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Dennis OConnor

Privacy Policy | Smart Patients - 0 views

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    "our Choices and Information Sharing Smart Patients gives you important choices about controlling your personal information - whom you let see it, how much, and when. We encourage you to make these choices thoughtfully. Your choices include: Whether you want to browse the website anonymously or create an account and provide us your personal information; Whether you want to join Community Discussion relating to a particular condition; How much health or other personal information you want to share with other patients and caregivers through Community Discussion; Whether you want to participate in surveys we may offer from time to time. The nature of the survey and the form in which the results will be disclosed will be explained to you in advance; Whether you want to participate in any other opportunity we may offer to share your health information with others. For example, if we think you have written something in a Community Discussion that would be particularly helpful to others facing the same condition, we may invite you to post an excerpt from your comments on our public website. Any such opportunity would be clearly explained to you in advance, and whether you decide to share your information would be entirely up to you; Discontinuing active participation or closing your account at any time."
Dennis OConnor

Google Drive | Slack App Directory - 0 views

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    App Directory Browse Manage Build Precision Healthcare Ecosystem Your settings have been saved. Browse Apps Google Drive Edit configuration Google Drive Added by Dennis OConnor on August 31st, 2018 * Google Drive lets you store files securely online, access them from anywhere, and collaborate with others. Add the Google Drive app to create Google Docs, import any type of file from Google Drive, and get notifications on new comments, files, and access requests - all without leaving your conversations in Slack. Authentication The Google Drive integration is built in for your workspace, but it must be configured for each individual member who wants to import Google Drive files. Authenticated as: askus@precisionhealthcareecosystem.org Usage Guide Use Google Drive within Slack to: Share and manage access to your files - either to view, edit, or leave comments - from within Slack. Get updates in Slack on changes in Drive, like comments, access requests, and new files shared with you. Reply directly to comments from within Slack and have them posted to the file. Continue the conversation with any additional comments in Google Drive going straight into that Slack thread. Find your files quickly, even if you don't remember their name, by searching directly in Slack. Slack automatically indexes the contents of any Google Drive file you share so you can find when you need it. Create new Google Docs, Slides, and Sheets directly from Slack by clicking the "+" button to the left of the Slack message box. Import an existing file from Google Drive directly from Slack by clicking the "+" button or pasting a link. You'll see a preview of the file in Slack. Customize Name Choose the name that this integration will post as. Using Slack Product Enterprise Pricing Support Slack Guides App Directory API Slack Jobs Customers Developers Events Blog Podcast Slack Sh
Dennis OConnor

Health Story Collaborative - 0 views

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    "You are not alone. Navigating illness can be isolating, but it doesn't have to be. At Health Story Collaborative, we believe in story sharing for health. We are patient-centered, research-based, and committed to the therapeutic power of storytelling. We strive to create a space where story sharing is valued and honored within the healthcare system. Explore the site, listen to stories and consider crafting and sharing your own. "
Dennis OConnor

GA4GH (Global Alliance for Genomics & Health) Community Response to COVID-19 - 0 views

  • A Message from the GA4GH Executive Committee Ewan Birney, Heidi Rehm, Peter Goodhand, and Kathryn North The urgency of scientific data sharing is never more apparent than during a global disease outbreak. Rapid sharing of high quality data is critical for the effective and timely response to any pandemic. GA4GH has joined Wellcome and others to call for rapid, open sharing of research findings and data relevant to COVID-19. The GA4GH community is responding through the development of a variety of research and data sharing platforms and initiatives…. But in order to ensure truly equitable access to and participation in both the scientific process and its benefits, we must rigorously maintain technical and ethical standards that support the open sharing of data and knowledge—now and always.
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    Recommended by DeAunne Denmark, MD. Phd.
Dennis OConnor

Precision Health: Know More About Your Body, Worry Less | Q Bio - 1 views

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    In 2008 Jeff Kaditz was rushed to the hospital after being hit by a car. He spent months in a hospital bed and had to learn to walk again. He was misdiagnosed twice before finding out he needed major surgery. Throughout the process he was frustrated by the lack of quantitative information that was available about his body, which led to a wide range of inconsistent diagnoses. Jeff imagined a day when everything about a person's body could be quickly measured, shared and analyzed. He started researching a solution and in 2015 he met Dr. Michael Snyder and Dr. Garry Choy. They immediately bonded over a shared vision that became Q.
Dennis OConnor

Empowering patients and reducing inequities: is there potential in sharing clinical not... - 0 views

  • engages them actively in their care, improves their sense of control over their health and enhances safety.
  • older, less educated, non-white or whose first language is not English report even greater benefits than do their counterparts
  • we suggest that open notes may, over time, prove important in the care of patients who are at risk of experiencing healthcare disparities.
  • ...16 more annotations...
  • in the USA, the likelihood of receiving an access code to activate health portals is significantly lower for minorities, the uninsured, non-English speakers and older patients.11
  • Research suggests that negative implicit biases can affect the quality of health interactions and are associated with fewer signals of support and empathy towards patients representing some disadvantaged demographic groups, including racial and ethnic minorities, low-income, less educated and older patients.1
  • Open notes might be viewed as extending the visit, potentially thereby elongating and strengthening patient–physician interactions before and after the pressures of the clinical encounter.
  • investigators found that patients who were non-white or less educated reported more benefits than their counterparts:
  • Although some health organisations provide portals in a range of languages, clinical notes are typically offered in one language only.
  • access to open notes appears to help some patients who speak another primary language by allowing them, or a care partner, to read and recall information.
  • 77% (357/462) reported reading their notes as extremely important for remembering their care plan,
  • It is estimated that, on average, patients do not recall about half of the health information communicated during visits, with this figure likely higher among those with lower levels of health literacy.2
  • health literacy is now recognised as a driver of health disparities.
  • By offering patients access to records that document what was discussed during visits, open notes may provide a novel forum for augmenting health literacy among some patients.
  • As one patient noted: “I like my summaries because I can go back and revisit them”.1
  • in a large study of patients who read notes, 38% (8588/22 753) reported sharing them with others, predominantly family members
  • Limitations
  • Open notes are becoming increasingly common, and preliminary data suggest they may hold particular benefits for vulnerable patient populations
  • Second, as preliminary evidence suggests, it is possible that open notes may increase trust between patients and clinicians, reduce transmission of bias and increase patient engagement, especially among vulnerable patient populations
  • co-creation of medical notes holds promise and is currently under investigation
Dennis OConnor

https://lunadna.com/ - 0 views

shared by Dennis OConnor on 10 Dec 18 - No Cached
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    Blockchain data collection. Coin = shares in company. Spin off of 23 me
Dennis OConnor

Qigong - Diving into Grace~A Well-Being Retreat - 0 views

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    "Dear Practitioners,   It is with great pleasure that Daniela Carraro and myself will be co-teaching a transformational retreat with Jianshe Liu on March 5 - 8th, 2019 at Prince of Peace Abbey in Oceanside.   Jianshe has studied Zhineng Qigong since 1991 - his teaching is a direct transmission of authentic,  joyful presence and living each moment gracefully.   Jianshe, Dani and I are honored and humbled to come together and connect with you in this way. Please read below for more details, we look forward to sharing this experience with you.   Abundant blessings, Dani & Reyna"
Dennis OConnor

Sharon Terry: Science didn't understand my kids' rare disease until I decided to study ... - 0 views

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    "Meet Sharon Terry, a former college chaplain and stay-at-home mom who took the medical research world by storm when her two young children were diagnosed with a rare disease known as pseudoxanthoma elasticum (PXE). In this knockout talk, Terry explains how she and her husband became citizen scientists, working midnight shifts at the lab to find the gene behind PXE and establishing mandates that require researchers to share biological samples and work together."
Dennis OConnor

Pacific College | Acupuncture, Nursing and Massage School - 0 views

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    "Pacific College offers you the education and hands-on experience you need to become a highly qualified practitioner, ready to adapt to the new demands that face the healthcare industry. Our programs in massage, acupuncture, and holistic nursing welcome those who share our passion for holistic healing and the power to change lives exponentially."
Dennis OConnor

Home - Science Gateways Community Institute (SGCI) - 0 views

shared by Dennis OConnor on 23 Aug 19 - No Cached
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    "We provide NSF-funded, online and in-person resources and services. Our goal is to facilitate-at little or no cost-the sharing of experiences, technologies, and practices of those working with science gateways."
Dennis OConnor

Alexander Love Voices - Alexander Love - 0 views

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    Shared by Kabir.
Dennis OConnor

Mimi Guarneri MD Covid-19 Antibody Tests, Immune Support - YouTube - 0 views

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    In this video, Dr. Guarneri explains basic antibody concepts and shares some insights from small N research at Pacific Pearl
Dennis OConnor

Story & AIHM - Is Your Story Making You Sick? - 0 views

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    "Is Your Story Making You Sick? has screened at top conferences and mental health organizations across the country-catalyzing important conversations about this innovative and effective approach to healing. From addiction treatment to trauma-informed communities - leading healthcare organizations and beyond - many have found our film to be a powerful tool to share a message of recovery, healing, and hope."
Dennis OConnor

Meet Master Yuantong Liu - Hunyuan Qi Therapy - 0 views

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    "Master Liu is sharing Zhineng Qigong theories, principles and methods since over 40 years and was trained directly by Dr Pang Ming during the rigorous teachers' program in the Huaxia Zhineng Qigong Clinic & Training Center - globally renowned as the first "medicine-less hospital in the world"."
Dennis OConnor

Design and Implementation of Participant-Led Research - Quantified Self - 0 views

  • THE QUANTIFIED SELF is about making personally relevant discoveries using our own self-collected data. We call this practice everyday science, a name that emphasizes its nonprofessional character. Lately we’ve begun organizing small group projects that show how collaboration can make individual projects easier. Sometimes, joining forces with others who share our question can make it possible to create both personal and generalizable health knowledge. Following the scholar Effy Vayena, we use the term “participant-led research” (PLR) to describe this approach.
  • PLR
    • Dennis OConnor
       
      Apollo / Chi gong? Is this our PLR.? Mainly n=1. No collaboration on a mutual research project.
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    THE QUANTIFIED SELF is about making personally relevant discoveries using our own self-collected data. We call this practice everyday science, a name that emphasizes its nonprofessional character. Lately we've begun organizing small group projects that show how collaboration can make individual projects easier. Sometimes, joining forces with others who share our question can make it possible to create both personal and generalizable health knowledge. Following the scholar Effy Vayena, we use the term "participant-led research" (PLR) to describe this approach.
Dennis OConnor

I'm an Expert on My Own Body - So Why Aren't Doctors Listening? - 0 views

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    Recommended by Sharon Wampler "How we see the world shapes who we choose to be - and sharing compelling experiences can frame the way we treat each other, for the better. This is a powerful perspective. As someone with a chronic illness, I shouldn't have to advocate for myself when I'm at my most ill. Is it too much to expect doctors to believe the words that I have to force out, amidst spikes of pain, after I've dragged myself to the emergency room? Yet so often I've found that doctors only look at my patient history and actively ignore most of what I've said."
Dennis OConnor

Home - XSEDE - 0 views

shared by Dennis OConnor on 23 Aug 19 - No Cached
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    "The Extreme Science and Engineering Discovery Environment (XSEDE) is a single virtual system that scientists can use to interactively share computing resources, data and expertise. People around the world use these resources and services - things like supercomputers, collections of data and new tools - to improve our planet."
Dennis OConnor

Healthcare Text Analytics: Unlocking the Evidence from Free Text | Frontiers Research T... - 0 views

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    "About this Research Topic Healthcare narratives (such as clinical notes, discharge letters, nurse handover notes, imaging reports, patients posts on social media or feedback comments, etc.) have been used as a key communication stream that contains the majority of actionable and contextualised data, but which - despite being increasingly available in a digital form - is still not routinely analysed, and is rarely integrated with other healthcare data on a large-scale. There are many barriers and challenges in processing healthcare free text, including, for example, the variability and implicit nature of language expressions, and difficulties in sharing training and evaluation data. On the other hand, recent years have witnessed increasing needs and opportunities to process free text, with a number of success stories that have demonstrated the feasibility of using advanced Natural Language Processing to unlock evidence contained in free text to support clinical care, patient self-management, epidemiological research and audit."
Dennis OConnor

Pipeline | Otsuka Pharmaceutical Co., Ltd. - 0 views

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    "Otsuka Pharmaceutical collaborates actively with leading-edge academia and venture companies, in addition to using conventional drug discovery methods. This open sharing of ideas enables us to develop unique compounds."
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