Group items tagged

PSN is dedicated to helping parents and families cope and move forward in their lives. PSN is also the first support group for infant, pediatric and childhood stroke registered with the American Heart Association

Challenges of Spastic Hypertonia at Spinal Cord Injury Information Network

Scoliosis Association, Inc - An International Support and Information Organization - A non-profit, volunteer non-medical organization. Since 1974, we have been helping those with scoliosis by providing information and having support groups and information lines. We have a variety of ways by which you can get in contact with us as shown throughout our website. Additionally, you may have a support group or information hotline in your area. Please go to our support page to find the list of support groups or information lines. There are 54 active chapters (support groups) at this time.

NPAF - National Patient Advocate Foundation is a national non-profit organization providing the patient voice in improving access to, and reimbursement for, high-quality healthcare through regulatory and legislative reform at the state and federal levels. NPAF translates the experience of millions of patients who have been helped by our companion, Patient Advocate Foundation, which provides professional case management services to individuals facing barriers to healthcare access for chronic and disabling disease, medical debt crisis and employment-related issues at no cost

The Australian parenting website - Helping your child with a disability development more skills

Enabled Online offers information and stories involving issues that affect people with disabilites

Accessible Technology On-line Seminar Series - The goal of the Accessible Technology Webinars is to increase awareness on technology accessibility for people with disabilities

Hemi-Kids is an email support group where parents of children who have hemiplegia or hemiplegic Cerebral Palsy share support and information.

Study will examine how the brain controls speech in patients with spasmodic dysphonia, a voice disorder that involves involuntary spasms of muscles in the larynx (voice box), causing breaks in speech. Although the causes of spasmodic dysphonia are unknown, recent studies found changes in brain function in patients with the disorder that may play a role in its development.

The Hydrocephalus Foundation, Inc. (HyFI) is a registered, 501(c)(3) nonprofit organization dedicated to providing support, educational resources and networking opportunities to patients and families affected by hydrocephalus. The Foundation also promotes related research and facilitates the training of healthcare professionals to improve patient outcome.

The National Hydrocephalus Foundation (NHF) was incorporated in the state of Illinois in 1979 as a voluntary, not-for-profit, 501 C (3), public service organization. The objectives of NHF are: To assemble and disseminate information pertaining to hydrocephalus, its treatments and outcomes To establish and facilitate a communication network among affected families and individuals To help others gain a deeper understanding of those areas affected by hydrocephalus, such as education, insurance, tax and estate planning, employment and family To increase public awareness and knowledge of hydrocephalus To promote and support research on the causes, treatment and prevention of hydrocephalus