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After her two children were diagnosed with a rare genetic condition, Sharon Terry dedicated her life to creating systems-level solutions that will alleviate burdens for consumers and build opportunities for them to be empowered in their own health care. She is the CEO of Genetic Alliance, an international non-profit organization, now in its 25th year, that is the world's largest network of health related organizations working from a consumer perspective. Genetic Alliance builds capacity within the genetics and health community by forging novel partnerships, promoting informed decision-making, and sharing individual, family, and community perspectives.

 Do the principles of the Belmont Report address all the ethical issues that arise in evolving research scenarios? (November, 2013) Watch the full video - http://www.peopleandperspectives.org/... People & Perspectives (P&P) is a digital oral history library supported by Public Responsibility in Medicine & Research (PRIM&R). Visit http://www.peopleandperspectives.org to learn more. P&P features stories of those working in research ethics, many of whom were involved in the early years of the field. Those featured include IRB and IACUC professionals, research staff, committee members, institutional officials, researchers, subjects, advocates, regulators, industry representatives, ethicists, and others who consider themselves part of the human subjects and animal care and use enterprise.

In this interrupted case study students analyze the complexities surrounding identification and confirmation of cancer clusters. The case challenges students to consider the evidence from two different perspectives; a local family physician representing the community, and a cluster investigation officer who has worked on several cancer cluster investigations. This case was inspired by the discussion about a possible cancer cluster in Clyde, Ohio, where around 20 cases of childhood cancer since 2001 fueled public concern, leading to an investigation by the Ohio department of health in 2006. This case was designed for introductory courses in biology and environmental sciences, taken by both science majors and non-science majors. In addition to introductory college classes, this case could also be used in advanced high school biology classes.

Debate cards with fictional individuals and perspectives to base a debate upon.

How does the real process of science really work?  Gain a new perspective of the dynamic process of science and how it relates to you with this iTunes U course co-produced by the California Academy of Sciences and University of California Museum of Paleontology.  Content from this course was inspired by the Understanding Science website produced by UCMP. Designed for middle- and high- school science educators to broaden their own knowledge and understanding and to use with students, the course weaves together activities, videos, and classroom-ready materials into a primer on the process of science that includes exploration and discovery, testing ideas, community feedback and peer review, and benefits and outcomes. 

Understanding the variability in human hair isn't only interesting from a cosmetic perspective-it also informs the study of evolution. Hair can signal social status, health and fertility, and regulates body temperature.

Our bodies are home to approximately 100 trillion bacteria living inside us and on us-a vast community known as the microbiome. The Secret World Inside You explores the rapidly evolving science that is revealing the complexities of the human microbiome and reshaping our ideas about human health, offering new perspectives on common health problems including allergies, asthma, and obesity. 

In this case study, the complexity of the Malaysian palm oil industry is examined through the perspective of various stakeholders, namely, villagers, corporations, orangutans, smallholders, conservationists, and an average consumer. Students learn about the plight of the orangutan and the environmental impacts of the palm oil industry but also understand the influence of global markets and the effect of their own purchases. Students are challenged to make ethical decisions, propose policy recommendations, and examine their own contributions to the demand for palm oil. The aim of the case is to provide students with tools to personally champion change. The case is appropriate for undergraduate students in wildlife, ecology, biology, or related classes but can also be tailored for advanced high school science courses.

"This case study uses a PowerPoint presentation to guide students through two activities designed to teach them about the basics of coronavirus diagnosis and transmission. The first activity involves a set of five "clicker questions" that students answer using either a personal response system, online polling application, or show of hands as they consider symptoms and test results of a hypothetical patient. The second activity is an outbreak simulation in which students consider the spread of a pathogen in various geographical settings and from different perspectives. Students work together to draft a list of precautions that could be taken to limit the spread of the disease and minimize healthy individuals' risk of contracting it. The simulation is designed for a biology lesson pertaining to outbreaks. Although coronavirus is used as the model, the concepts of disease transmission and prevention covered in this case are relevant to many diseases."

This interrupted case study for the flipped classroom introduces the human microbiome from the perspective of one of its occupants, Heidi Helicobacter (Helicobacter pylori).  Heidi lives in the gut of Kristen, a college student, and discusses her fellow microbial inhabitants, functions of these various microbes, and alludes to factors that can disrupt the healthy human microbiome. Students prepare for class by viewing several brief videos and then discuss in class whether Kristen should undergo a fecal microbiota transplant to treat her Clostridium difficile infection.  A lab component has students model, using colored beads, how antibiotics can act as a selective agent for drug-resistant microbes such as C. difficile. The case concludes with Kristen about to give birth to a new baby several years later.  Students listen in as Kristen's microbes discuss the formation of the new baby's microbiome. The case has been used successfully in a general biology class and could easily be adapted for a microbiology, human physiology, ecology, or evolution course.

In this case study, students follow "Mr. Okoro" as he makes the long journey with his sick daughter "Ada" to seek medical attention at the nearest clinic in Enugu, Nigeria. It is the rainy season, and "Dr. Fabian" from the Division of Parasitic Diseases and Malaria has been called in to investigate a suspected outbreak of malaria. Students learn about the circumstances in Ada's background that may have led to her illness, and then adopt the perspective of Dr. Fabian as she investigates the outbreak. They consider the epidemiological triangle, the different stages of the Plasmodium parasite lifecycle and how it leads to malaria, and evaluate the broader societal factors and future implications of malaria in Sub-Saharan Africa. The case was designed for upper-level global health, public health, and human biology courses, but could also be adapted for general biology, health studies, infectious disease, and epidemiology courses.

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Meet five fellow Pompe patients as they recount their own experiences with the diagnostic journey. You are sure to find bits of your own story in theirs. The road to diagnosis can be riddled with uncertainty, an array of specialists all looking for an answer, and even misdiagnosis. That is undoubtedly why many people living with Pompe welcome the moment a physician delivers the correct diagnosis. Finally, an answer; a name for what has been happening all these years.