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Dennis OConnor

Facebook reportedly collecting user data via hospital websites - 0 views

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    "Facebook has been collecting potentially sensitive health data through a tracker that, until recently, was included in the online scheduling tools of roughly a third of the country's top hospitals, according to a new report from nonprofit investigative newsroom The Markup."
Dennis OConnor

Understanding Medical Research: Your Facebook Friend is Wrong | Coursera - 0 views

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    Recommended by Trish Makowiak: How can you tell if the bold headlines seen on social media are truly touting the next big thing or if the article isn't worth the paper it's printed on? Understanding Medical Studies, will provide you with the tools and skills you need to critically interpret medical studies, and determine for yourself the difference between good and bad science. The course covers study-design, research methods, and statistical interpretation. It also delves into the dark side of medical research by covering fraud, biases, and common misinterpretations of data. Each lesson will highlight case-studies from real-world journal articles. By the end of this course, you'll have the tools you need to determine the trustworthiness of the scientific information you're reading and, of course, whether or not your Facebook friend is wrong. This course was made possible in part by the George M. O'Brien Kidney Center at Yale.
Dennis OConnor

Bartonella Babe - YouTube - 0 views

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    "Hi everyone! My name is Jake Picker and I make "edutainment" videos about bartonellosis, mast cell activation syndrome (MCAS), SIBO, and other related conditions. Unfortunately, I have been suffering with bartonellosis symptoms for over ten years but became debilitated by those symptoms in August of 2018. Almost every single minute that I feel well enough, I spend researching, writing, filming, and editing my videos for Bartonella Babe. The best way to support me is to shop my Bartonella Babe merch at www.teespring.com/stores/bartonella-babe. I have chosen to donate 25% of all proceeds to the Bartonella Project at the North Carolina State University College of Veterinary Medicine. If you are looking for support, please join our Facebook support group called Breaking Down Bartonella. To stay updated with my life, make sure to subscribe and hit the notification bell. Also, follow me on Instagram @bartonella_babe and on Facebook (Bartonella Babe). Thanks Bartonella buddies!"
Dennis OConnor

Master Yuantong Liu - Posts - 0 views

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    Master Liu's Facebook Group.
Dennis OConnor

U.S. Department of Health and Human Services | Facebook - 0 views

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    "Follow this page to share information that can benefit someone you know. The U.S. Department of Health and Human Services (HHS) touches the lives of nearly all Americans from research to food safety, health care, aging and much more."
Dennis OConnor

National Institutes of Health (NIH) | Facebook - 0 views

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    "Follow this page to share information that can benefit someone you know. The U.S. Department of Health and Human Services (HHS) touches the lives of nearly all Americans from research to food safety, health care, aging and much more."
Dennis OConnor

U.S. Food and Drug Administration | Facebook - 0 views

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    "Follow this page to share information that can benefit someone you know. The U.S. Department of Health and Human Services (HHS) touches the lives of nearly all Americans from research to food safety, health care, aging and much more."
Dennis OConnor

CDC Global | Facebook - 0 views

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    "Follow this page to share information that can benefit someone you know. The U.S. Department of Health and Human Services (HHS) touches the lives of nearly all Americans from research to food safety, health care, aging and much more."
Dennis OConnor

Long-Haulers Are Redefining COVID-19 - The Atlantic - 2 views

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    "Without clear information from official sources, many long-haulers have found answers from one another. Support groups on Facebook have thousands of members. One Slack group, founded within a wellness organization called Body Politic, has almost doubled in size since June to more than 7,000 active participants from 25 countries. There are channels for discussing every organ system in the body. There are lists of sympathetic medical providers, and tips for convincing those who aren't listening. Eerily, the group's membership morphs as the pandemic spreads: "When Brazil had a huge spike, we had a massive influx of Brazilian patients," said Nichols, who is an administrator."
Dennis OConnor

CONNECT WITH US: Follow us on Twitter Ornish Spectrum Facebook Ornish Spectrum YouTub... - 0 views

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    " CONNECT WITH US: ABOUT PMRI RESEARCH CONTACT US DONATE Alzheimer's Study Can Lifestyle Changes Reverse Alzheimer's Disease?"
Dennis OConnor

Advice from Dr. Mimi Guarneri - Integrative Medicine - 1 views

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    "Thankfully, there are many things we can do as individuals and communities that may be helpful. It is important to remain calm and think clearly. Remember that our positive attitudes go a long way in protecting health, enriching our daily lives, and supporting the ones we love. Here is a list of things one can do at home to help in these uncertain times:"
Dennis OConnor

Which Covid-19 Data Can You Trust? - 0 views

  • incomplete or incorrect data can also muddy the waters, obscuring important nuances within communities, ignoring important factors such as socioeconomic realities, and creating false senses of panic or safety, not to mention other harms such as needlessly exposing private information.
  • Right now, bad data could produce serious missteps with consequences for millions.
  • Whether you’re a CEO, a consultant, a policymaker, or just someone who is trying to make sense of what’s going on, it’s essential to be able to sort the good data from the misleading — or even misguided.
  • ...24 more annotations...
  • common red flags
  • Data products that are too broad, too specific, or lack context.
  • Public health practitioners and data privacy experts rely on proportionality
  • only use the data that you absolutely need for the intended purpose and no more.
  • Even data at an appropriate spatial resolution must be interpreted with caution — context is key.
  • Simply presenting them, or interpreting them without a proper contextual understanding, could inadvertently lead to imposing or relaxing restrictions on lives and livelihoods, based on incomplete information.
  • The technologies behind the data are unvetted or have limited utility.
  • Both producers and consumers of outputs from these apps must understand where these can fall short.
  • In the absence of a tightly coupled testing and treatment plan, however, these apps risk either providing false reassurance to communities where infectious but asymptomatic individuals can continue to spread disease, or requiring an unreasonably large number of people to quarantine.
  • Some contact-tracing apps follow black-box algorithms, which preclude the global community of scientists from refining them or adopting them elsewhere.
  • These non-transparent, un-validated interventions — which are now being rolled out (or rolled back) in countries such as China, India, Israel and Vietnam — are in direct contravention to the open cross-border collaboration that scientists have adopted to address the Covid-19 pandemic.
  • Models are produced and presented without appropriate expertise.
  • Epidemiological models that can help predict the burden and pattern of spread of Covid-19 rely on a number of parameters that are, as yet, wildly uncertain.
  • n the absence of reliable virological testing data, we cannot fit models accurately, or know confidently what the future of this epidemic will look like
  • and yet numbers are being presented to governments and the public with the appearance of certainty
  • Read Carefully and Trust Cautiously
  • Transparency: Look for how the data, technology, or recommendations are presented.
  • Thoughtfulness: Look for signs of hubris.
  • Example: Telenor
  • Expertise: Look for the professionals. Examine the credentials of those providing and processing the data.
  • Open Platforms: Look for the collaborators.
  • technology companies like Camber Systems, Cubeiq and Facebook have allowed scientists to examine their data,
  • The Covid-19 Mobility Data Network, of which we are part, comprises a voluntary collaboration of epidemiologists from around the world analyzes aggregated data from technology companies to provide daily insights to city and state officials from California to Dhaka, Bangladesh
  • This pandemic has been studied more intensely in a shorter amount of time than any other human event.
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    "This pandemic has been studied more intensely in a shorter amount of time than any other human event. Our globalized world has rapidly generated and shared a vast amount of information about it. It is inevitable that there will be bad as well as good data in that mix. These massive, decentralized, and crowd-sourced data can reliably be converted to life-saving knowledge if tempered by expertise, transparency, rigor, and collaboration. When making your own decisions, read closely, trust carefully, and when in doubt, look to the experts."
Dennis OConnor

Patient advocacy groups and innovators need to partner - STAT - 0 views

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    "Many believe that for people living with spinal cord injuries, "recovery" is defined first and foremost as regaining the ability to walk. But the repercussions of spinal cord injury go beyond that and recovery has different degrees. Many of those living with spinal cord injuries hope to normalize their blood pressure, or regain bowel, bladder and other affected bodily functions, for a more self-reliant, healthier life. For most, the top priority is recovery of use of a hand and arm, which translates into meaningful, quality-of-life improvements: being able to independently eat, dress, work, and perform other daily activities."
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