Skip to main content

Home/ PHE - Resources/ Group items tagged resources

Rss Feed Group items tagged

Dennis OConnor

Patient Information | Center for Applied Genomics & Precision Medicine - 1 views

  •  
    Recommended by: DeAunne Denmark, MD, PhD "It's important for the public to be aware of what's available to them in the world of genomics and precision medicine. Various resources are available that provide general and disease-specific information about genomics and precision medicine. A list of some resources available to the public is provided below, but additional resources are likely available through your health provider or other groups such as the US National Institutes of Health."
  •  
    The resource index in this article is incredible.
Dennis OConnor

A Partial Map of Black-led Black Liberation Organizing - 0 views

  •  
    Recommended by Sheri-Lynn Kurisu "This is a part of Resource Generation's It Starts Today! campaign, moving $1,000,000 to Black-Led, Black Liberation Organizing between the day Michael Brown was killed and what would have been his 19th birthday - May 20th, 2015. We aim to support organizing that confronts and dismantles anti-Black violence, whether committed by private citizens or by law enforcement, throughout the US. Resource Generation is a national membership organization organizing young people with wealth toward the equitable distribution of land, wealth and power. Learn more about Resource Generation and learn how to become a member by visiting www.resourcegeneration.org."
Dennis OConnor

Barbarians at the Gate: Consumer-Driven Health Data Commons and the Transformation of C... - 0 views

  •  
    "Current research and privacy regulations, which were designed for clinical research and for small-data studies of the past, cannot support creation of the vast data resources that 21st-century science needs. These regulations enshrine data-holders (hospitals, insurers, and other entities that store people's data) as the prime movers in assembling large-scale data resources for scientific use and rely on mechanisms - such as de-identification of data and waivers of individual consent - that are unworkable going forward. They shower individuals with unwanted, paternalistic protections - such as barriers to access to their own research results - while denying them a voice in what will be done with their data."
Dennis OConnor

Carnegie Mellon and Lumen Learning Announce EEP-Relevant Collaboration - - 0 views

  • pen Educational Resources (OER) because that's what they do, but there's nothing about RISE that only works with OER. As long as you have the right to modify the curricular materials you are working with—even if that means removing something proprietary and replacing it with something of your own making—then the RISE framework is potentially useful.
  • To achieve this, we propose the Resource Inspection, Selection, and Enhancement (RISE) Framework as a simple framework for using learning analytics to identify open educational resources that are good candidates for improvement efforts.
  • By utilizing this framework, designers can identify resources in their courses that are good candidates for additional improvement efforts.
  • ...14 more annotations...
  • RISE is designed to work with a certain type of common course design, where content and assessment items are both aligned to learning objectives.
  • aligning the course content and assessment questions with specific learning objectives
  • Everybody knows the mantra "correlation is not causation,
  • f we want educators to understand both the value and the limitations of working with data, then they need to have absolute clarity and consistency regarding what those analytics widgets are telling them.
  • This isn't about technology. It's about literacy.
  • They don't need to understand how to do the math, but they do need to understand what the math is doing
  • cloud-based educational research collaboration platform.
  • Lumen Learning is contributing the statistical programming package for RISE that will be imported into Tigris.
  • now they also have an ecosystem
  • CMU is making massive declaration to the world about their seriousness regarding research collaboration.
  • Expect universities to begin adopting LearnSphere
  • With this kind of an ecosystem
  • learning outcome alignment of both content and assessment is critical to enabling the proposed framework.
  • Everybody who teaches with this kind of course design should regularly tune those courses in this way, as should everybody who builds courses that are designed this way.
  •  
    "Late last week, Carnegie Mellon University (CMU) and Lumen Learning jointly issued a press release announcing their collaboration on an effort to integrate the Lumen-developed RISE analytical framework for curricular materials improvement analysis into the toolkit that Carnegie Mellon announced it will be contributing via open licenses (and unveiling at the Empirical Educator Project (EEP) summit that they are hosting in May)."
Dennis OConnor

Home - XSEDE - 0 views

shared by Dennis OConnor on 23 Aug 19 - No Cached
  •  
    "The Extreme Science and Engineering Discovery Environment (XSEDE) is a single virtual system that scientists can use to interactively share computing resources, data and expertise. People around the world use these resources and services - things like supercomputers, collections of data and new tools - to improve our planet."
Dennis OConnor

LearnSphere - 0 views

  • LearnSphere integrates existing and new educational data and analysis repositories to offer the world's largest learning analytics infrastructure with methods, linked data, and portal access to relevant resources.
    • Dennis OConnor
       
      Query: Does UCSD use LearnSphere?
  •  
    "LearnSphere integrates existing and new educational data and analysis repositories to offer the world's largest learning analytics infrastructure with methods, linked data, and portal access to relevant resources." Stanford is working with the Tigris online workflow authoring tool. Need to explore this tool. No UCSD links?
Dennis OConnor

Free Live Practice Sessions - UCSD Center for Mindfulness - 0 views

  •  
    "Due to the current situation with the coronavirus (COVID-19) evolving rapidly across the United States, our Center, The Sanford Institute, and the Compassion Institute  will work together to provide daily streams and recordings of mindfulness and compassion sessions to provide resources and online support to those affected."
Dennis OConnor

N-OF-1 RESOURCES Guides, Papers, and Posts on N-of-1 - 0 views

  •  
    DeAunne Denmark, MD, PhD - Magnificent resource N-of-1 guide An interactive explainer on what N-of-1 is and it's purpose.
Dennis OConnor

Center for Innovation-Innovate Western University Pomona - 0 views

  •  
    The Center for Innovation is an Internal Service Organization led by Director, Nicholas J. Webb. The Center provides a wide range of resources to Faculty, Students, Alumni and Staff. Our mission is to drive the best innovations in Student Experience Design (SXD), Disruptive and Enterprise Innovation, while concurrently supporting all of our Innovators across the University. Through our partnerships across Industry, Education and Philanthropy our principal mission is to deliver exceptional value to all we serve. Services that we provide include the following:
Dennis OConnor

Home - Science Gateways Community Institute (SGCI) - 0 views

shared by Dennis OConnor on 23 Aug 19 - No Cached
  •  
    "We provide NSF-funded, online and in-person resources and services. Our goal is to facilitate-at little or no cost-the sharing of experiences, technologies, and practices of those working with science gateways."
Dennis OConnor

Lotus | TCM (Traditional Chinese Medicine) Resources for COVID-19 - 0 views

  •  
    Recommended by Erin Raskin John Chen, PhD, Pharm D, OMD, LAc is a very knowledgeable and generous man.
Dennis OConnor

COVID-19 Coronavirus Data & Resources - 1 views

  •  
    Wolfram is offering free access to their data tools for educators and researchers.
Dennis OConnor

Resources - Holacracy - 1 views

  •  
    Take special note of the anchor link to 10 Webinar recordings. The videos cover many aspects of Holacracy that will feed us with timely information.
Dennis OConnor

Don't "Flatten the Curve," stop it! - Joscha Bach - Medium - 1 views

  • What all these diagrams have in common:
  • They have no numbers on the axes.
  • They don’t give you an idea how many cases it takes to overwhelm the medical system, and over how many days the epidemic will play out.
  • ...46 more annotations...
  • They suggest that currently, the medical system can deal with a large fraction (like maybe 2/3, 1/2 or 1/3) of the cases, but if we implement some mitigation measures, we can get the infections per day down to a level we can deal with.
  • They mean to tell you that we can get away without severe lockdowns as we are currently observing them in China and Italy.
  • nstead, we let the infection burn through the entire population, until we have herd immunity (at 40% to 70%), and just space out the infections over a longer timespan.
  • The Curve Is a Lie
  • suggestions are dangerously wrong, and if implemented, will lead to incredible suffering and hardship.
  • Let’s try to understand this by putting some numbers on the axes.
  • California has only 1.8.
  • The US has about 924,100 hospital beds (2.8 per 1000 people)
  • Germany have 8
  • South Korea has 12
  • Based on Chinese data, we can estimate that about 20% of COVID-19 cases are severe and require hospitalization
  • many severe cases will survive if they can be adequately provided for at home
  • by some estimates can be stretched to about a 100,000, and of which about 30,000 may be available
  • mportant is the number of ICU beds
  • oxygen, IVs and isolation
  • About 6% of all cases need a ventilator
  • if hospitals put all existing ventilators to use, we have 160,000 of them
  • CDC has a strategic stockpile of 8900 ventilators
  • number of ventilators as a proximate limit on the medical resources, it means we can take care of up to 170,000 critically ill patients at the same time.
  • Without containment, the virus becomes endemic
  • Let’s assume that 55% of the US population (the middle ground) get infected between March and December, and we are looking at 180 million people.
  • the point of my argument is not that we are doomed, or that 6% of our population has to die, but that we must understand that containment is unavoidable, and should not be postponed, because later containment is going to be less effective and more expensive, and leads to additional deaths.
  • About 20% will develop a severe case and need medical support to survive.
  • Severe cases tend to take about 3–6 weeks to recover
  • 6% may need intubation and/or ventilation
  • Once a person is on the ventilator, it often takes about 4 weeks for them to get out of intensive care again.
  • The “flattening the curve” idea suggests that if we wash our hands and stay at home while being sick aggressively enough, we won’t have to stop the virus from becoming endemic and infecting 40% to 70% of all people, but we can slow the spread of the infection so much that out medical system can deal with the case load. This is how our normally distributed curve looks like when it contains 10.8 million patients, of which no more than 170,000 are ill at the same time:
  • Dampening the infection rate of COVID-19 to a level that is compatible with our medical system means that we would have to spread the epidemic over more than a decade!
  • confident that we will have found effective treatments until the
  • reducing the infectivity of the new corona virus to a manageable level is simply not going to be possible by mitigation, it will require containment.
  • My back-of-the-envelope calculation is not a proper simulation, or a good model of what’s going on either. Don’t cite it as such!
  • Of the 180 million, 80% will be regarded as “mild” cases.
  • Containment works
  • China has demonstrated to us that containment works
  • lockdown of Wuhan did not lead to starvation or riots
  • made it possible to focus more medical resources on the region that needed it most
  • implemented effective containment measures as soon as the first cases emerged.
  • South Korea was tracking its first 30 cases very well, until patient 31 infected over 1000 others on a church congregation.
  • For some reason, Western countries refused to learn the lesson.
  • The US, UK and Germany are not yet at this point: they try to “flatten the curve” by implementing ineffective or half hearted measures that are only meant to slow down the spread of the disease
  • instead of containing it.
  • some countries will stomp out the virus and others will no
  • few months from now
  • almost all travel from red zones into green zones will come to a hal
  • world will turn into red zones and green zones
  • Flattening the curve is not an option for the United States, for the UK or Germany. Don’t tell your friends to flatten the curve. Let’s start containment and stop the curve.
  •  
    "Flattening the curve is not an option for the United States, for the UK or Germany. Don't tell your friends to flatten the curve. Let's start containment and stop the curve." Strong article with data visualizations from a Phd working out of MIT/Harvard.
Dennis OConnor

David Treleaven | Trauma-Sensitive Mindfulness - 0 views

  •  
    Recommended by Jessica Block "My name is David Treleaven. I'm a writer, educator, and trauma professional who teaches people to offer mindfulness in a trauma-sensitive way. Unbeknownst to many, mindfulness meditation can exacerbate symptoms of traumatic stress. Instructed to pay close, sustained attention to their inner-world, people struggling with trauma can experience flashbacks, dysregulation, or dissociation.  On this site, you'll find resources designed to prevent this while leveraging the power of mindfulness towards trauma recovery."
Dennis OConnor

Success in Rare Diseases, Part I: - 0 views

shared by Dennis OConnor on 24 Jan 21 - No Cached
  •  
    Recommended by Tyler Orion: Understanding the Rare Disease Ecosystem "Rare diseases (RDs) are different from more common ones, often presenting special challenges for patients, physicians, caregivers, payers, and pharma companies. Those differences and challenges are mostly a consequence of rarity (of patients, experts, data, resources, etc.) and the typically high disease burden. "
Dennis OConnor

[Hs-medstaff-L] Liaison Lyme IgG_IgM Serology.pdf - 0 views

shared by Dennis OConnor on 24 Jan 21 - No Cached
  •  
    Interesting email thread, initiated by Mike, with additional resources suggested by DeAunne
Dennis OConnor

5 Tips For Being An Ally - YouTube - 0 views

  •  
    Entertaining video. Terrific list of resources in the comments area.
Dennis OConnor

www.WhiteAccomplices.org - 1 views

  • “If you have come here to help me, you’re wasting your time. If you have come because your liberation is bound up with mine, then let us work together.”
  •  
    Recommended by Sheri-Lynn Kurisu "The ideas captured on this website, very much a work in progress, have been developed to support White people to act for racial justice. It draws from ideas and resources developed mostly by Black, Brown and People of Color, and has been edited by Black, Brown, and People of Color.  I recognize that categorizing actions under the labels of Actor, Ally, and Accomplice is an oversimplification, but hopefully this chart challenges all of us White folks to go outside of our comfort zones, take some bigger risks, and make some more significant sacrifices because this is what we've been asked to do by those most impacted by racism, colonialism, patriarchy, white supremacy, xenophobia, and hyper-capitalism. I believe that for real change to occur, we must confront and challenge all people, policies, systems, etc., that maintain privileges and power for White people."
Dennis OConnor

Livpact - Caregiving Reimagined - 0 views

shared by Dennis OConnor on 16 Sep 20 - No Cached
  •  
    "Build a Personal Care Community Livpact helps you organize and connect family, friends, professional support, community services and helpful resources."
1 - 20 of 45 Next › Last »
Showing 20 items per page