Skip to main content

Home/ PHE - Resources/ Group items tagged disparity

Rss Feed Group items tagged

Dennis OConnor

A more practical guide to incorporating health equity domains in implementation determi... - 0 views

  •  
    Suggested by Gina Soloperta Abstract Background: Due to striking disparities in the implementation of healthcare innovations, it is imperative that researchers and practitioners can meaningfully use implementation determinant frameworks to understand why disparities exist in access, receipt, use, quality, or outcomes of healthcare. Our prior work documented and piloted the first published adaptation of an existing implementation determinant framework with health equity domains to create the Health Equity Implementation Framework. We recommended integrating these three health equity domains to existing implementation determinant frameworks: (1) culturally relevant factors of recipients, (2) clinical encounter or patient-provider interaction, and (3) societal context (including but not limited to social determinants of health). This framework was developed for healthcare and clinical practice settings. Some implementation teams have begun using the Health Equity Implementation Framework in their evaluations and asked for more guidance. Methods: We completed a consensus process with our authorship team to clarify steps to incorporate a health equity lens into an implementation determinant framework. Results: We describe steps to integrate health equity domains into implementation determinant frameworks for implementation research and practice. For each step, we compiled examples or practical tools to assist implementation researchers and practitioners in applying those steps. For each domain, we compiled definitions with supporting literature, showcased an illustrative example, and suggested sample quantitative and qualitative measures. Conclusion: Incorporating health equity domains within implementation determinant frameworks may optimize the scientific yield and equity of implementation efforts by assessing and ideally addressing implementation and equity barriers simultaneously. These practical guidance and tools provided can assist implementation rese
Dennis OConnor

COVID-19 Racial Health Disparities Stress Patient Trust Pitfalls - 0 views

  •  
    Recommended by DeAunne Denmark MD Phd. "New data showed black patients have less trust in COVID-19 mitigation, underscoring decades of racial health disparities and limited patient trust."
Dennis OConnor

Intersectionality, explained: meet Kimberlé Crenshaw, who coined the term - Vox - 1 views

  • The current debate over intersectionality is really three debates: one based on what academics like Crenshaw actually mean by the term, one based on how activists seeking to eliminate disparities between groups have interpreted the term, and a third on how some conservatives are responding to its use by those activists.
  • the American legal and socioeconomic order was largely built on racism.
  • Crenshaw argued that the court’s narrow view of discrimination was a prime example of the “conceptual limitations of ... single-issue analyses” regarding how the law considers both racism and sexism.
  • ...14 more annotations...
  • Judge Harris Wangelin ruled against the plaintiffs, writing in part that “black women” could not be considered a separate, protected class within the law, or else it would risk opening a “Pandora’s box” of minorities who would demand to be heard in the la
  • Crenshaw’s theory went mainstream, arriving in the Oxford English Dictionary in 2015 and gaining widespread attention during the 2017 Women’s March,
  • “What was puzzling is that usually with ideas that people take seriously, they actually try to master them, or at least try to read the sources that they are citing for the proposition. Often, that doesn’t happen with intersectionality
  • Beginning in 2015 and escalating ever since, the conservative response to intersectionality has ranged from mild amusement to outright horror.
  • When you talk to conservatives about the term itself, however, they’re more measured. They say the concept of intersectionality — the idea that people experience discrimination differently depending on their overlapping identities — isn’t the problem.
  • the idea is more or less indisputable.
  • What many conservatives object to is not the term but its application on college campuses and beyond.
  • “Where the fight begins,” French said, “is when intersectionality moves from descriptive to prescriptive.”
  • “There have always been people, from the very beginning of the civil rights movement, who had denounced the creation of equality rights on the grounds that it takes something away from them.”
  • To Crenshaw, the most common critiques of intersectionality — that the theory represents a “new caste system” — are actually affirmations of the theory’s fundamental truth: that individuals have individual identities that intersect in ways that impact how they are viewed, understood, and treated.
  • But Crenshaw said that contrary to her critics’ objections, intersectionality isn’t “an effort to create the world in an inverted image of what it is now.” Rather, she said, the point of intersectionality is to make room “for more advocacy and remedial practices” to create a more egalitarian system.
  • She wants to get rid of those existing power dynamics altogether — changing the very structures that undergird our politics, law, and culture in order to level the playing field.
  • efforts to eliminate gender disparities would require examining how women of color experience gender bias differently from white women (and how nonwhite men do too, compared to white men).
  • Once we acknowledge the role of race and racism, what do we do about it? And who should be responsible for addressing racism, anyway?
  •  
    "The current debate over intersectionality is really three debates: one based on what academics like Crenshaw actually mean by the term, one based on how activists seeking to eliminate disparities between groups have interpreted the term, and a third on how some conservatives are responding to its use by those activists."
Dennis OConnor

DailyGood: One Love - 0 views

  •  
    Koolulam mass singing event at Tower of David Museum joins disparate voices in a show of unity coinciding with the Muslim holiday of Eid al-Fitr.
Dennis OConnor

It is undeniable: Racism is a public health crisis - Healthcare Anchor Network - 0 views

  •  
    "39 health systems in 45 states and Washington, DC have committed to addressing racism and the public health disparities caused by racism."
Dennis OConnor

Mental Health in the Age of Black Lives Matter - Kintsugi - 0 views

  •  
    "Accessibility and systemic discrimination bars many from being able to get the help they need. Mental health disparities that affect the black community include inequitable access, diagnosis, and treatment, and overall, more severe symptoms. Among adults with the same diagnosed mental health or addiction issue, 37.6% of White patients received treatment, while only 25% of African American patients did. Fighting for racial equality means fighting for equality in mental health care, and supporting black lives means supporting black mental health and recognizing racial trauma."
Dennis OConnor

The Need for a Serious Illness Digital Ecosystem (SIDE) to Improve Outcomes for Patient... - 0 views

  •  
    Recommended by DeAunne Denmark MD PhD: Serious Illness Digital Ecosystem (SIDE) is the intentional aggregation of disparate digital and mobile health technologies into a single system that connects all of the actors involved in serious illness patient care. The 5 pillars of a SIDE are: Identification, Education, Engagement, Service Delivery, and Remote Monitoring. To me, this is just a preliminary and pragmatic first step(s). It also misses or misrepresents large care gaps, e.g. framing as the need for education/engagement of patients vs directing to physicians/providers. That said, I think there are still some useful constructs for us here for digital infrastructure.
Dennis OConnor

The epic battle against coronavirus misinformation and conspiracy theories - 0 views

  •  
    Recommended by Tyler Orion: "For researchers who track how information spreads, COVID-19 is an experimental subject like no other. "This is an opportunity to see how the whole world pays attention to a topic," says Renée diResta at the Stanford Internet Observatory in California. She and many others have been scrambling to track and analyse the disparate falsehoods floating around - both 'misinformation', which is wrong but not deliberately misleading, and 'disinformation', which refers to organized falsehoods that are intended to deceive. "
Dennis OConnor

Empowering patients and reducing inequities: is there potential in sharing clinical not... - 0 views

  • engages them actively in their care, improves their sense of control over their health and enhances safety.
  • older, less educated, non-white or whose first language is not English report even greater benefits than do their counterparts
  • we suggest that open notes may, over time, prove important in the care of patients who are at risk of experiencing healthcare disparities.
  • ...16 more annotations...
  • in the USA, the likelihood of receiving an access code to activate health portals is significantly lower for minorities, the uninsured, non-English speakers and older patients.11
  • Research suggests that negative implicit biases can affect the quality of health interactions and are associated with fewer signals of support and empathy towards patients representing some disadvantaged demographic groups, including racial and ethnic minorities, low-income, less educated and older patients.1
  • Open notes might be viewed as extending the visit, potentially thereby elongating and strengthening patient–physician interactions before and after the pressures of the clinical encounter.
  • investigators found that patients who were non-white or less educated reported more benefits than their counterparts:
  • Although some health organisations provide portals in a range of languages, clinical notes are typically offered in one language only.
  • access to open notes appears to help some patients who speak another primary language by allowing them, or a care partner, to read and recall information.
  • 77% (357/462) reported reading their notes as extremely important for remembering their care plan,
  • It is estimated that, on average, patients do not recall about half of the health information communicated during visits, with this figure likely higher among those with lower levels of health literacy.2
  • health literacy is now recognised as a driver of health disparities.
  • By offering patients access to records that document what was discussed during visits, open notes may provide a novel forum for augmenting health literacy among some patients.
  • As one patient noted: “I like my summaries because I can go back and revisit them”.1
  • in a large study of patients who read notes, 38% (8588/22 753) reported sharing them with others, predominantly family members
  • Limitations
  • Open notes are becoming increasingly common, and preliminary data suggest they may hold particular benefits for vulnerable patient populations
  • Second, as preliminary evidence suggests, it is possible that open notes may increase trust between patients and clinicians, reduce transmission of bias and increase patient engagement, especially among vulnerable patient populations
  • co-creation of medical notes holds promise and is currently under investigation
Dennis OConnor

'Patient friction coefficient' can gauge a clinical trial's patient burden - STAT - 0 views

  •  
    Scientists like their insights captured via validated instruments that organize data into quantifiable outputs that can be measured and managed. Patients want to tell stories, share anecdotes, and talk about the qualitative factors that affect their quality of life. These disparate communication preferences have made it difficult for the two groups to engage, or for scientists to translate those qualitative stories into systematic assessments that quantify the burden placed on study volunteers.
Dennis OConnor

UCSD Smarr lab - 0 views

  •  
    "Understanding how life uses time to improve health, education, and the world. Life on Earth is the living embodiment of information's value. Now that individuals generate data across time with digital trails and wearable sensors, we can begin to see how humans evolved to use time to orchestrate their bodies. Modern life often conflicts with natural time by imposing social demands that go against the rhythms of our bodies. The more we learn about time in our lives (and the lives of all organisms), the more informed can be our personal and societal choices about how we use time in this modern context for which we are not so well adapted. Ongoing projects are listed below, but are not exhaustive. While they may seem disparate, they are united in generating examples of the opportunities that incorporating biological time seems to offer across fields and across populations. I encourage any and all to reach out if they are interested in biological time and/or how data can influence your life. Student projects are welcome, as are academic and private collaborations with a goal of sharing information."
Dennis OConnor

ASMscience | Building Research Integrity and Capacity (BRIC): An Educational Initiative... - 0 views

  •  
    "While citizen science is gaining attention of late, for those of us involved in community-based public health research, community/citizen involvement in research has steadily increased over the past 50 years. Community Health Workers (CHWs), also known as Promotores de Salud in the Latino community, are critical to reaching underserved populations, where health disparities are more prevalent. CHWs/Promotores provide health education and services and may also assist with the development and implementation of community- and clinic-based research studies. Recognizing that CHWs typically have no formal academic training in research design or methods, and considering that rigor in research is critical to obtaining meaningful results, we designed instruction to fill this gap. We call this educational initiative "Building Research Integrity and Capacity" or BRIC. The BRIC training consists of eight modules that can be administered as a self-paced training or incorporated into in-person, professional development geared to a specific health intervention study. While we initially designed this culturally-grounded, applied ethics training for Latino/Hispanic community research facilitators, BRIC training modules have been adapted for and tested with non-Latino novice research facilitators. This paper describes the BRIC core content and instructional design process."
Dennis OConnor

The Moral Determinants of Health | Health Disparities | JAMA | JAMA Network - 0 views

  • How do humans invest in their own vitality and longevity? The answer seems illogical. In wealthy nations, science points to social causes, but most economic investments are nowhere near those causes. Vast, expensive repair shops (such as medical centers and emergency services) are hard at work, but minimal facilities are available to prevent the damage.
  •  
    by Donald M. Berwick, MD, MPP1 How do humans invest in their own vitality and longevity? The answer seems illogical. In wealthy nations, science points to social causes, but most economic investments are nowhere near those causes. Vast, expensive repair shops (such as medical centers and emergency services) are hard at work, but minimal facilities are available to prevent the damage.
1 - 13 of 13
Showing 20 items per page