PHE - Resources

Registration for this event will close on December 11, 2021 @ 4:00pm. There are 8 seats remaining. Event Details This is an in-person event at the San Diego Central Library. Masks are required for unvaccinated patrons and social distancing protocol will be followed. During World War II, heroic San Diego librarian Clara Breed exchanged hundreds of letters with young Japanese Americans in concentration camps, serving as a reminder of the possibility for decency and justice in a troubled world. Join 14 of San Diego's best poets including the City's inaugural Poet Laureate, Ron Salisbury, for an afternoon of restorative poetry. Poets will read and perform poems written specifically for this current historical moment of deep national reflection and a deadly pandemic which has locked down our lives and created isolation and fear.

RARE‐X is committed to transforming rare disease by ensuring that patient communities, clinicians, researchers, and drug developers have access to the right data at the right time. At the heart of RARE‐X's approach is a belief that patients should own their data. In July 2021, RARE‐X launched itsfirst set of rare disease pilot programs on its data collection platform supported by data governance and consent that will ensure participants who spend the time to enter their data are able to share it with those stakeholders they choose.

Recommended by Tyler Orion - "For data from wearable technology to apps to text messaging, ownership is determined by the terms and conditions you agree to. The Apple Watch and Google Fitbit, for example, are both designed to give you access to key indicators of your health but their terms and conditions don't give you ownership of your data - and users don't know how their data are being used. This landscape is further complicated by the status of data under property law, which isn't viewed as wholly "ownable." And since current laws don't view people as the owners of their personal data, health care and service providers treat data as under their ownership. And those data are lucrative."

Recommended by Tyler Orion- "As the future of our healthcare system moves towards electronic healthcare records, we need patient data ownership rights to protect patient care. 4 Principles 1. Patients co-own or fully own every health data point about themselves. 2. Health data generated about the patient by a provider is co-owned by both parties. 3. Health data generated by the patient is fully owned by the patient with a right to possess, share, sell, or destroy. 4. All uses of a patients' health data shall be consented in advance by the patient, other than uses required by law."

"Digital Twins and the Emerging Science of Self: Implications for Digital Health Experience Design and "Small" Data"

"Trick out your toolbox A growing library of software tools and services allows digital health companies to build their own unique experiences and iterate with ease."

"Ultrasound Technique Targeted at Neurons in Bid To Treat Chronic Pain"

See your brain activity visualized in Mendi's training game. You control the game using only your brain, making brain training tangible and visible. "Make the ball rise and earn points. These are both signs you're increasing your brain activity and strengthening your neural pathways. The goal? Better brain performance and mental wellbeing."

Dennis: "And one ring to rule them all?" Resistance is not futile.

Recommended by Gina Soloperto. Dr. BJ Fogg founded the Behavior Design Lab at Stanford University, where he directs research and innovation. In addition, he teaches industry innovators how to use his models and methods in Behavior Design. The purpose of his research and teaching is to help millions of people improve their lives.

Publications

"Holo is to cloud hosting what Airbnb was to hotels-anyone can become a host by turning their computer into a source of revenue, getting paid in HoloFuel for hosting peer-to-peer applications. By hosting P2P apps, you support a web that empowers your peers and communities. "

In 2017 Kabir introduced Holo and Holochain to Mike and Me. We all have Holoports. The Holochain should launch in BETA this year. The promise has always been data ownership, secured with blockchain level description. This technology could help us change the world. Help spread the word!

"The goal of this study was to evaluate the efficacy of a self-administered computerized plasticity-based cognitive training programmes in primarily military/veteran participants with a history of mTBI and cognitive impairment. "

"Learn How to Reduce Stress, Relieve Anxiety, and Enhance Your Focus" Taught by Jon Kabat-Zinn and two senior mindfulness professors, Dr. Saki Santorelli and Florence Meleo-Meyer Register for a free program and to see the course outline. Cost is $197

""Biogen should have had a plan in place from the very start about how it would handle expanded access requests that came in at all different points: before, during and after trial enrollment," Holly Fernandez-Lynch, an assistant professor of medical ethics at the Perelman School of Medicine at the University of Pennsylvania, explained."

Machine learning and microbiome-driven liquid biopsy technology draws recognition for improving early cancer diagnosis and chances of survival

Researchers are coming around to the idea that there isn't a one-size-fits-all diet. Some companies are going further to find out what fits you, specifically.

"How to be your own advocate If you don't fight for yourself, who will?" I think this page would be a good blog post for our website. It seems to me that patient advocacy fits our Brand. Agree? Disagree?