PHE - Resources

"our Choices and Information Sharing Smart Patients gives you important choices about controlling your personal information - whom you let see it, how much, and when. We encourage you to make these choices thoughtfully. Your choices include: Whether you want to browse the website anonymously or create an account and provide us your personal information; Whether you want to join Community Discussion relating to a particular condition; How much health or other personal information you want to share with other patients and caregivers through Community Discussion; Whether you want to participate in surveys we may offer from time to time. The nature of the survey and the form in which the results will be disclosed will be explained to you in advance; Whether you want to participate in any other opportunity we may offer to share your health information with others. For example, if we think you have written something in a Community Discussion that would be particularly helpful to others facing the same condition, we may invite you to post an excerpt from your comments on our public website. Any such opportunity would be clearly explained to you in advance, and whether you decide to share your information would be entirely up to you; Discontinuing active participation or closing your account at any time."

Online community

"Every patient has a story Medicine used to be a one-size fits all model. Disease X meant treatment Y. Doctors made decisions and patients listened.  Clinical trials were our only data source. But those days are over. Medicine has gotten personal.   Today, we know  that every patient has a unique medical story. The best care requires knowing those stories and the next generation of medical discovery requires compiling those stories into structured data sets.   That's why PicnicHealth works directly with patients to gather and manage complete, up-to-date medical records. That's also why with our PicnicAI platform, we go beyond serving patients directly, and partner with the most innovative Life Sciences companies to sponsor PicnicHealth accounts for groups of research volunteers. Only by putting patients in control of their own data will we move beyond fragmented, unstructured medical records for both individual patient benefit today and for the opportunity to meaningfully contribute to tomorrow's medicine."

"Precise. Personalized. Prevention. Express your best DNA - the power to impact genetic expression is in your hands. Epigenetics is the study of how lifestyle & environment influence the expression of your genes." OUR MISSION is to empower and inspire providers and patients in optimizing genetic potential through precise, personalized protocols that positively impact patients' health and future generations.

"Optimize for Time, Cost, Risk, and Patient Centricity Think of Trials.ai as the best second opinion you've ever had. The result is an optimized trial that ultimately enables a new treatment to reach patients faster- all through the lens of time, cost, and patient centricity powered by our Patient Burden Index™. ‍ Our system also looks for potential pitfalls that might need to be flagged and adjusted. Get feedback about how each decision you make affects:"

"The Four Agreements are: Be Impeccable With Your Word. Don't Take Anything Personally. Don't Make Assumptions. Always Do Your Best."

Koolulam mass singing event at Tower of David Museum joins disparate voices in a show of unity coinciding with the Muslim holiday of Eid al-Fitr.

"Intermittent fasting Metabolic switching and different forms of fasting." Resource suggested by Vicky Newman

"shows how people can rewrite the toxic stories they tell themselves. The film reveals how individuals battling addiction, trauma, and depression can change their stories and transcend their pain."

"The Genomic Kitchen combines genomics, nutrition and culinary skills so you can leverage the power of your genes with food-for a lifetime of great health. The Genomic Kitchen is a system of cooking and eating that directly connects the food you eat with the behavior of your genes. Beyond determining the color of your eyes, genes play an active role throughout life, converting the food you eat into the biochemical reactions that keep you living, breathing and growing"

Recommended by Deaunne - "A 25 YEAR JOURNEY BEGINS In 1992, the jeep Richard Hanbury was driving was forced to crash off a bridge in Yemen. He was pronounced clinically dead for 8 minutes and then in a coma for 6 weeks. After waking up, he spent the next 14 months in the hospital.  The doctors gave Richard five years to live due to the extreme chronic nerve damage pain. After a lightbulb moment while watching a film in hospital, he began the journey to save his life. To produce the most lasting pain relief, he experimented with the different neuromodulation patterns and bio-metric sensors which normalized how his brain processed pain signals. Since 1993, Richard Hanbury has been pain-free and has tested his technology with the British Special Air Service, U.S. Air Force, Richard Branson Virgin Challenger flights, and the first Solar Impulse flight around the world."

A large portion of the population is involved in providing unpaid care for a family member. However, not much is known about what caregivers are doing on a daily basis, what services and resources they use, and how they balance caregiving with work and personal life. Researchers at the MIT AgeLab has conducted an exploratory study to learn more about caregivers and the caregiving experience. The research process and results are presented in this website.

"We Design for Good Design thinking is in our genes. For decades, IDEO has pioneered the human-centered design approach to solving complex problems.  In 2010, IDEO asked-how might we open up our method, enabling people everywhere to spark innovation where it's needed most? Our answer: OpenIDEO."

" A memorial service is scheduled for 3:00 p.m. on March 15 at Beyster Auditorium on the UCSD campus. "

A message from Sharon: Please support Project Apollo Team as they "Ride Out Lyme to raise funds for Lyme research & to support patients! The 2nd annual event, we raised $10,000 last year. The money is split between BAL to support research and ROL for grants to patients over the age of 26 with financial need. We hope to earmark money raised by ROL La Jolla for San Diego patients in 2021, but this year the money is open to anyone in the US. The mission of Bay Area Lyme "to make Lyme disease easy to diagnose and simple to cure" and we plan to submit a "Measured Lyme" research proposal from Project Apollo in the coming year. Sharon, Mike and Meg will ride as part of the Project Apollo team. Others are welcome! We would love your support as a rider or with donations! To donate to Team Project Apollo visit https://rideoutlyme.salsalabs.org/lajolla2020/t/projectapollo/index.html Let's empower people to realize optimal health!

"What is disulfiram and why is it sparking excitement in Lyme community?"

"FasterCures is an action tank that works to speed and improve the medical research system. 10,000 diseases. 500 treatments. We have work to do."

"BUILDING A FASTER CURE TO EB. By fixing a single mutation, we can change the lives of many. Join us on our venture into cures, your investment will be transformational." Epidermolysis Bullosa is a family of rare genetic disorders that affect the body's largest organ: the skin. Individuals with EB lack critical proteins that bind the skin's two layers together. Without these proteins, the skin tears apart, blisters, and shears off leading to severe pain, disfigurement, and wounds that may never heal.

"CREATE ON YOUR OWN TERMS Start a membership business to develop a direct relationship with your biggest fans and generate predictable, recurring revenue from your creative work."