PHE - Resources

Recommended by Tyler Orion - "For data from wearable technology to apps to text messaging, ownership is determined by the terms and conditions you agree to. The Apple Watch and Google Fitbit, for example, are both designed to give you access to key indicators of your health but their terms and conditions don't give you ownership of your data - and users don't know how their data are being used. This landscape is further complicated by the status of data under property law, which isn't viewed as wholly "ownable." And since current laws don't view people as the owners of their personal data, health care and service providers treat data as under their ownership. And those data are lucrative."

Recommended by Tyler Orion- "As the future of our healthcare system moves towards electronic healthcare records, we need patient data ownership rights to protect patient care. 4 Principles 1. Patients co-own or fully own every health data point about themselves. 2. Health data generated about the patient by a provider is co-owned by both parties. 3. Health data generated by the patient is fully owned by the patient with a right to possess, share, sell, or destroy. 4. All uses of a patients' health data shall be consented in advance by the patient, other than uses required by law."

"Researchers hope that building out sequencing data from more people in tandem with reviewing their clinical information can help steer them to more connections between genetic variants and disease. And with new technology, scientists are getting better at whittling down all the genetic noise produced by looking at someone's whole genome to home in on what's causing these conditions."

Full Text PDF available: "Wearable device signals and home blood pressure data across age, sex, race, ethnicity, and clinical phenotypes in the Michigan Predictive Activity & Clinical Trajectories in Health (MIPACT) study: a prospective, community-based observational study"

Advances in wearable device and home blood pressure monitoring technology offer promising opportunities to characterise population health and to improve understanding of cardiovascular disease risk. These devices also allow for remote longitudinal patient monitoring, increased engagement and health literacy, and delivery of personalised behavioural interventions all while reducing overall health-care costs.1 Various health systems and start-ups seek to combine these data with clinical information from the electronic medical record, and several insurance companies are already trying to incentivise the uptake of wearable devices.2

"The MIPACT study is a prospective cohort study designed to integrate multiple sources of digital data to better understand clinical phenotypes. Participants were recruited from Michigan Medicine and the surrounding communities and provided with an Apple Watch series 3 or 4 and an Omron Evolv Wireless Blood Pressure Monitor. Participants consented to provide access to parts of their electronic medical record and to provide a blood sample for laboratory and genetic analyses. Participants were asked to perform regular tasks including guided breathing, BP monitoring, and quarterly survey completion. The study was funded in part by Apple, Inc and performed in partnership with Michigan Medicine."

"This app contains physiologic and activity data for nearly 7,000 MIPACT study participants from the University of Michigan. To protect patient anonymity, data will only be displayed when 10 or more study participants have the selected combination of attributes. Data is available from the first 90-days of study participation and may be updated at a later date. Visit our MIPACT study website for more information."

NEW SONG BY GURU SHABAD SINGH FOR CHARITY, TO BUILD A SAT NAM RASAYAN SCHOOL IN CHIAPAS MEXICO. In honor of his beloved, departed Hari Das, Guru Shabad Singh invites you to contribute to creating a global, multi-cultural, multi-modality healing center space for students and practitioners in San Cristóbal de las Casas, Chiapas, Mexico.  ( People from around the world will come to experience and train in multiple healing modalities, including Sat Nam Rasayan, in which Hari Das was a dedicated and devoted senior teacher.( ( The Center is in its nascent stage, with initial plans coming together for the space and the programming. Your donation is a precious chance to honor Hari Das' legacy as a healer of the planet. ( To learn more about Sat Nam Rasayan please visit: www.satnamrasayan.it

"Can Nonprofits Accept Cryptocurrencies as Donations? Generally, it is lawful for a nonprofit to accept a donation in the form of a cryptocurrency. However, this does not necessarily mean that it would be prudent for all nonprofits to do so. First, nonprofits must understand how cryptocurrency gifts work and what risks may be involved with taking and holding onto cryptocurrency."

Recommended"Stanford University researchers are recruiting ME/CFS, Chronic Lyme, and Long COVID patients for a study to better understand symptom flares such as post-exertional malaise (PEM), or "crashes"."

"An FDA advisory panel recommended emergency use authorization (EUA) of a booster dose of Moderna's COVID-19 vaccine for adults ages 65 and older, as well as for younger adults with high-risk medical conditions or at high risk of occupational or institutional exposure."

"BOSTON-Having exhausted the possibilities of the chromosome pairs that came preloaded on the original human genome, researchers at Harvard Medical School's Department of Genetics told reporters Wednesday they had unlocked 47 new editable genes following their purchase of a CRISPR expansion pack. "This add-on has a ton of incredible new genes, and we can't wait to start inserting them into our lab specimens," said Kevin Spiros, a professor of genetics, remarking that there was nothing more fun than having "some fresh strands of recombinant DNA to play around with." "

"I propose that beyond investor lack of awareness, hesitancy and risk aversiveness, blockchain-based solutions introduce an existential threat to the business of healthcare and therefore detract investment. Blockchain does not just dis-intermediate heavily-invested and powerful third parties in healthcare, like pharmacy benefit managers, group purchasing organizations, and third party administrators; blockchain changes the economic power balance that drives the current status quo, which represents nearly 20% of the US GDP."

Latest from Alex Cahana on the health ecosystem we are intent on distrupting.

This graph is available when you access Brain HQ via their website. You won't see it when using the mobile App.

"Digital Twins and the Emerging Science of Self: Implications for Digital Health Experience Design and "Small" Data"

"Trick out your toolbox A growing library of software tools and services allows digital health companies to build their own unique experiences and iterate with ease."

"How to be your own advocate If you don't fight for yourself, who will?" I think this page would be a good blog post for our website. It seems to me that patient advocacy fits our Brand. Agree? Disagree?

"Breakthrough Infections in Vaccinated People Less Likely to Cause 'Long COVID'"

Cahana: I will be moderating two one-hour panels on the use of #Blockchain in #Healthcare and #LifeSciences in our #covidー19 world. Specifically you will learn from our experts: Heather Leigh Flannery, Bernhard Salb, Synho Do and Ahmed Abdulla the latest about current solutions in data privacy, security, sovereignty as well as how to #incentivize data sharing to combat the global challenges we are facing. Many thanks to Caroline Dennis for her impeccable organization and the Boston Blockchain Association (BBA) Association for supporting this event.