PHE - Resources

"ReCODE Health is here to support technologists, researchers, ethicists, regulators, institutions and participants involved in the digital health research process. Our value proposition is to increase awareness of ethical principles and practices from the earliest stages of technology design to the deployment of digital health research."

"Abstract The digital revolution is disrupting the ways in which health research is conducted, and subsequently, changing healthcare. Direct-to-consumer wellness products and mobile apps, pervasive sensor technologies and access to social network data offer exciting opportunities for researchers to passively observe and/or track patients 'in the wild' and 24/7. The volume of granular personal health data gathered using these technologies is unprecedented, and is increasingly leveraged to inform personalized health promotion and disease treatment interventions. The use of artificial intelligence in the health sector is also increasing. Although rich with potential, the digital health ecosystem presents new ethical challenges for those making decisions about the selection, testing, implementation and evaluation of technologies for use in healthcare. As the 'Wild West' of digital health research unfolds, it is important to recognize who is involved, and identify how each party can and should take responsibility to advance the ethical practices of this work. While not a comprehensive review, we describe the landscape, identify gaps to be addressed, and offer recommendations as to how stakeholders can and should take responsibility to advance socially responsible digital health research."

Importance The incidence of chronic disease is increasing along with health care-related costs. The functional medicine model of care provides a unique operating system to reverse illness, promote health, and optimize function. The association between this model of care and patient's health-related quality of life (HRQoL) is unknown.

"ABSTRACT Background: Heart rate variability (HRV), or variation in beat-to-beat intervals of the heart, is a quantitative measure of autonomic regulation of the cardiovascular system. Low HRV derived from electrocardiogram (ECG) recordings is reported to be related to physical frailty in older adults. Recent advances in wearable technology offer opportunities to more easily integrate monitoring of HRV into regular clinical geriatric health assessments. However, signals obtained from ECG versus wearable photoplethysmography (PPG) devices are different, and a critical first step preceding their widespread use is to determine whether HRV metrics derived from PPG devices also relate to older adults' physical function."

"Valisure's mission is to bring transparency and increased quality to the pharmaceutical industry, and to deliver these benefits direct to consumers. We hope to achieve this through focusing on patient advocacy, consumer protection, and performing advanced research and development."

Vicky NewmanThis is REALLY an important podcast https://peterattiamd.com/davidlight/ -- Podcast -- #75 - David Light: Zantac recall due to cancer concerns - what you need to know. Makes me think that those of us in Project Apollo cohort should be able to obtain our prescribed meds through this online pharmacy to insure drug efficacy. Please send link to cohort & let's discuss possibility of using this online pharmacy. Best, Vicky

"Optimizing Value: Awarded Grants List of grants awarded in 2015 as part of the Robert Wood Johnson  Foundation's solicitation "Optimizing Value in Health Care: Consumer-focused Trends from the Field," which supports studies that address consumer perceptions of value in the new and emerging health care landscape."

"n the nearly 20 years since the publication of this report, numerous stakeholders have sought to reinvent and redesign the US health care system to make it, as the report called for, safe, effective, patient-centered, timely, efficient, and equitable. Researchers have engaged in rigorous and innovative assessments to identify promising approaches. Policy makers, practitioners, and payers have made changes to health policy and clinical practice and instituted various payment reforms and demonstration programs. Yet, despite the tremendous work of the past 20 years, we have not achieved a health care system that is truly patient centered and equitable."

"Otsuka Pharmaceutical collaborates actively with leading-edge academia and venture companies, in addition to using conventional drug discovery methods. This open sharing of ideas enables us to develop unique compounds."

"VIP NeuroRehabilitation Center is a non-profit 501(c)(3) organization, run by and for the patients! We bring top quality outpatient NeuroRehabilitation care to disabled military, veterans, children, and to ALL who are in need.  Located in San Diego, California, we treat adult and pediatric patients, from ages 4 years old and up. Our focus is on those who have difficulty moving secondary to Stroke, Multiple Sclerosis (MS), Brain Injury, ALS, Cerebral Palsy, Spinal Cord Injury, and multiple traumas."

"The Annals of Internal Medicine just published a series of articles claiming: "New guidelines: No need to reduce red or processed meat consumption for good health. A rigorous series of reviews of the evidence found little to no health benefits for reducing red or processed meat consumption."   Yet a careful reading of these articles reveals the exact opposite! They found that dietary patterns with a moderate reduction in red and processed meat consumption had a 13% lower rate of premature death from all causes, a 14% reduction in cardiovascular disease mortality, an 11% decrease in cancer mortality, and a 24% decrease in the risk of type 2 diabetes.  "

"With approximately 133M Americans (more than 40% of the US population) suffering from one or more chronic diseases, the healthcare community is looking for more effective and efficient ways to manage chronic diseases. Part of that pursuit is in finding sustainable ways to help patients better understand their conditions and manage their health by empowering patients, connecting them to information, care, and therapies in ways they want. Join fellow innovators to work on a challenging, multi-faceted, meaningful opportunity to advance clinical care, quality of life, and outcomes for nearly half the US. How can we improve patient literacy and clinical understanding? How do we help patients feel more in-control of their medical care? What can be done to help patients understand when and where they should seek care? These are just some of the pain points begging for thoughtful, tech-enabled solutions."

"In my opinion, the fact that expectation does not match reality is the ultimate reason why many data scientists leave. There are many reasons for this and I can't possibly come up with an exhaustive list but this post is essentially a list of some of the reasons that I encountered."

Recommended by Kabir: "Abstract Importance  Optimism and pessimism can be easily measured and are potentially modifiable mindsets that may be associated with cardiovascular risk and all-cause mortality. Objective  To conduct a meta-analysis and systematic review of the association between optimism and risk for future cardiovascular events and all-cause mortality. Data Sources and Study Selection  PubMed, Scopus, and PsycINFO electronic databases were systematically searched from inception through July 2, 2019, to identify all cohort studies investigating the association between optimism and pessimism and cardiovascular events and/or all-cause mortality by using the following Medical Subject Heading terms: optimism, optimistic explanatory style, pessimism, outcomes, endpoint, mortality, death, cardiovascular events, stroke, coronary artery disease, coronary heart disease, ischemic heart disease, and cardiovascular disease."

Shared by Kabir.

"Why leave all the details behind when you leave the doctor's office, or settle for a printed visit summary that only tells half the story? Abridge records your health care as it happened. You record your health story: - Conversations with doctors and nurses - Discussions about treatment options with family or friends who've been through it before - Personal observations about your symptoms and health "

"So: How do you get started with a self-tracking project? You can picture your project as involving four distinct activities. Although these activities blend into each other, they do each have their own particular flavor, and by outlining them separately we think we can give you a coherent and functional recipe. The activities are: Questioning, Observing, Reasoning, and Consolidating Insight."

"Repeatable, Practical, Proven, Peer-Reviewed Science From cradle to the grave, your brain will process more events than there are stars in our universe. As your body's "central processing unit," your brain is in charge of a staggering array of functions, from processing and perceiving stimuli to motor control and memory storage. Habits and beliefs programmed into your mind over a lifetime of responding to experiences are stored in long-term memory, and may cause you to resist new ways of doing things. However, rapid shifts in neural activity can create new associations, habits or beliefs.1 NeuroGym's "Innercising" methods help you to adopt new perceptions and behaviors and solve old problems quickly and efficiently. Moreover, Innercising® applies practical mental training techniques shown through scientific research to improve mental and emotional functioning. 1. Sánchez-Cañizares, J. (2014). The role of consciousness in triggering intellectual habits. Frontiers in human neuroscience, 8."

"Neuroscience confirms that your brain changes throughout your lifetime, which is a concept known as neuroplasticity. It's the term used to describe a sequence of processes that take place in your brain in response to incoming stimuli. In other words, your emotions, behaviors, experiences, and thoughts physically change the way your brain functions."