PHE - Resources

Camille Nebeker: I'm writing a paper on mHealth and research ethics across regulated and unregulated sectors. Came across an article that you may appreciate - it's basically saying that people need to be trained when conducting scientific research. It was aimed at clinicians - not citizen scientists:

Spend Money on AI or Just Give Doctors More Time? Eric J. Topol, MD; Abraham Verghese, MD; Danielle Ofri, MD, PhD DISCLOSURES September 04, 2019

Let's remember to feel happy!

Recommended by Kabir

"Tick-borne diseases, and Lyme disease in particular, cause complex, multi-system health issues with devastating consequences. This event focuses on the importance of using a broad and comprehensive diagnostic and treatment approach. We will explore important avenues for testing and treatment including a discussion on the role that antibiotics play in supporting the immune system: " Sharon Wampler - Keynoting

"Can Lifestyle Changes Reverse Alzheimer's Disease? Dr. Dean Ornish, Dr. Bruce Miller, and Dr. Joel Kramer are directing the first randomized controlled trial to determine if the progression of early stage Alzheimer's disease may be reversed by a comprehensive lifestyle medicine program, without drugs, devices, or surgery. This lifestyle medicine program includes a whole foods low-fat, low-sugar plant-based diet;moderate exercise; stress management techniques including meditation; and psychosocial support." Tied into Rob Knight's lab

"Building on the successes of our events in Philadelphia and Jersey City, we are excited to be back where it all began - San Diego.  Please join us for the most thought-provoking Precision Medicine event in the marketplace. Our speakers cover the panoply of leaders in the healthcare continuum, these include clinicians, industry experts, academics, regulators, payers, genetic counselors, bioinformaticians, and many more who are shaping the way Precision Medicine is implemented into healthcare systems on a global scale. Join us for panel discussions, keynotes, "Meet the Expert", roundtables, networking, exhibits, and opening reception to hear from thought leaders who are making the promise of Precision Medicine a reality. "

"The Extreme Science and Engineering Discovery Environment (XSEDE) is a single virtual system that scientists can use to interactively share computing resources, data and expertise. People around the world use these resources and services - things like supercomputers, collections of data and new tools - to improve our planet."

"Late last week, Carnegie Mellon University (CMU) and Lumen Learning jointly issued a press release announcing their collaboration on an effort to integrate the Lumen-developed RISE analytical framework for curricular materials improvement analysis into the toolkit that Carnegie Mellon announced it will be contributing via open licenses (and unveiling at the Empirical Educator Project (EEP) summit that they are hosting in May)."

It's Not About Feeling Better. It's About Accepting My Body As It Is. "If my journey with invisible illness has taught me anything, it's that I have to be my own best advocate."

"Abstract The digital revolution is disrupting the ways in which health research is conducted, and subsequently, changing healthcare. Direct-to-consumer wellness products and mobile apps, pervasive sensor technologies and access to social network data offer exciting opportunities for researchers to passively observe and/or track patients 'in the wild' and 24/7. The volume of granular personal health data gathered using these technologies is unprecedented, and is increasingly leveraged to inform personalized health promotion and disease treatment interventions. The use of artificial intelligence in the health sector is also increasing. Although rich with potential, the digital health ecosystem presents new ethical challenges for those making decisions about the selection, testing, implementation and evaluation of technologies for use in healthcare. As the 'Wild West' of digital health research unfolds, it is important to recognize who is involved, and identify how each party can and should take responsibility to advance the ethical practices of this work. While not a comprehensive review, we describe the landscape, identify gaps to be addressed, and offer recommendations as to how stakeholders can and should take responsibility to advance socially responsible digital health research."

Importance The incidence of chronic disease is increasing along with health care-related costs. The functional medicine model of care provides a unique operating system to reverse illness, promote health, and optimize function. The association between this model of care and patient's health-related quality of life (HRQoL) is unknown.

"ABSTRACT Background: Heart rate variability (HRV), or variation in beat-to-beat intervals of the heart, is a quantitative measure of autonomic regulation of the cardiovascular system. Low HRV derived from electrocardiogram (ECG) recordings is reported to be related to physical frailty in older adults. Recent advances in wearable technology offer opportunities to more easily integrate monitoring of HRV into regular clinical geriatric health assessments. However, signals obtained from ECG versus wearable photoplethysmography (PPG) devices are different, and a critical first step preceding their widespread use is to determine whether HRV metrics derived from PPG devices also relate to older adults' physical function."

"A Workshop for the Global Roadmap for Healthy Longevity Initiative When: November 6, 2019 (1:00 PM ET) - November 8, 2019 (12:30 PM ET)" Join us via webcast for a 2-day public workshop that will examine the social, behavioral, and environmental enablers for healthy longevity. Workshop participants will discuss the challenges and opportunities, as well as potential solutions and disruptive approaches to enhance social structures that would enable healthier and socially fulfilled lives and ultimately create thriving societies around the world.

Recommended by Kabir. Free registration for the teleconference. The agenda speaks to the core values of Project Apollo.

"Computer scientist Larry Smarr and osteopathic physician Michael Kurisu present a vision for healthcare that combines the best of allopathic and osteopathic medicine by using a more personalized, hands-on, systems-based approach to treating patients. They demonstrate this proof of concept with details on how Smarr diagnosed his own Crohn's disease by using blood and stool tests to track changes in his body. And when the symptoms became too severe, Smarr collaborated with his surgeon, Sonia Ramamoorthy, MD, to plan the operation based on 3D images of his organs created at his research institute, Calit2 at UC San Diego. Kurisu then introduces Project Apollo, a group of patients inspired by Smarr who are collecting their own data to develop personalized treatments for their particular conditions. Series: "The UC Wellbeing Channel " [7/2018]"

Interview with Dr. Norman Doige, part of a series of interviews on Brain Plasticity, Healing and "The Brain That Changes Itself".

Dr. Michael Kurisu D.O. recommended Doidge's book, "The Brain That Changes Itself" to me several years ago. Reading the rich and detailed case studies in his book opened me to so many intriguing ideas. In particular, his explanations of how the placebo effect relates to neuroplasticity.

"If there's one thing you do want to catch from a trip to your doctor, it's her optimism. A new study, published Monday in the journal Nature Human Behavior, finds that patients can pick up on subtle facial cues from doctors that reveal the doctor's belief in how effective a treatment will be. And that can have a real impact on the patient's treatment outcome."