Data Sharing Knowledge Gaps Widespread Among Patients - 0 views
-
The Health Care Data Sharing Survey, commissioned and published by Chicago-based clinical data management company Q-Centrix, was conducted in December 2021 with a sample size of 1,191 people.
-
Fifty-three percent of respondents were female, and 47 percent were male. Respondents fell into four age groups: 18-29 (21 percent), 30-44 (27 percent), 45-60 (29 percent), and over 60 (23 percent). Respondents were also split based on household income: $49,999 or less (41 percent), $50,000-$99,999 (34 percent), and $100,000 or more (25 percent).
-
These patient concerns may translate to a hesitancy to share data for purposes other than improving their own healthcare. Some respondents said they were unsure about whether they’d be willing to share their de-identified healthcare data for clinical research (21 percent), to improve hospital services (22 percent), to improve other patients’ healthcare (22 percent), and to advance care equity and identify disparities (24 percent).
- ...2 more annotations...
-
Over half (51 percent) of respondents reported that they either didn’t believe or weren’t sure that the data recorded in their EMRs was accurate.
-
The healthcare industry’s growing reliance on clinical data and EHRs requires that patients are educated and empowered about data collection, sharing, and use, the report authors noted. Bridging knowledge gaps between health systems and patients has the potential to significantly improve care, medical research, and health equity.