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Centers for Disease Control and Prevention CDC Families with Special Needs: Caregiving Tips - General caregiving tips and links to information on specific health topics to help you and those you care for stay safe and healthy.

Family-to-Family Health Information Centers (F2F HICs) are non-profit organizations that help families of children and youth with special health care needs (CYSHCN) and the professionals who serve them

"Family Voices aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities. Through our national network, we provide families tools to make informed decisions, advocate for improved public and private policies, build partnerships among professionals and families, and serve as a trusted resource on health care.

National Survey of children with Special Halth Care Needs CSHCN - Data Resource Center - The purpose of The Data Resource Center for Child and Adolescent Health (DRC) is to advance the effective use of public data on the health and health-related services for children, youth and families in the United States. The DRC does this by providing hands-on access to national, state, and regional data findings as well as technical assistance in the collection and use of this data by policymakers, program leaders, advocates and researchers in order to inform and advance key child and youth health goals. Currently, the DRC website includes national and state-based data on over 100 indicators from the National Survey of Children's Health (NSCH) and the National Survey of Children with Special Health Care Needs (NS-CSHCN). The DRC's easy-to-use interactive search feature allows users to select, view, compare, and download national survey data results for every state and HRSA region.

Special Needs Definition at the Sloan Work and Family Research Network - Boston College

The Federation is a center for parents and parent organizations to work together on behalf of children with special needs and their families. A coalition of parent groups representing children with a variety of disabilities, the Federation operates a Parent Center in Massachusetts which offers a variety of services to parents, parent groups, and others who are concerned with children with special needs.

The HRSA Maternal and Child Health Bureau improves the health of mothers, children and their families. Authorized under Title V of the Social Security Act, HRSA maternal and child health programs - Assure access to quality care, especially for those with low-incomes or limited availability of care. Reduce infant mortality. Provide and ensure access to comprehensive prenatal and postnatal care, especially for low-income and at-risk women. Increase the number of children receiving health assessments and follow-up diagnostic and treatment services. Provide and ensure access to preventive and child care services, as well as rehabilitative services for certain children. Implement family-centered, community-based systems of coordinated care for children with special healthcare needs. Provide assistance in applying for services to pregnant women with infants and children who are eligible for Medicaid.

Most children have a preconceived notion that every day of summer should be exciting and adventurous. Children with special needs are no exception. As parents, we feel an obligation to provide our children with memorable summer breaks, without breaking the bank! Determining how to manage that day-to-day challenge can be exhausting for parents of a special needs child, especially when you factor in possible accessibility issues that may arise for children in wheelchairs or with mobility challenges.

Online Magazine offering information and articles on parenting a child with special needs

Parenting tips for Special Needs at Early Intervention Support.com - This website is a place for families who are facing challenges pertaining to their child's development and growth. It is a place to find answers and practical suggestions.

Developer and manufacturer of sensory integration dysfunction (DSI) and neurodevelopmental products that help therapeutic professionals, people with special needs, their families, and other professionals, solve problems or meet new challenges.

Many families raising a non-ambulatory child face the challenge of finding appropriate transportation when their child becomes wheelchair-dependent and can no longer be transported in a car seat. Parents struggle with questions of where to find financing, what vehicle to choose and what modifications are needed. The process can be overwhelming, but we have some suggested questions to ask and what to look for as you begin your search.

Provides special needs children, adults, and their families the highest quality compact-folding lightweight wheelchairs. Complete range of mobility products.

U.S. Department of Education - My Child's Special Needs - A Guide to the Individualized Education Program (IEP) - Archived Information providing guidance to assist educators, parents, and state and local educational agencies in implementing the requirements of Part B of the Individuals with Disabilities Education Act (IDEA) regarding Individualized Education Programs (IEPs) for children with disabilities, including preschool-aged children. (This guide does not address the development of Individualized Family Service Plans (IFSP) for infants and toddlers.)

Works collaboratively with families, schools and communities in order to improve opportunities for excellence in education and success in school and community life. Our special focus is children with disabilities.

Sixteen-year-old Matthew Walzer's heartfelt letter to Nike's CEO, Mark Parker, is quickly spreading across Twitter through the hashtag campaign #NikeLetter. Walzer posted the letter on his blog Tuesday afternoon, hoping to make Parker aware of a "great need" for supportive, easily-fastened shoes for people with cerebral palsy.

The Association of Maternal and Child Health Programs is a national resource, partner and advocate for state public health leaders and others working to improve the health of women, children, youth and families, including those with special health care needs.

Promotes polices and advances evidence-based practices that support families and enhance the optimal development of young children who have or are at risk for developmental delays and disabilities. One of seventeen divisions of the Council for Exceptional Children (CEC) - the largest international professional organization dedicated to improving educational outcomes for individuals with exceptionalities, students with disabilities, and/or the gifted. DEC is especially for individuals who work with or on behalf of children with special needs, birth through age eight, and their families.

LD Online - Parenting & Family - Top articles - Response to Invervention - Communicating with your child's School through letter writing - Life Success for Students with Learning Disabilities: A Parent's Guide - Questions & Answers - and more

A Center for families of children with disabilities and special healthcare needs.