PHE - Resources

"There is great interest in and excitement about the concept of personalized or precision medicine and, in particular, advancing this vision via various 'big data' efforts. While these methods are necessary, they are insufficient to achieve the full personalized medicine promise. A rigorous, complementary 'small data' paradigm that can function both autonomously from and in collaboration with big data is also needed. By 'small data' we build on Estrin's formulation and refer to the rigorous use of data by and for a specific N-of-1 unit (i.e., a single person, clinic, hospital, healthcare system, community, city, etc.) to facilitate improved individual-level description, prediction and, ultimately, control for that specific unit."

THE QUANTIFIED SELF is about making personally relevant discoveries using our own self-collected data. We call this practice everyday science, a name that emphasizes its nonprofessional character. Lately we've begun organizing small group projects that show how collaboration can make individual projects easier. Sometimes, joining forces with others who share our question can make it possible to create both personal and generalizable health knowledge. Following the scholar Effy Vayena, we use the term "participant-led research" (PLR) to describe this approach.

""The best technology conference in the world." - The Economist REGISTER NOWThe 18th annual Future in Review Conference Oct. 6-9, 2020 - The Lodge at Torrey Pines, La Jolla, CA  A Strategic News Service Presentation"

"Heidi Rataj is an award-winning documentary producer and director and a caregiver for her mom.  Heidi talks about her own fear of aging and the search for a new narrative for seniors as they age.  While we need to be respectful of all journeys, activating seniors to allow them to accomplish goals is key to a healthier individual and society.  She also points out how digital technology plays a role in coordinating care and enabling people to age in place. @UCSDHealthyAging"

"I am a Registered Dietitian Nutritionist (RDN) specializing in an integrated and personalized approach to nutrition, health, and healing. I believe that food not only nourishes the body, but also nurtures the spirit, and is essential for optimal functioning - to be able to live life with exuberance no matter what our age."

"Want to see your sleep data at the Helsinki Design Museum? ŌURA is proud to be participating in "Enter and Encounter", a joint exhibition by Helsinki Design Museum and the Finnish Association of Designers Ornamo. This unique exhibition celebrates contemporary Finnish design and Finland's centenary anniversary. As part of the exhibition, we are happy to invite 100 active ŌURA users to share their sleep data and participate in the media installation "How did you sleep last night?"."

"In this Sketchy EBM video, we explore the definition of Evidence-Based Medicine and a few of the risks."

"Neuroscientist Michael Merzenich looks at one of the secrets of the brain's incredible power: its ability to actively re-wire itself. He's researching ways to harness the brain's plasticity to enhance our skills and recover lost function. This talk was presented at an official TED conference, and was featured by our editors on the home page."

"The Brain That Changes Itself - Full documentary" Norman Doidge, FRCPC, is a psychiatrist, psychoanalyst, and author of The Brain that Changes Itself and The Brain's Way of Healing.

"Sitting in freezer at Boston Children's Hospital is a drug you won't find anywhere else. It's called milasen, and the 18 g that the hospital custom-ordered nearly 2 years ago should last for decades. That's because milasen was designed to treat a single patient-a now 8-year-old girl named Mila Makovec. Milasen was built on decades of work on a class of drugs called antisense oligonucleotides. But after Boston Children's Hospital scientist Timothy Yu diagnosed Mila with a never-before-seen genetic mutation, he took only 10 months to go from idea to injection. It's a record-shattering sprint in the typical drug-development marathon, and an unprecedented degree of personalization for a chemical drug."

"Gray Matters, the new podcast series, will continue our mission to discuss how we can all age successfully.   re'flect, the documentary series has aired nationally on over 50 PBS stations in over 40 cities and is spreading the positive aging conversation around the US. "

"Gray Matters, the new podcast series, will continue our mission to discuss how we can all age successfully. Heidi Rataj, MA Producer, Gerontologist & Entrepreneur re'flect, the documentary series has aired nationally on over 50 PBS stations in over 40 cities and is spreading the positive aging conversation around the US. "

Recommended by Kabir: "Abstract Importance  Optimism and pessimism can be easily measured and are potentially modifiable mindsets that may be associated with cardiovascular risk and all-cause mortality. Objective  To conduct a meta-analysis and systematic review of the association between optimism and risk for future cardiovascular events and all-cause mortality. Data Sources and Study Selection  PubMed, Scopus, and PsycINFO electronic databases were systematically searched from inception through July 2, 2019, to identify all cohort studies investigating the association between optimism and pessimism and cardiovascular events and/or all-cause mortality by using the following Medical Subject Heading terms: optimism, optimistic explanatory style, pessimism, outcomes, endpoint, mortality, death, cardiovascular events, stroke, coronary artery disease, coronary heart disease, ischemic heart disease, and cardiovascular disease."

A Workshop for the Global Roadmap for Healthy Longevity Initiative Nov. 6 (1 PM ET) - Nov. 8 (12:30 PM ET) Live Webcast Join us via live webcast for a 2-day public workshop that will examine the social, behavioral, and environmental enablers for healthy longevity. Workshop participants will discuss the challenges and opportunities, as well as potential solutions and disruptive approaches to enhance social structures that would enable healthier and socially fulfilled lives and ultimately create thriving societies around the world. Sir Michael Marmot, Director of the Institute of Health Equity at University College London, will deliver the keynote address. 

"So: How do you get started with a self-tracking project? You can picture your project as involving four distinct activities. Although these activities blend into each other, they do each have their own particular flavor, and by outlining them separately we think we can give you a coherent and functional recipe. The activities are: Questioning, Observing, Reasoning, and Consolidating Insight."

"The Future of Health Depends on Your Data The first people-powered platform where you share health data, advance science and take part in the value created."

"Just Putting Patients At The Center Of Health Care Is Not Enough To Improve Care"

In 2008 Jeff Kaditz was rushed to the hospital after being hit by a car. He spent months in a hospital bed and had to learn to walk again. He was misdiagnosed twice before finding out he needed major surgery. Throughout the process he was frustrated by the lack of quantitative information that was available about his body, which led to a wide range of inconsistent diagnoses. Jeff imagined a day when everything about a person's body could be quickly measured, shared and analyzed. He started researching a solution and in 2015 he met Dr. Michael Snyder and Dr. Garry Choy. They immediately bonded over a shared vision that became Q.

FOUNDER & CHIEF PRACTITIONER Juhi Singh, MA, LAc is a Thought Leader in Integrative Medicine and one of the top Acupuncturists in New York City. Mike: speaking of integrative med… I had happy hour with friend Juhi Singh MA LAc who is launching a new multi-specialty integrative med Center. Juhi Ash Center. She is very data-driven in the integrative world.