PHE - Resources

"Neuroscience Behind PATH program:"

Website for our center

Impressive line up of patient stories. Are you interested in sharing your story? We'd like to hear from you."

"Bay Area Lyme Foundation 884 Portola Road, Suite A7 Portola Valley, CA 94028"

Janice O'Connor will be testing this device at VIP Nuero-Rehab on 10/10/19 "It's not just walking - it's More Than Walking: ReWalk is a wearable robotic exoskeleton that provides powered hip and knee motion to enable individuals with spinal cord injury (SCI) to stand upright, walk, turn, and climb and descend stairs*. ReWalk is the first exoskeleton to receive FDA clearance for personal and rehabilitation use in the United States."

"Elspeth Murray recites the poem that was included at the International Initiative in Mental Health Leadership Conference in Edinburgh in 2006, where she conducted poetry workshops."

""Patients shouldn't be bystanders in drug development." - Onno Faber (Founder of RDMD) Four years ago, I started experiencing hearing loss in my left ear. Doctors prescribed me steroids, thinking it was an infection, but the deterioration did not slow down. After numerous failed treatments, a specialist finally ordered an MRI, whereupon he discovered a large tumor on my left hearing nerve. Months later, another tumor was discovered in my right hearing nerve, and another on my spine. I was diagnosed with a rare genetic disease called NF2 (Neurofibromatosis Type 2), a disease that affects only 1 in 30,000 people. It completely changed my perspective. All my life, I've been a technology entrepreneur, beginning with a tech company I started in high school. I'm now applying everything I've learned throughout my career to build RDMD, where we're helping to accelerate treatments for patients with rare disease. Our mission is ambitious, but I can't imagine working on anything more important than this. - Onno"