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Roger Holt

Doctors Get New Recommendations For Diagnosing Disabilities - Disability Scoop - 0 views

  • A major pediatricians’ group is issuing new guidelines for physicians diagnosing intellectual and other developmental disabilities. In a clinical report published Monday in the journal Pediatrics, the American Academy of Pediatrics updated its recommendations, which were first released in 2006. Specifically, the new report emphasizes advances in genetic testing in recent years that can aid in providing a more precise diagnosis for children with various delays.
Roger Holt

We Must Provide Equal Opportunity in Sports to Students with Disabilities | ED.gov Blog - 0 views

  • Today, ED’s Office for Civil Rights has released guidance that clarifies existing legal obligations of schools to provide students with disabilities an equal opportunity to participate alongside their peers in after-school athletics and clubs. We make clear that schools may not exclude students who have an intellectual, developmental, physical, or any other disability from trying out and playing on a team, if they are otherwise qualified. This guidance builds on a resource document the Department issued in 2011 that provides important information on improving opportunities for children and youth with disabilities to access PE and athletics.
Roger Holt

Education Week: Studies Shed Light on 'Twice Exceptional' Students - 0 views

  • Emerging research on the "neurodevelopmental paradox" of twice-exceptional students highlights the need for educators to take an earlier, more holistic approach to evaluating and teaching students with disabilities. Often, when people think of a gifted student with disabilities, they picture an autistic savant, like Dustin Hoffman's character in the movie "Rain Man," but in reality, "there are a lot of kids who are really struggling, and we totally miss them," said M. Layne Kalbfleisch, the principal investigator of the Krasnow Investigations of Developmental Learning and Behavior, or KIDLAB, at George Mason University, in Fairfax, Va. Ms. Kalbfleisch and other experts estimate there were 300,000 twice-exceptional students—intellectually gifted children also diagnosed with learning disabilities—in 2004, when the Individuals with Disabilities Education Act first noted that students with disabilities may also be gifted.
Roger Holt

With wounded veterans and an aging boomer population coming, Mark I. Pinsky says church... - 0 views

  • Churches, synagogues, mosques and temples are places where people with disabilities might not expect to feel excluded, isolated or patronized. Yet that has often been the norm. For years congregations have effectively excluded the disabled from worship—by steps, narrow doorways and straitened attitudes—or segregated them in "special" services. Houses of worship (except those with more than 15 employees) were excluded from the 1992 Americans with Disabilities Act, which, among other things, bars discrimination against people with physical or intellectual disabilities—including access and architectural barriers—in public accommodations and transportation.
Roger Holt

Envisioning the Future - Let Your Voice Be Heard at Our Listening Sessions - Disability... - 0 views

  • As the Commissioner of the Administration on Developmental Disabilities (ADD), I am absolutely committed to making our schools, communities, workplaces and neighborhoods more welcoming and inclusive for individuals with intellectual and developmental disabilities. I believe strongly in supporting approaches that shape attitudes by raising expectations, change outdated or broken systems, engender respect for all people and empower individuals with disabilities to pursue the lives they imagine for themselves. In order to determine the best path forward, ADD is currently embarking on a collaborative process to collect public input for our five year strategic plan through a series of meetings we are calling, “Envisioning the Future.”
Roger Holt

Leaders with Developmental Disabilities in the Self-Advocacy Movement // Donated to the... - 0 views

  • This project explores the life stories of thirteen leaders in the self-advocacy movement and their perspectives on key issues and leadership challenges. Part of the broader disability rights movement, the self-advocacy movement is unique in that it has been led and informed by the individual and collective experiences of people with intellectual and developmental disabilities. Despite its widespread existence nationwide and internationally, few works have explored the rich history, culture, and significance of the self-advocacy movement. To help fill this void, Joe Caldwell, Ph.D., Department of Disability and Human Development, University of Illinois at Chicago, undertook this life history project and donated transcripts to The Bancroft Library for its Disability Rights and Independent Living Movement collection. More about Self-Advocacy Movement oral history project.
Roger Holt

Vermont Tops National Ranking Of Disability Services - Disability Scoop - 0 views

  • Vermont offers the best Medicaid services for individuals with intellectual and developmental disabilities while Mississippi provides the worst, according to an annual ranking released Thursday.
Roger Holt

A Case for Inclusion - 0 views

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    The United Cerebral Palsy (UCP) has released its annual Case for Inclusion that benchmarks states' actual performance in improving lives for individuals with intellectual and developmental disabilities. Among the findings, there remain 169 large institutions (more than 16 beds) housing 36,175 Americans. This is a decline of four institutions from the previous year, as well as 1,536 fewer people living in them. However, nine states (down from 11) continue to report more than 2,000 residents living in large public or private institutions - California, Florida, Illinois, New Jersey, New York, North Carolina, Ohio, Pennsylvania & Texas. Nine states - Alaska, Hawaii, Maine, New Hampshire, New Mexico, Rhode Island, Vermont and West Virginia, and the District of Columbia - have no large state institutions.
Roger Holt

Home - The Medicaid Reference Desk - 0 views

  • The Medicaid Reference Desk is a tool to help people with intellectual and developmental disabilities find out what Medicaid can offer them.
Roger Holt

Game On For Paralympic Athletes With Intellectual Disabilities - Disability Scoop - 0 views

  • Athletes with intellectual disabilities will be allowed to participate in the 2012 Paralympic Games in London following a vote of the International Paralympic Committee.
Roger Holt

Study: Nearly 1 In 3 With Autism Socially Isolated - Disability Scoop - 0 views

  • The social struggles of young people with autism were far more pronounced than those of other disability groups, the study found. While almost one-third of those with autism qualified as socially isolated because they never received telephone calls or went out with friends, fewer than 10 percent of individuals with intellectual disability and only 2 to 3 percent of people with emotional disturbance or learning disabilities fell into this category.
Roger Holt

Bullying and Youth with Disabilities and Special Health Needs | StopBullying.gov - 0 views

  • Children with disabilities—such as physical, developmental, intellectual, emotional, and sensory disabilities—are at an increased risk of being bullied. Any number of factors— physical vulnerability, social skill challenges, or intolerant environments—may increase the risk. Research suggests that some children with disabilities may bully others as well.Kids with special health needs, such as epilepsy or food allergies, also may be at higher risk of being bullied. Bullying can include making fun of kids because of their allergies or exposing them to the things they are allergic to. In these cases, bullying is not just serious, it can mean life or death.
Terry Booth

SSA Proposed Revisions for Criteria on Mental Impairment / Cognitive Disabability for P... - 0 views

  • The Social Security Administration published proposed rules on revisions to the criteria for mental impairments, including intellectual disability/mental retardation. These criteria, or "listings", are the first major step in determining whether an individual is eligible for disability benefits under the Supplemental Security Income (SSI) and Social Security disability programs. The proposed rules are available for public comment until November 17, 2010. See the proposed rules at: http://edocket.access.gpo.gov/2010/pdf/2010-20247.pdf.
Sierra Boehm

Fragile X Associated Disorders, More than a Syndrome - Webinar - Feb. 20, 2013 - 0 views

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    Click here to register for this webinar What: This webinar will discuss the spectrum of disorders associated with the FMR1 gene mutation: Fragile X Syndrome (FXS), Fragile X Primary Ovarian Insufficiency (FXPOI), and Fragile X Tremor Ataxia Syndrome (FXTAS). FXS is the leading known cause of autism and the most prevalent inheritable cause of intellectual disabilities. FXPOI affects 15-20% of women who have the premutation allele of the FMR1 gene and involves clinical features including irregular menses, reduced fertility and premature menopause. Also within the premutation range, the neurodegenerative condition known as FXTAS can occur in 46% of males and 17% of women. This webinar will provide a basic understanding of the FMR1 gene mutation, prevalence and clinical features of FX Associated Disorders. A discussion of the varied clinical presentations, associated health conditions and the most recent research on treatments will be included. When: Wednesday, February 20, 2013 12:00 pm - 1:00 pm Mountain Cost:
    Free
Roger Holt

Think College For Your Child With Special Needs | Friendship Circle -- Special Needs Blog - 0 views

  • I have to admit, I have been giddy ever since I began researching college opportunities for children with special needs.  How exciting!  We have always told our 13-yr old daughter with Down syndrome she would be going to college some day, but it was one of those hopeful comments where I wasn’t really sure it would ever be a reality. No more! Vanderbilt, Ohio State University, University of Kentucky, Syracuse University and on and on and on. I sorted through 200 programs throughout the United States. 200!  Only a few years ago, when this subject was first brought to my attention, there were a mere handful of these programs in the US. I was very surprised to see the great strides our educational community is making to make college a reality for young people with intellectual disabilities.
Sierra Boehm

SELN Employment Innovations: The Role of Family Involvement - Webinar - Oct. 4, 2013 - 0 views

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    Download the flyer for this event
    Register for this event

    What:
    Navigating the transition from high school to the world of work can be challenging for people with intellectual and developmental disabilities (IDD) and families. It can be even more challenging given the competing- and sometimes contradictory- messaging families receive from different systems regarding post-graduation options. Ensuring opportunities for a productive relationship between families and service systems, and routinely communicating shared goals, can be indicators of success. Join others from around the country to hear highlights from family experiences in sorting out messages from three service systems: education, Vocational Rehabilitation (VR), and IDD agencies.

    When:
    Friday, October 4, 2013
    1:00 pm - 2:30 pm Mountain

    Cost:
    No charge
Terry Booth

Addressing Inappropriate Sexual Behavior by Individuals with Intellectual Disabilities ... - 0 views

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    "Presenter: Dr. Karen Ward, University of Alaska Anchorage; and Mr. Geno Daly Date: 03/24/2010 Times: All sessions are from 1:00 - 2:30pm Mountain time. Handouts and additional information will be sent prior to each session."
Terry Booth

Educate for Today: Sexuality Education and Persons with Intellectual Disabilities - Web... - 0 views

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    "Presenter: Dr. Katia Gonzalez-Acquaro Date: 03/10/2010 Times: All sessions are from 1:00 - 2:30pm Mountain time. Handouts and additional information will be sent prior to each session."
Terry Booth

Sexuality Education Curriculum Content for Persons with Intellectual Disabilities - Web... - 0 views

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    "Presenter: Dr. David Westling Date: 03/03/2010 Times: All sessions are from 1:00 - 2:30pm Mountain time. Handouts and additional information will be sent prior to each session."
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