PHE - Resources

Impressive line up of patient stories. Are you interested in sharing your story? We'd like to hear from you."

"Bay Area Lyme Foundation 884 Portola Road, Suite A7 Portola Valley, CA 94028"

"Elspeth Murray recites the poem that was included at the International Initiative in Mental Health Leadership Conference in Edinburgh in 2006, where she conducted poetry workshops."

"Optimizing Value: Awarded Grants List of grants awarded in 2015 as part of the Robert Wood Johnson  Foundation's solicitation "Optimizing Value in Health Care: Consumer-focused Trends from the Field," which supports studies that address consumer perceptions of value in the new and emerging health care landscape."

"n the nearly 20 years since the publication of this report, numerous stakeholders have sought to reinvent and redesign the US health care system to make it, as the report called for, safe, effective, patient-centered, timely, efficient, and equitable. Researchers have engaged in rigorous and innovative assessments to identify promising approaches. Policy makers, practitioners, and payers have made changes to health policy and clinical practice and instituted various payment reforms and demonstration programs. Yet, despite the tremendous work of the past 20 years, we have not achieved a health care system that is truly patient centered and equitable."

"Otsuka Pharmaceutical collaborates actively with leading-edge academia and venture companies, in addition to using conventional drug discovery methods. This open sharing of ideas enables us to develop unique compounds."

"VIP NeuroRehabilitation Center is a non-profit 501(c)(3) organization, run by and for the patients! We bring top quality outpatient NeuroRehabilitation care to disabled military, veterans, children, and to ALL who are in need.  Located in San Diego, California, we treat adult and pediatric patients, from ages 4 years old and up. Our focus is on those who have difficulty moving secondary to Stroke, Multiple Sclerosis (MS), Brain Injury, ALS, Cerebral Palsy, Spinal Cord Injury, and multiple traumas."

"The Annals of Internal Medicine just published a series of articles claiming: "New guidelines: No need to reduce red or processed meat consumption for good health. A rigorous series of reviews of the evidence found little to no health benefits for reducing red or processed meat consumption."   Yet a careful reading of these articles reveals the exact opposite! They found that dietary patterns with a moderate reduction in red and processed meat consumption had a 13% lower rate of premature death from all causes, a 14% reduction in cardiovascular disease mortality, an 11% decrease in cancer mortality, and a 24% decrease in the risk of type 2 diabetes.  "

"With approximately 133M Americans (more than 40% of the US population) suffering from one or more chronic diseases, the healthcare community is looking for more effective and efficient ways to manage chronic diseases. Part of that pursuit is in finding sustainable ways to help patients better understand their conditions and manage their health by empowering patients, connecting them to information, care, and therapies in ways they want. Join fellow innovators to work on a challenging, multi-faceted, meaningful opportunity to advance clinical care, quality of life, and outcomes for nearly half the US. How can we improve patient literacy and clinical understanding? How do we help patients feel more in-control of their medical care? What can be done to help patients understand when and where they should seek care? These are just some of the pain points begging for thoughtful, tech-enabled solutions."

"In my opinion, the fact that expectation does not match reality is the ultimate reason why many data scientists leave. There are many reasons for this and I can't possibly come up with an exhaustive list but this post is essentially a list of some of the reasons that I encountered."

Shared by Kabir.

"ABOUT REYNA I believe in Present Moment Living. Each moment is a true gift, and the more we become aware of this we will reap the benefits, as well as those around us. I believe developing a personal practice is a powerful tool to enhance our innate ability to be well holsitically - mind, body and soul. I invite you to join me in a playful exploration of the potential that you ARE."

"Why leave all the details behind when you leave the doctor's office, or settle for a printed visit summary that only tells half the story? Abridge records your health care as it happened. You record your health story: - Conversations with doctors and nurses - Discussions about treatment options with family or friends who've been through it before - Personal observations about your symptoms and health "

""Patients shouldn't be bystanders in drug development." - Onno Faber (Founder of RDMD) Four years ago, I started experiencing hearing loss in my left ear. Doctors prescribed me steroids, thinking it was an infection, but the deterioration did not slow down. After numerous failed treatments, a specialist finally ordered an MRI, whereupon he discovered a large tumor on my left hearing nerve. Months later, another tumor was discovered in my right hearing nerve, and another on my spine. I was diagnosed with a rare genetic disease called NF2 (Neurofibromatosis Type 2), a disease that affects only 1 in 30,000 people. It completely changed my perspective. All my life, I've been a technology entrepreneur, beginning with a tech company I started in high school. I'm now applying everything I've learned throughout my career to build RDMD, where we're helping to accelerate treatments for patients with rare disease. Our mission is ambitious, but I can't imagine working on anything more important than this. - Onno"

"Kabir Recommends: The Positivity Self Test is a brief, 20-item survey that asks you to report on your experiences of several emotions over the past 24 hours. Each item on the test includes a trio of words that are related, but not quite the same, for example, "hopeful, optimistic, or encouraged" and "sad, downhearted, or unhappy." With this strategy, each item captures a set of emotions that share a key resemblance and this short test becomes that much more accurate. Keep in mind that the Positivity Self Test merely provides a snapshot of your emotions. Everybody's emotions change by the day, hour, and minute. Some scientists would say that they change by the millisecond. Given your ever-shifting emotional landscape, any single measure of your positivity ratio can only capture so much. One way to overcome such measurement hurdles is to measure repeatedly. Even if you complete the Positivity Self Test as honestly as possible, you should view your score for any given day with some skepticism. Was this particular day representative? Probably not. Days vary. So the more days you can average together to create your estimate, the more trustworthy that estimate becomes. You can get a clear picture of your typical positivity ratio by completing the Positivity Self Test every evening for two weeks. Take the Positivity Self Test In the scientific literature, the Positivity Self Test is also know as the modified Differential Emotions Scale, or mDES, created by Dr. Fredrickson based on an earlier scale developed by pioneering emotion scientist, Carroll Izard. The scholarly references are: Fredrickson, B. L. (in press). Positive emotions broaden and build. In E. Ashby Plant & P. G. Devine (Eds.) Advances in Experimental Social Psychology. Elsevier. Fredrickson, B. L., Tugade, M. M., Waugh, C. E., & Larkin, G. (2003). What good are positive emotions in crises? A prospective study of resilience and emotions following the terrorist attacks on the United States on September 11

Recommended by Kabir: "In both Love 2.0 and her earlier book, Positivity, Dr. Barbara Fredrickson describes ground breaking research on our supreme emotion, love, as well as the hidden value of all positive emotions. She encourages readers to experiment with their own lives, finding ways to create more micro-moments of love and positivity that work for them. One way to begin is to keep track of your emotions on a regular basis. Dr. Fredrickson developed the Positivity Self Test featured in her research, her books, and on this website to help you assess your current positivity ratio and track changes in your ratio over time. Just like tracking calories or cash flows can heighten your awareness and in time help you meet your fitness or financial goals, tracking your positivity ratio can help you raise your ratio and build your best future. Results may vary. Best outcomes emerge from sincere and heartfelt efforts to raise your ratio coupled with honest reports of your emotion experiences. Read more about the Positivity Self Test or take the survey here."