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Dennis OConnor

[CSA Webinar] Approaching Informed Consent in Citizen Science: Legal and Ethical Issues - 1 views

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    "  Presented by the Law and Policy Working Group and Ethics Working Group Date: Friday, November 22, 2019, from 1:00 PM to 2:15 PM EST Presented by the Law and Policy Working Group and Ethics Working Group Date: Friday, November 22, 2019, from 1:00 PM to 2:15 PM EST"
Dennis OConnor

Meet Our Clinicians - The Resilient Health Austin - 0 views

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    "Our Co-Founder and Medical Director, Dr. Sharon Hausman-Cohen, received both her master's degree and medical degree from Harvard Medical School. She is board-certified in Family Medicine, a Fellow of the American Board of Integrative and Holistic Medicine, and board-certified in Integrative Medicine through the American Board of Physician Specialties.*  She has been practicing Full Spectrum Family Medicine and Integrative Medicine for more than 20 years."
Dennis OConnor

(The Genomics of Obesity with Sharon Hausman-Cohen, MD - YouTube - 0 views

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    American Nutrition Association The Genomics of Obesity Sharon Hausman-Cohen, MD The modernization of our society has contributed to higher rates of obesity through an environment that promotes increased caloric intake and decreased physical activity. However, recent studies suggest that genetics may contribute to 40-70% of obesity with the discovery of more than 50 genes that are strongly associated with obesity. Changes in the environment have significantly increased obesity rates over the last 20 years, and the presence or absence of genetic factors can protect us from or predispose us to obesity in conjunction with diet and lifestyle factors that support healthy weight. In this webinar, Dr. Hausman-Cohen will * Describe how the leptin pathway is interrelated to the functions of genes in the hypothalamus, as well as how inflammation, fat absorption and insulin can contribute to obesity. * Discuss how specific food intake can be linked to obesity risk and how weight loss can be individualized based on a patient's genomics. * Attain practical ways of discussing various obesity interventions and patterns with patients - whether or not practitioners have access to patient genomic data. Category"
Dennis OConnor

Qualifying and quantifying the precision medicine rhetoric - 0 views

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    Background With the rise of precision medicine efforts worldwide, our study objective was to describe and map the emerging precision medicine landscape. A Google search was conducted between June 19, 2017 to July 20, 2017 to examine how "precision medicine" and its analogous terminology were used to describe precision medicine efforts. Resulting web-pages were reviewed for geographic location, data type(s), program aim(s), sample size, duration, and the key search terms used and recorded in a database. Descriptive statistics were applied to quantify terminology used to describe specific precision medicine efforts. Qualitative data were analyzed for content and patterns.
Dennis OConnor

Bizarre New Quantum Research: Reality Itself May Be Subjective - 0 views

  • “Schrödinger’s cat” thought experiment.
  • aim was to scientifically prove that measurements in quantum mechanics are actually subjective to a particular observer.
  • Eventually, we succeeded in showing that quantum mechanics might indeed be incompatible with the assumption of objective facts — we violated the inequality!”
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  • quantum observers may indeed be entitled to their own facts
  • these are all deeply philosophical questions about the fundamental nature of reality
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    "Researchers are making a counter-intuitive claim: reality itself may be subjective, thanks to quantum weirdness on a microscopic scale."
Dennis OConnor

Risks and remedies for artificial intelligence in health care - 0 views

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    "A rapidly entering health care and serving major roles, from automating drudgery and routine tasks in medical practice to managing patients and medical resources. As developers create AI systems to take on these tasks, several risks and challenges emerge, including the risk of injuries to patients from AI system errors, the risk to patient privacy of data acquisition and AI inference, and more. Potential solutions are complex but involve investment in infrastructure for high-quality, representative data; collaborative oversight by both the Food and Drug Administration and other health-care actors; and changes to medical education that will prepare providers for shifting roles in an evolving system."
Dennis OConnor

Focus on cardiometabolic disease - 0 views

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    "Nature Medicine and Nature Metabolism present a Focus on the global burden of cardiometabolic diseases. The articles span topics from the basic mechanisms regulating metabolic and cardiovascular functions to clinical practice and the societal impact of these diseases globally."
Dennis OConnor

The Design Lab - UC San Diego - 0 views

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    he UC San Diego Design Lab works on major societal issues, such as large-scale education, automation, healthcare, visualization of complex phenomena and data, social interactions, citizen science, and the ethical issues that are of ever-increasing importance.
Dennis OConnor

The Digital Revolution: The Potential Promise and Ethical Perils in Research - 0 views

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    Camille Nebeker* 11/13
Dennis OConnor

I Tried to Get My DNA Back From 23andMe. Here's What Happened. - 0 views

  • I did want to find out what exactly happens to someone’s DNA when they send it to one of these companies, and more importantly, if getting a sample back from them is possible.
  • DNA testing isn’t an exact science
  • I wanted to understand what was happening with my actual genetic information.
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  • I had chosen to “biobank” my sample in case I desired further testing,
  • my DNA has been sold to them if I consented to take part in their research
  • Winston says that when it comes to arbitration, 23andMe goes a bit further than other companies in that there’s a “fee-shifting provision,”
  • basically all of these companies work with pharmaceutical companies in one way or another
  • one of the concerns about 23andMe, as well as other DNA testing services like Ancestry and My Heritage, is that they’re not the ones directly processing your sample.
  • they’re creating a mass database of information that they can now monetize by selling it to pharmaceutical companies
  • “Clearly, their goal is to acquire this information for medical and pharmaceutical purposes.”
  • While they do send aggregated data, there have been cases where individual data has proven to be useful to big companies.
  • if they receive an actual warrant, he doesn’t see how they could refuse
  • While life insurance companies can’t get that data yet, Winston says that they can ask if you’ve taken any such test, which might tell them if you’re predisposed to breast cancer or something like that.
  • their terms of service, also known as their verbal chloroform.
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    "I want it like I never dealt with 23andMe, which, as it turns out, is pretty much impossible - at least for the next decade."
Dennis OConnor

Why we shouldn't have a self-help movement - Lynne McTaggart - 0 views

  • Among the pleasure seekers, the psychologists were amazed to discover high levels of inflammation, considered a marker for degenerative illnesses, and lower levels of gene expression involved in antibody synthesis, the body’s response to outside attack.
  • Those whose lives were not as affluent or stress-free but were purposeful and filled with meaning, on the other hand, had low inflammatory markers and a down regulation of stress-related gene expression, both indicative of rude good health.
  • hoosing a life of meaning over one just chasing pleasure is undeniably better for your health.
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  • “making a connection
  • “a sense of purpose.”
  • The key to a long and healthy life is living a life that concerns itself with a meaning beyond satisfying the needs of number one.
  • The quickest route to rewriting your own life’s script was simply reaching out to someone else.
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    "The unhealthy effects of the good life"
Dennis OConnor

Chronic Pain Eased With Meditation And Lower Doses Of Opioids : Shots - Health News : NPR - 0 views

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    "To deal with chronic pain, Pamela Bobb's morning routine now includes stretching and meditation at home in Fairfield Glade, Tenn. Bobb says this mind-body awareness intervention has greatly reduced the amount of painkiller she needs. Jessica Tezak for NPR" ~ 6 minute listen
michaelkurisu

Root Cause Tracker - 3 views

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    Root cause tracker for health
Dennis OConnor

Sharon F. Terry is President and CEO of Genetic Alliance - 0 views

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    President and Chief Executive Officer sterry (AT) geneticalliance (DOT) org Biographical Sketch Sharon F. Terry is President and CEO of Genetic Alliance, an enterprise engaging individuals, families and communities to transform health. Genetic Alliance works to provide programs, products and tools for ordinary people to take charge of their health and to further biomedical research.
Dennis OConnor

Why we need a small data paradigm | BMC Medicine | Full Text - 0 views

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    "There is great interest in and excitement about the concept of personalized or precision medicine and, in particular, advancing this vision via various 'big data' efforts. While these methods are necessary, they are insufficient to achieve the full personalized medicine promise. A rigorous, complementary 'small data' paradigm that can function both autonomously from and in collaboration with big data is also needed. By 'small data' we build on Estrin's formulation and refer to the rigorous use of data by and for a specific N-of-1 unit (i.e., a single person, clinic, hospital, healthcare system, community, city, etc.) to facilitate improved individual-level description, prediction and, ultimately, control for that specific unit."
Dennis OConnor

Design and Implementation of Participant-Led Research - Quantified Self - 0 views

  • THE QUANTIFIED SELF is about making personally relevant discoveries using our own self-collected data. We call this practice everyday science, a name that emphasizes its nonprofessional character. Lately we’ve begun organizing small group projects that show how collaboration can make individual projects easier. Sometimes, joining forces with others who share our question can make it possible to create both personal and generalizable health knowledge. Following the scholar Effy Vayena, we use the term “participant-led research” (PLR) to describe this approach.
  • PLR
    • Dennis OConnor
       
      Apollo / Chi gong? Is this our PLR.? Mainly n=1. No collaboration on a mutual research project.
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    THE QUANTIFIED SELF is about making personally relevant discoveries using our own self-collected data. We call this practice everyday science, a name that emphasizes its nonprofessional character. Lately we've begun organizing small group projects that show how collaboration can make individual projects easier. Sometimes, joining forces with others who share our question can make it possible to create both personal and generalizable health knowledge. Following the scholar Effy Vayena, we use the term "participant-led research" (PLR) to describe this approach.
Dennis OConnor

The 17th annual FiRe Conference - 0 views

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    ""The best technology conference in the world." - The Economist REGISTER NOWThe 18th annual Future in Review Conference Oct. 6-9, 2020 - The Lodge at Torrey Pines, La Jolla, CA  A Strategic News Service Presentation"
Dennis OConnor

Empowered Patient Podcast: Overcoming Fear of Aging with Heidi Rataj Documentary Produc... - 1 views

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    "Heidi Rataj is an award-winning documentary producer and director and a caregiver for her mom.  Heidi talks about her own fear of aging and the search for a new narrative for seniors as they age.  While we need to be respectful of all journeys, activating seniors to allow them to accomplish goals is key to a healthier individual and society.  She also points out how digital technology plays a role in coordinating care and enabling people to age in place. @UCSDHealthyAging"
Dennis OConnor

Vicky Newman - a Registered Dietitian Nutritionist (RDN | Mindful Nutrition Solutions - 1 views

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    "I am a Registered Dietitian Nutritionist (RDN) specializing in an integrated and personalized approach to nutrition, health, and healing. I believe that food not only nourishes the body, but also nurtures the spirit, and is essential for optimal functioning - to be able to live life with exuberance no matter what our age."
Dennis OConnor

ŌURA + Helsinki Design Museum - How did you sleep last night? - 1 views

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    "Want to see your sleep data at the Helsinki Design Museum? ŌURA is proud to be participating in "Enter and Encounter", a joint exhibition by Helsinki Design Museum and the Finnish Association of Designers Ornamo. This unique exhibition celebrates contemporary Finnish design and Finland's centenary anniversary. As part of the exhibition, we are happy to invite 100 active ŌURA users to share their sleep data and participate in the media installation "How did you sleep last night?"."
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