me what they don’t know.
  • I do that very intentionally at the beginning of the semester to signal: “I see you as a human being. I’m paying attention to what you say to me. You are a unique individual with skills and ideas that matter.”
  • That’s important, because a lot of students have told me that no one’s ever actually read what they wrote. What they mean by that is that their writing has been graded, but it’s never been read.
  • Then, at the end of the semester, I give them the introduction letter back. And the final exam is an essay where they have to reflect on their portfolio: all of the written pieces they produced in the course of the semester.
  • they’re not used to measuring it in terms of actual skills and knowledge. They're always stunned at how far they’ve come.
  • The students have been so used to having their grammar criticized that they over-censor themselves when they’re writing.
  • The message was always, “When you go to college.” It was always, “You can do it.
  • “You get educated for the benefit of the community and the race.”
  • Today we have wasted a generation, telling young people that the primary reason to pursue education is to get into a well-paying career. In rural or economically depressed areas like Delta, looking at education chiefly as a path to social mobility—rather than a path to full citizenship, one’s sense of agency and freedom—can actually depress achievement and increase hopelessness. B
  • By attaching the dreams and aspirations of African American students to a higher good, their expectations are infused with a meaningful purpose.
  • For a lot of the kids now, school is just drudgery from beginning to end—particularly schools that serve poor Black students. There’s no music curriculum, no arts curriculum, no vocational classes.
  • They congratulated me, because I was going to Washington, D.C., to receive the award. These women had taken up money among themselves, put it in a handkerchief, tied it, and handed it to me, as a way to celebrate that I was going to see the president—and represent Black people in a society that questions Black intelligence. I cried. They cried. It was the most touching thing.
  • I am a reflection of the accumulated wisdom these teachers passed on to me. All of these great teachers who had preceded me, who taught in segregated schools under horrible conditions, with no equal pay.
Dennis OConnor

Empowering patients and reducing inequities: is there potential in sharing clinical not... - 0 views

qualitysafety.bmj.com/...bmjqs-2019-010490.full

medical-records open-notes patient-experience sharing agency

shared by Dennis OConnor on 11 Jun 20 - No Cached
  • engages them actively in their care, improves their sense of control over their health and enhances safety.
  • older, less educated, non-white or whose first language is not English report even greater benefits than do their counterparts
  • we suggest that open notes may, over time, prove important in the care of patients who are at risk of experiencing healthcare disparities.
  • ...16 more annotations...
  • in the USA, the likelihood of receiving an access code to activate health portals is significantly lower for minorities, the uninsured, non-English speakers and older patients.11
  • Research suggests that negative implicit biases can affect the quality of health interactions and are associated with fewer signals of support and empathy towards patients representing some disadvantaged demographic groups, including racial and ethnic minorities, low-income, less educated and older patients.1
  • Open notes might be viewed as extending the visit, potentially thereby elongating and strengthening patient–physician interactions before and after the pressures of the clinical encounter.
  • investigators found that patients who were non-white or less educated reported more benefits than their counterparts:
  • Although some health organisations provide portals in a range of languages, clinical notes are typically offered in one language only.
  • access to open notes appears to help some patients who speak another primary language by allowing them, or a care partner, to read and recall information.
  • 77% (357/462) reported reading their notes as extremely important for remembering their care plan,
  • It is estimated that, on average, patients do not recall about half of the health information communicated during visits, with this figure likely higher among those with lower levels of health literacy.2
  • health literacy is now recognised as a driver of health disparities.
  • By offering patients access to records that document what was discussed during visits, open notes may provide a novel forum for augmenting health literacy among some patients.
  • As one patient noted: “I like my summaries because I can go back and revisit them”.1
  • in a large study of patients who read notes, 38% (8588/22 753) reported sharing them with others, predominantly family members
  • Limitations
  • Open notes are becoming increasingly common, and preliminary data suggest they may hold particular benefits for vulnerable patient populations
  • Second, as preliminary evidence suggests, it is possible that open notes may increase trust between patients and clinicians, reduce transmission of bias and increase patient engagement, especially among vulnerable patient populations
  • co-creation of medical notes holds promise and is currently under investigation
Dennis OConnor

Open Notes: Feel More in Control - 1 views

www.opennotes.org/notes-you

EHR medical-records open-notes patient-experience agency

shared by Dennis OConnor on 10 Jun 20 - No Cached
  • Dennis OConnor on 10 Jun 20
     
    "Feel More in Control OpenNotes isn't a product. It's a movement that makes health care more open and transparent by encouraging doctors and other professionals to share their visit notes. Reading your notes can help you manage your health care. Ask your doctor for them!"
Dennis OConnor

OpenNotes - Patients and clinicians on the same page - 1 views

www.opennotes.org

EHR medical-records open-notes patient-experience agency

shared by Dennis OConnor on 10 Jun 20 - No Cached
  • Dennis OConnor on 10 Jun 20
     
    "OpenNotes is the international movement that's making health care more transparent. It urges doctors, nurses, therapists, and others to invite patients to read the notes they write to describe a visit."
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