This is a listing of camps for children and adults with specific diagnoses, and for children who have a parent or a family member with a specific diagnosis. These are not necessarily free camps, or camps for financially needy children and families. But, some of these camps offer financial aid, so contact the individual camp for details. If you're looking for programs that provide general financial aid for camping or other activities, then go to the Diagnosis-Based Assistance area of NeedyMeds and search by the specific diagnosis.
The programs listed in this database include camps for children with one specific diagnosis, whole categories of diagnoses (such as all types of cancers) or broader chronic illnesses. Many of these camps are funded by either private or government organizations. Some camps take children from anywhere in the U.S., while others are limited to people in specific states. Most have some type of eligibility requirements, usually financial ones.
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Camps and Retreats - 0 views
Should I Get A Diagnosis For My Child With Developmental Delays? | Friendship Circle --... - 0 views
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Do you know someone who isn’t sure whether or not to pursue a medical diagnosis for a developmentally delayed son or daughter? According to the Centers for Disease Control, most children with autism are diagnosed after age 4. Certain other developmental and learning disabilities are usually not diagnosed until a child enters elementary school. These facts are puzzling, since it is well-established that early intervention leads to better outcomes for children with special needs. But there are many reasons why parents and physicians choose to delay diagnosis, even when a young child is delayed and has difficulty adapting to everyday life:
Study: Some children 'grow out' of autism diagnosis - 0 views
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Some children who are accurately diagnosed in early childhood with autism lose the symptoms and the diagnosis as they grow older, a study supported by the National Institutes of Health has confirmed. The research team made the finding by carefully documenting a prior diagnosis of autism in a small group of school-age children and young adults with no current symptoms of the disorder.
Autism Screening, Early Diagnosis and Early Intervention - Webinar - Apr. 24, 2013 - 0 views
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Register for this webinar
What:
This presentation is in two (2) parts. "Coordination of Evaluation and Early Intervention Among Early Childhood Professionals and Diagnosticians" describes quality improvement activities undertaken in Maine to improve early identification and intervention by increasing coordination and communication between medical diagnosticians and early childhood providers. "Collaborative Efforts to Improve Access and Care for Children at Risk for Autism Spectrum Disorders" focuses on three efforts in Massachusetts designed to improve access and care: (a) approval for reimbursement for developmental screening through insurance companies in MA; (b) a new triage mechanism which has led to decreased wait times for specialty evaluations; and (c) development of an email messaging service for families in the first year following diagnosis. When:
Wednesday, April 24, 2013
12:00 pm - 1:00 pm Mountain Cost:
Free of charge
Pediatrician Training May Speed Autism Diagnosis - Disability Scoop - 0 views
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A training program designed to teach pediatricians to better identify kids with autism may be an effective way to decrease wait times and flag children with the developmental disorder at younger ages, researchers say. Currently many children suspected of having autism wait months to see diagnosticians for an evaluation, but researchers say that training community pediatricians to conduct assessments may allow kids to enter treatment programs more quickly. In a three-year study, researchers at Vanderbilt University trained 27 pediatric providers — including doctors and nurse practitioners — across the state of Tennessee to conduct brief evaluations in their practices of children who screened positive for autism. After participating in the two-day trainings, researchers found that the health care providers reached the same diagnostic conclusions as specialists 90 percent of the time. What’s more, providers reported making more autism diagnoses within their practices and said they were more comfortable discussing the developmental disorder. “The findings provide initial evidence suggesting early accurate diagnosis of autism may be possible and appropriate within many community pediatric practices,” said Amy Swanson of Vanderbilt who was the lead author of the study published online this month in the journal Autism. “Given the potentially harmful consequences of lengthy waits for comprehensive diagnostic evaluations, the potential impact of such training programs for advanced autism diagnosis within community practice settings could be quite powerful.”
Doctors Urged To Offer Options, Avoid 'I'm Sorry' When Delivering a Diagnosis - Disabil... - 0 views
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Women who receive a prenatal diagnosis of Down syndrome are happiest when they were prepared for the news and provided as much information as possible, new research finds.
Autism Resource DVD - My Next Steps: A Parent's Guide to Understanding Autism - 0 views
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My Next Steps: A Parent's Guide to Understanding Autism
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A first-time diagnosis of autism in a child can be an overwhelming and stressful time for parents and families. My Next Steps: A Parent's Guide to Understanding Autism serves as a roadmap for parents dealing with this challenging period and seeks to provide answers to the many questions that arise during the journey from autism diagnosis to treatment. The DVD is produced by the University of Washington Autism Center and funded by Washington State legislature. Through interviews with experts and treatment providers, My Next Steps familiarizes parents with topics that are crucial in providing the best support for their child.
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A first-time diagnosis of autism in a child can be an overwhelming and stressful time for parents and families. My Next Steps: A Parent's Guide to Understanding Autism serves as a roadmap for parents dealing with this challenging period and seeks to provide answers to the many questions that arise during the journey from autism diagnosis to treatment. The DVD is produced by the University of Washington Autism Center and funded by Washington State legislature. Through interviews with experts and treatment providers, My Next Steps familiarizes parents with topics that are crucial in providing the best support for their child.
The Early History of Autism in America | Science | Smithsonian - 0 views
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"But what diagnosis might have fit better? If Billy were alive today, we think his disability, and that of others documented then in Massachusetts, would likely be diagnosed as autism. True, the actual word "autism" did not exist in their time, so neither, of course, did the diagnosis. But that does not mean the world was empty of people whose behaviors would strike us, in 2016, as highly suggestive of autistic minds."
Treatment Myths, An Inconclusive Diagnosis, and Dyslexia: My Struggle for Help - NCLD - 0 views
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Imagine the level of frustration a young child must feel when he or she is truly putting all their effort into comprehending what they are reading, yet is unable to grasp any of the information. When I was in fourth grade I felt this frustration. I was told by many of my teachers that I “wasn’t trying” or “didn’t care” about the work, which left me feeling trapped. I had no way of proving that I wasn’t lazy and without a diagnosis of some sort, I didn’t know what to do.
The Autism Project: Parent to parent on dealing with a diagnosis - thestar.com - 0 views
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There is no shortage of experts to chase when a child shows signs of autism. But wisdom also comes from another kind of specialist — families who have walked the road before. Their advice ranges from ‘trust your gut’ to ‘be persistent.’ Here is some advice on coping in the early days after a diagnosis, edited and condensed.
Autism: a Q&A with Uta Frith | OUPblog - 0 views
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We spoke to Uta Frith, author of Autism: A Very Short Introduction and asked her about diagnosis, the perceived links between autism and genius, and how autism is portrayed in culture. Autism was not identified before the 1940s. Weren’t there any autistic people before this? Autism was not a new phenomenon starting in the middle of the 20th century, but it needed people like Leo Kanner and Hans Asperger to point out the striking constellation of poor social communication and stereotypic behaviours for others to see it too. Clinicians used the terms ‘infantile’ or ‘early childhood autism’ and located it among the neglected population of children who were born ‘mentally deficient’. Gradually clinicians became aware that most of this neglected population showed similar problems in varying degrees, and that specialist services were needed to educate children who could not communicate appropriately. They embraced the idea of the autism spectrum. So, just as there has been an increase in the autism spectrum diagnosis, there has been a corresponding decrease in the diagnosis of mental retardation.
Researchers call for open access to autism diagnostic tools - SFARI.org - Simons Founda... - 0 views
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Western Psychological Services, a publishing company based in Los Angeles, owns many of the common autism screening and diagnostic instruments. These include the Social Responsiveness Scale (SRS), a widely used screening questionnaire that Constantino developed, as well as the Autism Diagnostic Observation Schedule (ADOS) and the Autism Diagnostic Interview-Revised (ADI-R), often referred to as the gold-standard tests for diagnosis of the disorder. Each time one of these tests is administered, the publisher charges a fee, and passes a portion of the royalties on to the test’s developers. “I don’t think there’s any other condition in medicine in which you have to pay a royalty to a publishing company in order to make the diagnosis,” says David Skuse, professor of behavioral and brain sciences at University College London. Skuse has helped develop two freely available tools, the Social and Communication Disorders Checklist (SCDC) and the developmental, dimensional and diagnostic interview (3di). In many countries, paying royalties of even a few dollars represents a substantial hardship. Durkin and others say these costs not only limit access to diagnosis for individuals, but also forestall epidemiological studies, which require surveying thousands of individuals. One reason researchers have traditionally turned to publishers is a lack of alternative distribution channels, Durkin says. A new online clearinghouse of information, DisabilityMeasures.org, attempts to address this issue by gathering free diagnostic tools for developmental disabilities such as autism.
AUCD - DSM-5 Resources - 0 views
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The Fifth Edition of the Diagnostic and Statistical Manual of Mental Disorders (DSM-5) was released in May 2013, bringing with it several revisions to the criteria for the diagnosis and classification of mental disorders. One important change was for Autism Spectrum Disorder (ASD) classifications. Under the new DSM-5 criteria, clinicians will diagnosis individuals with a single umbrella diagnosis of ASD, rather than the four separate disorders that could be diagnosed under the DSM-IV: autistic disorder, Asperger's disorder, childhood disintegrative disorder and pervasive developmental disorder not otherwise specified.
MCH Library Knowledge Path: Autism Spectrum Disorders - 0 views
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This knowledge path about autism spectrum disorders (ASD) has been compiled by the Maternal and Child Health Library at Georgetown University. It offers a selection of current, high-quality resources about ASD screening and diagnosis, treatment and intervention, communication, education, vocational challenges, and impact on family life. Separate sections identify resources that address early identification, early intervention and education, concerns about vaccines, environmental health research, and inappropriate use of seclusion and restraints. This knowledge path for health professionals, educators, researchers, policymakers, and families will be updated periodically.
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This knowledge path about autism spectrum disorders (ASD) has been compiled by the Maternal and Child Health Library at Georgetown University. It offers a selection of current, high-quality resources about ASD screening and diagnosis, treatment and intervention, communication, education, vocational challenges, and impact on family life. Separate sections identify resources that address early identification, early intervention and education, concerns about vaccines, environmental health research, and inappropriate use of seclusion and restraints. This knowledge path for health professionals, educators, researchers, policymakers, and families will be updated periodically.
Oct 5, 2009 - Prevalence of Parent-Reported Diagnosis of Autism Spectrum Disorder Among... - 0 views
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The American Academy of Pediatrics (AAP) has prepared this Q&A to answer parents' questions about autism. A national survey of parents showed the prevalence of autism spectrum disorders (ASDs) is approximately 1 in 91 U.S. children. The study, "The Prevalence of Parent-Reported Diagnosis of Autism Spectrum Disorder Among Children in the United States, 2007," was published in the Oct. 5, 2009, issue of Pediatrics. The study drew on data from the 2007 National Survey of Children's Health, a telephone survey of parents conducted jointly by the Health Resources and Services Administration and the Centers for Disease Control and Prevention.
Losing an Autism Diagnosis | Judy Endow - 0 views
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I am an almost 60-year-old autistic woman who can navigate the world in a way that surprises some people when they find out I have autism. My teen years were spent in an institution because people did not know what to do with my “behaviors” or with me. Today I am a self-employed author, speaker, consultant and artist with a master’s degree in Social Work. Question: Did I lose my autism diagnosis? Official Answer: Yes and No
NAMI Basics Classes for Parents and Direct Caregivers of Children with Emotional and Be... - 0 views
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To register, or for more information contact MELODY DOMPH at 253-9249 What:
A series of classes structured to help parents and direct caregivers understand and support children and adolescents with serious mental illness while maintaining their own well being. The course is taught by a team of trained NAMI family members and direct caregiver volunteers who know what it's like to have a child struggling with one of these brain disorders. Topics covered will be the 'no fault' approach, the biology of mental illness, getting an accurate diagnosis, an overview of treatment options, the impact on family, communication, crisis management, the system/agencies involved with your child, the importance of record keepng, and advocating and team building for you and your child. There is no cost to participate in the NAMI Basics Program and you will be given course materials to take home. Pre-registration is required and class size is 20. When/Where: Child Development Center
Kalispell, MT
Oct 18, 23, 25
6-8:30pm Contact:
Melody Domph
253-9249
Aspergers will no longer exist after May of 2013 - 0 views
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The American Psychological Association (APA) is changing the definition of Autism Spectrum Disorders, a change which will occur in May of 2013. Click here to review he changes that will be included in the DSM-5. Note: A diagnosis of Aspergers does not qualify a student for eligibility under the disability category of Other Health Impairment. The OHI criteria require that the student has a health problem and Aspergers is a psychological disorder. There are several changes which concern parents, education professionals and people with autism spectrum disorders. Very briefly, these changes are: The new APA criterion for autism spectrum disorders is different from the current APA, IDEA and Montana educational criteria for autism spectrum disorders. Asperger's Disorder and Pervasive Developmental Disorder (PDD) will no longer exist as separate APA diagnostic categories, but will be subsumed in the revised APA criteria for "Autism Spectrum Disorder." Aspergers and PDD will no longer exist. What will these changes mean for students with autism spectrum disorders in Montana's public schools? Montana is unlikely to change the current criteria for identification of a student as having autism until the Individuals with Disabilities in Education Act (IDEA) is reauthorized.The IDEA was last reauthorized in 2004 and the revised regulations were published in 2006. There is no anticipated date for when the next reauthorization will occur. Contact: ddoty@mt.gov Doug Doty, Statewide Coordinator OPI Montana Autism Education Project 406-459-5303
Individuals who have both mental illness (MI) and intellectual/developmental disability (IDD) present clinical challenges to professionals as well as to the systems that attempt to provide care to these individuals. Clinicians frequently have difficulty in appropriately identifying a mental health disorder, even when one exists, in persons who have limited verbal skills. This six-hour workshop is designed to provide the participant with clinical information that will help in the assessment, diagnosis and support strategies necessary to provide appropriate care for this underserved group of people. The participant will learn how mental health signs and symptoms are manifested in persons with a dual diagnosis as compared to those with only mental illness. Upon completion of this training, you will: Articulate the profile and characteristics of people with MI/IDD; Articulate vulnerability factors in people with MI/IDD; Identify best practices in assessment procedures for people with MI/IDD; Identify signs and symptoms of MI in persons with IDD; Describe the major features in the Diagnostic Manual - Intellectual Disabilities (DM-ID); Describe techniques associated with supportive therapy for persons with MI/IDD; Identify the value of the NADD Accreditation and Certification Program. When/Where: April 23, 2012 Hilton Garden Inn
3720 North Reserve Street
Missoula, MT
April 24, 2012 Fish, Wildlife and Parks Conference Room
4600 Giant Springs Road
Great Falls, MT
April 25, 2012 Holiday Inn Downtown<