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The Australian parenting website - Helping your child with a disability development more skills

Pittsburgh Development Center of Magee-Womens Research Institute explores the molecular biology of cell function-- in gametes, embryos, stem cells, maternal/fetal efficacy of assisted reproduction technologies, the origins of developmental diseases, the causes and prevention of adverse pregnancy outcomes and the potential of stem cells for treating human disease

Completed study that evaluated the efficacy of surgical resection of an identifiable zone of cortical abnormality versus multiple drug therapy in children with infantile spasms refractory to standard therapy: II. Assess how infantile spasms interfere with development and whether this is partially reversible. III. Determine the predictors of good surgical outcome and whether surgery permanently controls seizures and improves development.

Study to develop a comprehensive spasticity management program which will then be developed for the individual. Clinical and outcome assessments at baseline and at follow-up will include measures of range of motion, global spasticity according to a modified Ashworth scale, and the time and number of staff required for the task. In addition, video will be obtained of caregivers performing each participant's care area tasks at baseline and follow-up to allow an independent external reviewer to judge task difficulty

Observational cohort study designed to identify the mechanisms of disease in patients with preterm labor/contractions and preterm premature rupture of membranes and to describe the relationship between clinical, biochemical, histological, biophysical parameters and the development of infant neurological disorders.

HDI is part of a nationwide network of University Centers for Excellence. Provides a strong foundation for more than 40 research, training and service projects, addressing a wide range of topics and issues in areas such as early childhood, education and alternate assessment, transition across the lifespan, employment, community living, and personnel preparation. Funded through the Developmental Disabilities Assistance and Bill of Rights Act of 2000, and is administered through the U.S. Administration on Developmental Disabilities, U.S. Department of Health and Human Services.

PEDIATRICS Journal Abstract of study to determine whether serial head circumference measurements and decreased rate of head growth in asphyxiated full-term newborns during the first few months of life may predict the development of eventual microcephaly.

PubMed - Effects of ethanol on the development of circadian time keeping system - Abstract: Ethanol exposure during gestation can have devastating consequences on the developing organism. Children who have a history of prenatally exposure to ethanol may show morphological and functional alterations, referred to as fetal alcohol spectrum disorders (FASD). Fetal alcohol syndrome (FAS), which is characterized by pre- and postnatal growth deficiency, specific cranial/facial features, and dysfunction of central nervous system, is the most severe end of FASD

MIUSA works in four main areas to provide programs and services including:National Clearinghouse on Disability & Exchange (NCDE) International Development & Disability MIUSA International Exchange Programs Women, Disability and DevelopmentSince 1995. Serves as the National Clearinghouse on Disability and Exchange (NCDE), a project sponsored by the Bureau of Educational and Cultural Affairs of the United States Department of State and managed by MIUSA to: educate people with disabilities and related organizations about international exchange opportunities; increase the participation of people with disabilities in the full range of international volunteer, study, work and research programs; advise international exchange organizations about the Americans with Disabilities Act

NACD provides neurodevelopmental evaluations and individualized programs for children and adults, updated on a quarterly basis. As a family-centered organization. Stresses parent training and parent implementation of the program. Eclectic organization, gathering and utilizing the newest strategies that yield success and incorporating them into programs custom-designed for each client. Support provided to families through video reviews, e-mail and telephone sessions. Chapters can be found across the United States.

NCTI National Center for Technology Innovation - Advancing Technology Innovations for all students - Assists researchers, developers and entrepreneurs in creating innovating learning tools for all students, with special focus on students with disabilities

Conducts and supports research on topics related to the health of children, adults, families, and populations. Some of these topics include:Reducing infant deaths; Improving the health of women, men, and families; Understanding reproductive health and fertility, infertility; Learning about growth and development; Examining, preventing and treating problems of birth defects and intellectual and developmental disabilities; and Enhancing well-being of persons through the lifespan with optimal rehabilitation research.

Completed study. Objective of this project was to develop and evaluate two different alternative or complementary medical modalities that have been used in children with cerebral palsy by practitioners in an attempt to decelerate the complications from the neurologic insult and resultant muscle imbalance.

Completed Clinical Trial to assess Effect of Power Wheelchairs on the Development and Function of Young Children with Severe Physical Disabilities

As many more premature infants survive, the numbers of these infants with health problems increases. The rate of cerebral palsy (CP) in extremely premature infants is approximately 20%. Magnesium sulfate, the most commonly used drug in the US to stop premature labor, may prevent CP. This trial tests whether magnesium sulfate given to a woman in labor with a premature fetus (24 to 31 weeks out of 40) will reduce the rate of death or moderate to severe CP in the children at 2 years. The children receive ultrasounds of their brains as infants and attend three follow-up visits over two years to assess their health and development.

Pancreatitis is caused by an acute injury on the pancreas. We have recently reported a high rate of acute pancreatitis developing in children who undergo posterior spinal fusion for scoliosis (to correct spinal curve). We showed that the amount of blood loss during the surgery is related to the incidence of pancreatitis

Preventing Seizure Progression - Carnegie Mellow University researchers have identified a new anticonvulsant compount that has the potential to stop the development of epilepsy. Findings are published in the journal Epilepsia.

The International Center for the Advancing Neonatal Health (ICANH) was established to foster the development of innovative approaches to neonatal health that are integrated with programs and health systems in developing countries. The Center is housed in the Department of International Health at the Johns Hopkins Bloomberg School of Public Health.

Hand-Arm Bimanual Intensive Therapy (HABIT) in Children with Hemiplegia is a new intervention developed at Columbia University. HABIT aims to improve the use and coordination of both arms in daily function. It involves intensive bimanual training. Like CI therapy, it requires 90 hours of intensive therapy and it is performed in group settings with an emphasis of having fun. But unlike CI therapy HABIT focuses on improving the ability to perform bimanual activities. The efficacy of this new bimanual treatment for improving coordination with two hands is being tested.

PubMed.gov - U.S. National Library of Medicine - National Institues of Health. PubMed comprises approximately 20 million citations for biomedical literature from MEDLINE, life science journals, and online books. PubMed citations and abstracts include the fields of medicine, nursing, dentistry, veterinary medicine, the health care system, and preclinical sciences. PubMed also provides access to additional relevant Web sites and links to the other NCBI molecular biology resources.PubMed is a free resource that is developed and maintained by the National Center for Biotechnology Information (NCBI), at the U.S. National Library of Medicine (NLM), located at the National Institutes of Health (NIH).