Group items tagged

"Late last week, Carnegie Mellon University (CMU) and Lumen Learning jointly issued a press release announcing their collaboration on an effort to integrate the Lumen-developed RISE analytical framework for curricular materials improvement analysis into the toolkit that Carnegie Mellon announced it will be contributing via open licenses (and unveiling at the Empirical Educator Project (EEP) summit that they are hosting in May)."

"Creating Partnerships, Motivating Individuals, Facilitating Change The Centre for Collaboration, Motivation and Innovation (CCMI) helps individuals and organizations create partnerships that improve health and well-being. We do this by working collaboratively to inspire new ways of thinking about helping relationships, teach practical skills that foster partnerships, and implement strategies for system-wide change."

"This pandemic has been studied more intensely in a shorter amount of time than any other human event. Our globalized world has rapidly generated and shared a vast amount of information about it. It is inevitable that there will be bad as well as good data in that mix. These massive, decentralized, and crowd-sourced data can reliably be converted to life-saving knowledge if tempered by expertise, transparency, rigor, and collaboration. When making your own decisions, read closely, trust carefully, and when in doubt, look to the experts."

"You are not alone. Navigating illness can be isolating, but it doesn't have to be. At Health Story Collaborative, we believe in story sharing for health. We are patient-centered, research-based, and committed to the therapeutic power of storytelling. We strive to create a space where story sharing is valued and honored within the healthcare system. Explore the site, listen to stories and consider crafting and sharing your own. "

THE QUANTIFIED SELF is about making personally relevant discoveries using our own self-collected data. We call this practice everyday science, a name that emphasizes its nonprofessional character. Lately we've begun organizing small group projects that show how collaboration can make individual projects easier. Sometimes, joining forces with others who share our question can make it possible to create both personal and generalizable health knowledge. Following the scholar Effy Vayena, we use the term "participant-led research" (PLR) to describe this approach.

"Empowering patients to have greater agency in, and control over health decisions. A patient's health literacy is their ability to read, understand and use health care information to make informed decisions and modify behaviours that affect their personal healthcare needs. Promoting health literacy among patients creates a more collaborative care environment, one that empowers patients to have greater agency in, and control over, their own care decisions. CCMI's Health Literacy programs introduce participants to concepts that support and emphasize the importance of being able to support patients and communicate clearly so that patients and family members can truly participate in care. Participants will gain an understating of Health Literacy concepts and learn practical skills for engaging with patients to ensure clear and effective communication."

"Collaborative Health Outcomes Information Registry (CHOIR) open source, open standard, and highly flexible platform for a learning healthcare system to optimize care and advance real-world research discovery and innovation"

Open Access. Abstract Introduction: Critical for the diagnosis and treatment of chronic pain is the anatomical distribution of pain. Several body maps allow patients to indicate pain areas on paper; however, each has its limitations. Objectives: To provide a comprehensive body map that can be universally applied across pain conditions, we developed the electronic Collaborative Health Outcomes Information Registry (CHOIR) self-report body map by performing an environmental scan and assessing existing body maps. Methods: After initial validation using a Delphi technique, we compared (1) pain location questionnaire responses of 530 participants with chronic pain with (2) their pain endorsements on the CHOIR body map (CBM) graphic. A subset of participants (n = 278) repeated the survey 1 week later to assess test-retest reliability. Finally, we interviewed a patient cohort from a tertiary pain management clinic (n = 28) to identify reasons for endorsement discordan

App Directory Browse Manage Build Precision Healthcare Ecosystem Your settings have been saved. Browse Apps Google Drive Edit configuration Google Drive Added by Dennis OConnor on August 31st, 2018 * Google Drive lets you store files securely online, access them from anywhere, and collaborate with others. Add the Google Drive app to create Google Docs, import any type of file from Google Drive, and get notifications on new comments, files, and access requests - all without leaving your conversations in Slack. Authentication The Google Drive integration is built in for your workspace, but it must be configured for each individual member who wants to import Google Drive files. Authenticated as: askus@precisionhealthcareecosystem.org Usage Guide Use Google Drive within Slack to: Share and manage access to your files - either to view, edit, or leave comments - from within Slack. Get updates in Slack on changes in Drive, like comments, access requests, and new files shared with you. Reply directly to comments from within Slack and have them posted to the file. Continue the conversation with any additional comments in Google Drive going straight into that Slack thread. Find your files quickly, even if you don't remember their name, by searching directly in Slack. Slack automatically indexes the contents of any Google Drive file you share so you can find when you need it. Create new Google Docs, Slides, and Sheets directly from Slack by clicking the "+" button to the left of the Slack message box. Import an existing file from Google Drive directly from Slack by clicking the "+" button or pasting a link. You'll see a preview of the file in Slack. Customize Name Choose the name that this integration will post as. Using Slack Product Enterprise Pricing Support Slack Guides App Directory API Slack Jobs Customers Developers Events Blog Podcast Slack Sh

"Learn more Click here to subscribe to the CTRI News and Funding Opportunities monthly newsletter. Learn more   Director's Message I am pleased to announce the availability of the ACTRI Virtual Research Desktop (VRD) for UC San Diego Health research scientists and staff. The service is a collaboration between ACTRI and UC San Diego Health System Information Services (IS). The VRD is a HIPAA-compliant virtual desktop that operates in a secure private cloud server environment managed by the ACTRI and housed in a UC San Diego data center. Read more from Director Gary S. Firestein, MD"

"New Approaches to Autoimmune Diseases Exploring the collaboration between clinical, research and pharmaceutical perspectives and the impact for the patient."

"Atlas of Caregiving's mission is to catalyze a transformative change for family caregiving through innovative research, practical solutions, and rich collaboration. Atlas CareMaps help you better understand and strengthen your care ecosystem. LEARN MORE"

"David Fajgenbaum, MD, MBA, MSc, is the co-founder and Executive Director of the Castleman Disease Collaborative Network (CDCN) and one of the youngest individuals to be appointed to the faculty at Penn Medicine, where he is an Assistant Professor of Medicine in Translational Medicine & Human Genetics, Founding Director of the Center for Study & Treatment of Castleman & inflammatory Lymphadenopathies (CSTL). An NIH-funded physician-scientist, he has dedicated his life to discovering new treatments and cures for deadly disorders like idiopathic multicentric Castleman disease (iMCD), which he was diagnosed with during medical school. As common as ALS and more deadly than lymphoma, iMCD involves the immune system attacking and shutting down the body's vital organs such as the liver, kidneys, bone marrow, and heart. After spending months hospitalized in critical condition, having his last rites read, and having four deadly relapses, he is now in his longest remission ever thanks to a treatment that he identified in the lab."

"The story of Scientific Learning begins with four research scientists: Michael Merzenich, William Jenkins, Paula Tallal, and Steven Miller. When the work of these four scientists intersected, their collaboration proved that the underlying cognitive processes that influence speech and language problems could be identified-and permanently improved. These findings led to the development of the Fast ForWord program, a groundbreaking computer-based reading intervention. The scientists then founded Scientific Learning to bring their program out of the lab and into the lives of struggling readers."

Keywords: neuroscience reading

Enlivening Edge is an international community of collaborators and Partners drawn together by a shared purpose-to nourish the growing ecosystem of Next-Stage (Teal) organizations. We are interwoven in a global vanguard of people and organizations transforming their workplaces for the benefit of all.

Hopefully this related collaborative health systems venture is also the real deal, and will start returning population-level benefits soon.

"Otsuka Pharmaceutical collaborates actively with leading-edge academia and venture companies, in addition to using conventional drug discovery methods. This open sharing of ideas enables us to develop unique compounds."

THE WELL is your complete ecosystem for wellness. We bring together Western doctors and Eastern healers to collaborate, developing online content and personalized products and experiences that empower our community to take greater agency for their health. At THE WELL, your health is integrated, proactive and personalized, leading to a more balanced you. Mike: THURS - breakfast at integrative wellness gym/spa club called THE WELL opening in Midtown. Met COO and marketing officers.

"There is great interest in and excitement about the concept of personalized or precision medicine and, in particular, advancing this vision via various 'big data' efforts. While these methods are necessary, they are insufficient to achieve the full personalized medicine promise. A rigorous, complementary 'small data' paradigm that can function both autonomously from and in collaboration with big data is also needed. By 'small data' we build on Estrin's formulation and refer to the rigorous use of data by and for a specific N-of-1 unit (i.e., a single person, clinic, hospital, healthcare system, community, city, etc.) to facilitate improved individual-level description, prediction and, ultimately, control for that specific unit."

"AMIA 2020 VIRTUAL ANNUAL SYMPOSIUM The Annual Symposium builds on more than 40 years of sharing pioneering research and insights for leveraging information to improve human health. Topics of interest span the spectrum from deciphering the underpinning phenomena of disease, to managing information and communications for improving patient care, to tracking the health of populations. The AMIA 2020 Annual Symposium showcases the latest innovations from the community of biomedical informatics researchers and practitioners. The AMIA 2020 Virtual Annual Symposium brings together informatics professionals from diverse backgrounds committed to transforming health through informatics. From the leading experts in the field, to the students eager to get started, the AMIA 2020 Virtual Annual Symposium provides an opportunity to learn and to grow professionally, to network, and to flesh out ideas with colleagues and start new collaborations."