Click here to register!What:The Autistic Self Advocacy Network, in conjunction with the Petrie-Flom Center for Health Law Policy, Biotechnology and Bioethics, the Harvard Law Project on Disability and the UNESCO Bioethics Chair American Unit, is proud to invite you, to join us on December 10th for a Symposium on Ethical, Legal and Social Implications of Autism Research at Harvard Law School. The free event will run from 9 AM to 3 PM at the Harvard Law School campus, Hauser Hall, Room 105. Topics covered will include prenatal testing, community participation in Research methodologies, appropriate and inappropriate intervention goals and much more.
This symposium will serve a unique role in shedding light on ethics and values issues within the autism Research community. By bringing together self-advocate and Researcher participants, we hope this will serve as a starting point for meaningful dialogue between those conducting Research on autism and the community of Autistic adults and youth. Confirmed participants include Administration on Developmental Disabilities Commissioner Sharon Lewis, ASAN President and IACC Public Member Ari Ne'eman, National Institute on Child Health and Human Developmental Director Alan Guttmacher, Harvard Law Professor Michael Stein, Paula Durbin-Westby, Emily Titon, Liz Pellicano, David Rose and many more.
This event is open to the general public without charge and is made possible by a grant from the Administration on Developmental Disabilities.When:Saturday December 10, 2011 9:00 AM to 3:00 PM ESTWhere: Harvard Law School, Hauser Hall Room 1051563 Massachusetts AvenueCambridge, MA 02138
Contact: Ari Ne'eman Autistic Self Advocacy Network 202.596.1056 info@autisticadvocacy.org
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What:
Ending sudden unexplained death in epilepsy (SUDEP) is a shared responsibility. And you can help! Any successful effort will require doctors, people with epilepsy, nurses, researchers, coroners and those bereaved by the loss of someone to SUDEP to work together. It will require collaboration across many different organizations over many years. This webinar will begin with a look at what research is telling us about the possible causes as well as future prevention methods and cures for SUDEP. The second part of this webinar will explore how you or a loved one can help by joining a study. We will also discuss the support needs of research study participants and the resources available to them. The presenters will also briefly discuss the SUDEP registry and its role in SUDEP research.
When:
Wednesday, January 15, 2014
1:00 pm Mountain
Cost:
Space is limited. A $25 donation is suggested.