PHE - Resources

"In this podcast, IFM's Director of Medical Education, Dan Lukaczer, ND, interviews researcher, educator, and clinician David Rakel, MD, on the power of empathy, compassion, the placebo effect, and the patient story. In particular, they explore how empathy and sympathy can lead to burnout, while compassion can be restorative." shared by Vicky Newman

"In my opinion, the fact that expectation does not match reality is the ultimate reason why many data scientists leave. There are many reasons for this and I can't possibly come up with an exhaustive list but this post is essentially a list of some of the reasons that I encountered."

From Kabir

Recommended by Kabir I've been enjoying this book on the subject of Positivity in the research that has been done on the construct. As it turns out there is a mathematical tipping point for when positivity in our lives moves from an inert force to one that can dramatically impact and improve the qualities of our experience. Roughly speaking this is 3 positive thoughts/emotional experiences to 1 negative thought or emotional experience. When we reach this ratio (which is above average) on a consistent basis, it has meaningful impact on our health and well-being. So I wanted to invite you to this exercise with me: Throughout your day, each time you notice a negative thought or emotion, first feel, recognize, and accept the experience, and then Complement it by recalling 3 distinct things that you are grateful for, love, or enjoy - in essence bring about 3 positive thoughts/emotional experiences. Let's see what this does for our health and well-being! :-)

Center for Medicinal Cannabis Research

"We leave a trail of digital data breadcrumbs as we go about our days. With access and good apps, we could make sense of this "small data" to help get a clearer picture of our personal health. Deborah Estrin, networked sensing pioneer, Professor of Computer Science at the new Cornell Tech campus in New York City and co-founder of the non-profit startup, Open mHealth, explains at TEDMED 2013."

"We hear a lot about how big data, smart devices, and all the '-omics' (for example, genomics, proteomics, metabolomics, and so forth) are going to transform medicine-and they will. But there is another force that is going to change the way we think about and practice health, and that is our small data-small data derived from our individual digital traces."

Dennis: "Simply Brilliant work". Potential SME

"Years after her son's tragic death, a bereaved mother is on an impassioned mission to un-silence grief in our modern culture that has buried and forgotten the essential art of grieving."

Interview with Grace Chang, CEO of startup Kintsugi, an AI powered voice activated journaling app I've used intermittently for several months. ~ Dennis

Recommended by Sharon Anderson Morri

Recommended by Kabir: "Abstract Importance  Optimism and pessimism can be easily measured and are potentially modifiable mindsets that may be associated with cardiovascular risk and all-cause mortality. Objective  To conduct a meta-analysis and systematic review of the association between optimism and risk for future cardiovascular events and all-cause mortality. Data Sources and Study Selection  PubMed, Scopus, and PsycINFO electronic databases were systematically searched from inception through July 2, 2019, to identify all cohort studies investigating the association between optimism and pessimism and cardiovascular events and/or all-cause mortality by using the following Medical Subject Heading terms: optimism, optimistic explanatory style, pessimism, outcomes, endpoint, mortality, death, cardiovascular events, stroke, coronary artery disease, coronary heart disease, ischemic heart disease, and cardiovascular disease."

Shared by Kabir.

"Why leave all the details behind when you leave the doctor's office, or settle for a printed visit summary that only tells half the story? Abridge records your health care as it happened. You record your health story: - Conversations with doctors and nurses - Discussions about treatment options with family or friends who've been through it before - Personal observations about your symptoms and health "

""Patients shouldn't be bystanders in drug development." - Onno Faber (Founder of RDMD) Four years ago, I started experiencing hearing loss in my left ear. Doctors prescribed me steroids, thinking it was an infection, but the deterioration did not slow down. After numerous failed treatments, a specialist finally ordered an MRI, whereupon he discovered a large tumor on my left hearing nerve. Months later, another tumor was discovered in my right hearing nerve, and another on my spine. I was diagnosed with a rare genetic disease called NF2 (Neurofibromatosis Type 2), a disease that affects only 1 in 30,000 people. It completely changed my perspective. All my life, I've been a technology entrepreneur, beginning with a tech company I started in high school. I'm now applying everything I've learned throughout my career to build RDMD, where we're helping to accelerate treatments for patients with rare disease. Our mission is ambitious, but I can't imagine working on anything more important than this. - Onno"

It's hard to tell a complex story. At appointments, you feel pressured to remember what happened and tell your story in the right order. The details are often trapped in old medical records. Especially when visiting a new doctor, it's challenging to tell your whole life story.