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Dennis OConnor

What Lyme Disease and Its Aftermath Taught Me About Self-Advocacy - 1 views

thriveglobal.com/...-taught-me-about-self-advocacy

lyme-disease empowerment storytelling

shared by Dennis OConnor on 15 Jan 20 - No Cached
  • Dennis OConnor on 15 Jan 20
     
    4 Lessons in Self-Advocacy - Sometimes you have to save your own life.
Dennis OConnor

Patient advocacy groups and innovators need to partner - STAT - 0 views

www.statnews.com/...tner-to-advance-new-treatments

patient advocacy sci

shared by Dennis OConnor on 04 Sep 21 - No Cached
  • Dennis OConnor on 04 Sep 21
     
    "Many believe that for people living with spinal cord injuries, "recovery" is defined first and foremost as regaining the ability to walk. But the repercussions of spinal cord injury go beyond that and recovery has different degrees. Many of those living with spinal cord injuries hope to normalize their blood pressure, or regain bowel, bladder and other affected bodily functions, for a more self-reliant, healthier life. For most, the top priority is recovery of use of a hand and arm, which translates into meaningful, quality-of-life improvements: being able to independently eat, dress, work, and perform other daily activities."
Dennis OConnor

The Power of Advocating Through Music | Rachelle Babler | TEDxWestMonroe - 0 views

www.youtube.com/watch

patient-experience advocacy empowered-patient Project-Apollo-Circle

shared by Dennis OConnor on 21 Dec 21 - No Cached
  • Dennis OConnor on 21 Dec 21
     
    "Rachelle Babler explores the untapped powers of combining music and advocacy to create human impact. She did this after losing her sister to colon cancer to create awareness around prevention and screening. The response was overwhelming. While many have advocated through speeches, fundraisers and media, very few advocate through songwriting and music. Maybe music will be the critical voice that creates the awakening to help us unite, during times of chaos and separation. When we are divided by speech, we can be united and reunited through the power of song. Rachelle Babler grew up in Southern California near the sunny beaches of San Diego and has always been an avid explorer, traveler, musician and creative soul. At the height of her career in forensics, she quit her job cold turkey to pursue her "why" and found out what that was during a global pandemic, "TO empower others to consciously advocate, SO THAT they can heal, inspire and unite the human collective". She is a #1 International Best Selling Co-Author, Speaker, Advocate. Singer/Songwriter and proud mother to her two amazing children, Austin and Camryn. This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at https://www.ted.com/tedx"
Dennis OConnor

(12) Pelin Wood Thorogood | LinkedIn - 0 views

www.linkedin.com/pelin

wholistic-research cbd donor apollo

shared by Dennis OConnor on 06 Jun 18 - No Cached
  • Dennis OConnor on 06 Jun 18
     
    new project apollo patient. Co-Founder & President Company NameWholistic Research and Education Foundation Dates EmployedMay 2017 - Present Employment Duration1 yr 2 mos LocationGreater San Diego Area Wholistic Research and Education Foundation is a California-based nonprofit dedicated to exploring the health benefits of CBD-rich therapeutics. Our mission is to fund clinical and scientific research to better understand the "if, how and why" behind the potential healing power of hemp and cannabis across a multitude of ailments, as well as work to increase safe and legal access to those in need via advocacy and education. Co-Founder Company NameMana Artisan Botanics Dates EmployedMay 2017 - Present Employment Duration1 yr 2 mos LocationKona, Hawaii Mana Artisan Botanics is a purpose-driven hemp company based on the Big Island of Hawaii. We offer pure hemp extracts infused with sustainably grown Hawaiian herbs and spices - nature's mana. Each product is hand crafted artisan style, in small batches. We take great care to source our ingredients from conscientious farmers, supporting local and organic whenever available. All of our products are simple, pure and good for body and soil.
Dennis OConnor

LymeDisease.org - Advocating nationally for quality accessible healthcare for patients ... - 0 views

www.lymedisease.org

lyme-disease storytelling

shared by Dennis OConnor on 26 Aug 18 - No Cached
  • Dennis OConnor on 26 Aug 18
     
    We were founded in 1989 as a small grass-roots organization in Ukiah, California. Today, we are one of the most trusted sources of information by patients - annually reaching over 3.5 million unique visitors on our website. LymeDisease.org is grounded in the principles of patient empowerment, participation, and self-determination. We fight to make the patient voice stronger to support science-based advocacy bring about legislative change, and create a future where Lyme patients can receive the treatments they need to get well. LymeDisease.org empowers individual patients by educating them, amplifying their collective voice, and providing research tools like our published big data surveys and the MyLymeData patient registry. We believe that there is strength in numbers.
Dennis OConnor

About Us - Valisure: Meet the Valisure team working to validate your meds - 0 views

www.valisure.com/about-us

Vicky-Newman Zantac

shared by Dennis OConnor on 21 Oct 19 - No Cached
  • Dennis OConnor on 21 Oct 19
     
    "Valisure's mission is to bring transparency and increased quality to the pharmaceutical industry, and to deliver these benefits direct to consumers. We hope to achieve this through focusing on patient advocacy, consumer protection, and performing advanced research and development."
Dennis OConnor

Home - NORD (National Organization for Rare Disorders) - 0 views

rarediseases.org

research agency ecosystem

shared by Dennis OConnor on 16 Mar 20 - No Cached
  • Dennis OConnor on 16 Mar 20
     
    ""This year, patients, families, caregivers, medical professionals, NORD staff and other stakeholders participated in over 25 Rare Disease Day advocacy events in 23 states.""
Dennis OConnor

What We Do | The Schwartz Center - 0 views

www.theschwartzcenter.org/...what-we-do

palliative compassion healthcare-literacy

shared by Dennis OConnor on 05 Aug 20 - No Cached
  • Dennis OConnor on 05 Aug 20
     
    Recommended by DeAunne Denmark MD PhD: Our Mission To put compassion at the heart of healthcare through programs, education and advocacy. Our Vision: A world where all who seek and provide healthcare experience compassion.
Dennis OConnor

How to be your own advocate | TED Talks - 0 views

www.ted.com/...how_to_be_your_own_advocate

patient-centered advocacy

shared by Dennis OConnor on 15 Sep 21 - No Cached
  • Dennis OConnor on 15 Sep 21
     
    "How to be your own advocate If you don't fight for yourself, who will?" I think this page would be a good blog post for our website. It seems to me that patient advocacy fits our Brand. Agree? Disagree?
Dennis OConnor

Intersectionality, explained: meet Kimberlé Crenshaw, who coined the term - Vox - 1 views

www.vox.com/...law-race-gender-discrimination

diversity intersectionality

shared by Dennis OConnor on 25 Sep 20 - No Cached
  • The current debate over intersectionality is really three debates: one based on what academics like Crenshaw actually mean by the term, one based on how activists seeking to eliminate disparities between groups have interpreted the term, and a third on how some conservatives are responding to its use by those activists.
  • the American legal and socioeconomic order was largely built on racism.
  • Crenshaw argued that the court’s narrow view of discrimination was a prime example of the “conceptual limitations of ... single-issue analyses” regarding how the law considers both racism and sexism.
  • ...14 more annotations...
  • Judge Harris Wangelin ruled against the plaintiffs, writing in part that “black women” could not be considered a separate, protected class within the law, or else it would risk opening a “Pandora’s box” of minorities who would demand to be heard in the la
  • Crenshaw’s theory went mainstream, arriving in the Oxford English Dictionary in 2015 and gaining widespread attention during the 2017 Women’s March,
  • “What was puzzling is that usually with ideas that people take seriously, they actually try to master them, or at least try to read the sources that they are citing for the proposition. Often, that doesn’t happen with intersectionality
  • Beginning in 2015 and escalating ever since, the conservative response to intersectionality has ranged from mild amusement to outright horror.
  • When you talk to conservatives about the term itself, however, they’re more measured. They say the concept of intersectionality — the idea that people experience discrimination differently depending on their overlapping identities — isn’t the problem.
  • the idea is more or less indisputable.
  • What many conservatives object to is not the term but its application on college campuses and beyond.
  • “Where the fight begins,” French said, “is when intersectionality moves from descriptive to prescriptive.”
  • “There have always been people, from the very beginning of the civil rights movement, who had denounced the creation of equality rights on the grounds that it takes something away from them.”
  • To Crenshaw, the most common critiques of intersectionality — that the theory represents a “new caste system” — are actually affirmations of the theory’s fundamental truth: that individuals have individual identities that intersect in ways that impact how they are viewed, understood, and treated.
  • But Crenshaw said that contrary to her critics’ objections, intersectionality isn’t “an effort to create the world in an inverted image of what it is now.” Rather, she said, the point of intersectionality is to make room “for more advocacy and remedial practices” to create a more egalitarian system.
  • She wants to get rid of those existing power dynamics altogether — changing the very structures that undergird our politics, law, and culture in order to level the playing field.
  • efforts to eliminate gender disparities would require examining how women of color experience gender bias differently from white women (and how nonwhite men do too, compared to white men).
  • Once we acknowledge the role of race and racism, what do we do about it? And who should be responsible for addressing racism, anyway?
  • Dennis OConnor on 25 Sep 20
     
    "The current debate over intersectionality is really three debates: one based on what academics like Crenshaw actually mean by the term, one based on how activists seeking to eliminate disparities between groups have interpreted the term, and a third on how some conservatives are responding to its use by those activists."
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