Group items tagged

NPAF - National Patient Advocate Foundation is a national non-profit organization providing the patient voice in improving access to, and reimbursement for, high-quality healthcare through regulatory and legislative reform at the state and federal levels. NPAF translates the experience of millions of patients who have been helped by our companion, Patient Advocate Foundation, which provides professional case management services to individuals facing barriers to healthcare access for chronic and disabling disease, medical debt crisis and employment-related issues at no cost

The Rare Diseases Clinical Research Network (RDCRN) is made up of 19 distinctive consortia that are working in concert to improve availability of rare disease information, treatment, clinical studies, and general awareness for both patients and the medical community. The RDCRN also aims to provide up-to-date information for patients and to assist in connecting patients with advocacy groups, expert doctors, and clinical research opportunities

Child Neurology Foundation CNF - The Child Neurology Foundation is the outreach arm of the Child Neurology Society, providing information, education, and advocacy for child neurologists and other medical professionals-and for patients, parents, and member groups dealing with an array of neurologic conditions.

Academic Pediatrics - The Official Journal of the Academic Pediatric Association - Leadership in Education, Research, Patient Care and Advocacy