Pompe Disease | Patients & Families: Living with Pompe Disease >> Pompe Perspectives - 0 views
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Lottie Peppers on 28 Jan 15Meet five fellow Pompe patients as they recount their own experiences with the diagnostic journey. You are sure to find bits of your own story in theirs. The road to diagnosis can be riddled with uncertainty, an array of specialists all looking for an answer, and even misdiagnosis. That is undoubtedly why many people living with Pompe welcome the moment a physician delivers the correct diagnosis. Finally, an answer; a name for what has been happening all these years.