Group items tagged

"Family Voices aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities. Through our national network, we provide families tools to make informed decisions, advocate for improved public and private policies, build partnerships among professionals and families, and serve as a trusted resource on health care.

The American Academy of Family Physicians is the national association of family doctors. It is one of the largest national medical organizations, with more than 94,600 members in 50 states. Tt was known as the American Academy of General Practice. The name was changed in order to reflect more accurately the changing nature of primary health care. The Academy was founded in 1947 to promote and maintain high quality standards for family doctors who are providing continuing comprehensive health care to the public.

Family-to-Family Health Information Centers (F2F HICs) are non-profit organizations that help families of children and youth with special health care needs (CYSHCN) and the professionals who serve them

Centers for Disease Control and Prevention CDC Families with Special Needs: Caregiving Tips - General caregiving tips and links to information on specific health topics to help you and those you care for stay safe and healthy.

The National Family Caregivers Association educates, supports, empowers and speaks up for the more than 65 million Americans who care for loved ones with a chronic illness or disability or the frailties of old age. NFCA reaches across the boundaries of diagnoses, relationships and life stages to help transform family caregivers' lives by removing barriers to health and well being.

Family Guide - Keeping YOuth Mentally Healthy & Drug Free - Combating Parental Stress

The Administration for Children and Families (ACF), within the Department of Health and Human Services (HHS) is responsible for federal programs that promote the economic and social well-being of families, children, individuals, and communities. ACF programs aim to achieve the following: *families and individuals empowered to increase their own economic independence and productivity; *strong, healthy, supportive communities that have a positive impact on the quality of life and the development of children; *partnerships with individuals, front-line service providers, communities, American Indian tribes, Native communities, states, and Congress that enable solutions which transcend traditional agency boundaries; *services planned, reformed, and integrated to improve needed access;*and a strong commitment to working with people with developmental disabilities, refugees, and migrants to address their needs, strengths, and abilities.

Helps seriously ill children and their families cope with their pain, fear and isolation through entertainment, education and family activities. Dedicated to improving the quality of life for children with chronic and life-threatening illnesses and life-altering injuries by providing entertainment, education and family activities that help them cope with the pain, fear and isolation of prolonged illness.

The Administration for Children and Families (ACF), within the Department of Health and Human Services (HHS) is responsible for federal programs that promote the economic and social well-being of families, children, individuals, and communities.

NACD provides neurodevelopmental evaluations and individualized programs for children and adults, updated on a quarterly basis. As a family-centered organization. Stresses parent training and parent implementation of the program. Eclectic organization, gathering and utilizing the newest strategies that yield success and incorporating them into programs custom-designed for each client. Support provided to families through video reviews, e-mail and telephone sessions. Chapters can be found across the United States.

Many families raising a non-ambulatory child face the challenge of finding appropriate transportation when their child becomes wheelchair-dependent and can no longer be transported in a car seat. Parents struggle with questions of where to find financing, what vehicle to choose and what modifications are needed. The process can be overwhelming, but we have some suggested questions to ask and what to look for as you begin your search.

The HRSA Maternal and Child Health Bureau improves the health of mothers, children and their families. Authorized under Title V of the Social Security Act, HRSA maternal and child health programs - Assure access to quality care, especially for those with low-incomes or limited availability of care. Reduce infant mortality. Provide and ensure access to comprehensive prenatal and postnatal care, especially for low-income and at-risk women. Increase the number of children receiving health assessments and follow-up diagnostic and treatment services. Provide and ensure access to preventive and child care services, as well as rehabilitative services for certain children. Implement family-centered, community-based systems of coordinated care for children with special healthcare needs. Provide assistance in applying for services to pregnant women with infants and children who are eligible for Medicaid.

American Family Physician - Cerebral Palsy: An Overview

LD Online - Parenting & Family - Top articles - Response to Invervention - Communicating with your child's School through letter writing - Life Success for Students with Learning Disabilities: A Parent's Guide - Questions & Answers - and more

Family Caregiver Alliance was the first community-based nonprofit organization in the country to address the needs of families and friends providing long-term care at home. Long recognized as a pioneer in health services, FCA now offers programs at national, state and local levels to support and sustain caregivers.\n

PubMed Abstract of study by Pediatric Clinic, Mersin University School of Medicine Research and Administration Hospital, Turkey - Difficulties experienced by families with disabled children

Global community that integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities, for their families, and for those that provide them services and support.

Disease organization representing children and families who are affected by a pediatric neurotransmitter disease. Helps children and families who are affected by PND's, support the identification of new PND's, find better treatments and ultimately a cure for those diseases that are already known. The PND Association is a non-profit, voluntary organization

FSC strengthens schools and school systems so that they foster learning and development for all students. Provides technical assistance, designs intensive professional development programs that improve teaching and assessment, enhances the leadership capacity of district and school administrators, engages families in their children's education, and assists with community-building efforts.Our areas of expertise include comprehensive school reform, middle-level education, literacy development, and tools and strategies to promote success for students with disabilities.

Provides research on caregivers to health care manufacturers, caregiver support organizations, financial services providers, and other organizations interested in learning from caregivers. Database of 25,000 family caregivers and a research panel of thousands of family caregivers nationwide, with whom it conducts strategically focused, results-driven market research.