Social Security mistakenly reports thousands of deaths - Aug. 17, 2011 - 0 views
-
NEW YORK (CNNMoney) -- More Americans are being erroneously killed off by the Social Security Administration every day.Of the approximately 2.8 million death reports the Social Security Administration receives per year, about 14,000 -- or one in every 200 deaths -- are incorrectly entered into its Death Master File, which contains the Social Security numbers, names, birth dates, death dates, zip codes and last-known residences of more than 87 million deceased Americans. That averages out to 38 life-altering mistakes a day.
Making Sense of Death and Autism - NYTimes.com - 0 views
-
It’s been three years since Liane Kupferberg Carter lost her father. While time has dimmed the pain, it hasn’t really helped her explain things to her son, Mickey, who misses his grandfather.
Preventing Sudden Unexpected Death in Epilepsy (SUDEP): Current Thinking and Strategies... - 0 views
-
Register for this webinar
What:
Research shows that SUDEP takes the life of about one person per 1,000 people living with epilepsy per year. The greatest risk factor for SUDEP seems to be in those who have frequent seizures, especially generalized tonic-clonic (grand mal) seizures. This webinar will begin with a brief overview SUDEP and its possible causes. The presenters will then discuss what health care professionals, people living with epilepsy and they families can do to help reduce SUDEP risk. This will include a review various strategies including better education, the use of seizure monitoring devices, improved seizure medication management, and supervision. Participants will leave with the most current thinking on ways to reduce SUDEP risk. Plenty of time will be left to answer your questions at the end of the webinar.
When:
Wednesday, June 12, 2013
1:00 pm - 2:00 pm Mountain
Cost:
This webinar is set up with a suggested $25 donation to support PAME activities.
NICHD Recruitment for Safe to Sleep Champions Initiative - Webinar - Feb. 26, Mar. 5, 1... - 0 views
-
Click here to download the fact sheet for these webinars
Click here to download the registration form for these webinars
What:
NICHD is recruiting volunteers for the national Safe to Sleep Champions Initiative, which engages physicians and other health care professionals, parents, grandparents and other family members, caregivers, and community stakeholders to serve as spokespersons for the Safe to Sleep campaign. The Safe to Sleep campaign not only addresses ways to reduce the risk of SIDS, but also ways to reduce the risk of other sleep-related causes of infant death, such as suffocation or strangulation. The goal of the Safe to Sleep Champions Initiative is to share the campaign messages about safe infant sleep practices through the use of media and community outreach efforts. The NICHD will host training webinars to equip participants with the information to serve as Champions in their local communities. To volunteer as a Safe to Sleep Champion, you must participate in one of the webinars.
When:
Tuesday, February 26, 2013
10:00 am - 11:00 am Mountain
Tuesday, March 5, 2013
1:00 pm - 2:00 pm Mountain
Thursday, March 14, 2013
6:00 pm - 7:00 pm Mountain
Cost:
Free Of Charge
Focus needed on child healthcare - 0 views
-
Each year the Annie E. Casey Foundation funds a national survey of child well-being. The new report was recently released. Montana is again ranked 28th, same as last year.The data is analyzed in four different categories: education, economic well-being, family and community and health.Montana was above average in three of the four categories, but finished 50th in child health.The report shows that Montana improved in economic well-being, up to 15th from 20th last year. We held steady on education at 13th. We declined a bit on family and community, down to 14th from 13th.But it’s the child health numbers that seem to be the greatest cause for concern.If you dig into the health numbers, Montana did improve over last year’s report in having fewer uninsured kids — down to 12 percent — and fewer teens abusing alcohol and drugs — down to 10 percent. However, we have increased our percentage of children with low birth weights — 7.5 percent — and increased the number of child and teen deaths per 100,000 — 45.How do we make sense of this data? It’s hard because for many of us these kinds of statistics don’t mean a lot when you pull them apart. As a state, Montana’s 28th place ranking is the lowest in the region. North Dakota ranks sixth, Wyoming ranks 15th, South Dakota ranks 18th, and Idaho ranks 20th.What the report tells us about child health is we have more work to do. It may seem like 88 percent of children being covered by health insurance is pretty good, but we’re average for the region. Similar to Idaho and Wyoming, but lower than both Dakotas.For teen death rates, we’re highest in the region at 45 per 100,000. Idaho is at 28, Wyoming at 32, North Dakota at 34 and South Dakota 39.In general what this means is in Montana we can do a better job, in this areas, of improving the health of our kids. The good news is that health continues to be a priority of the Gov. Steve Bullock’s administration, which launched an initiative last week called “A Healthier Montana: A Plan to Improve the Health of Montanans.”Bullock’s plan focuses on six areas: Preventing, identifying and managing chronic diseases; promoting the health of mothers, infants and children; preventing, identifying and controlling communicable disease, preventing injuries and reducing exposure to environmental health hazards; improving mental health and reducing substance abuse; and, strengthening Montana’s public health and health care system.Reports like Kids Count, are one of many analyzing different aspects of health in Montana and around the country, said Jon Ebelt, spokesman for the Montana Department of Health and Human Services. Typically, those reports only tell part of the story. And though the state takes the Kids Count report seriously, it fit into the broader look of health in Montana now outlined in Bullock’s initiative.“We’ve done a lot of work the last year to set the priorities on where we can make the most difference,” Ebelt said.At Lewis and Clark County, county health officer Melanie Reynolds is also focused on local work.The county has been working for a number of months on their community health improvement plan and is looking to unveil soon.So while the news from Kids Count was mixed, we’re pleased the state and local governments are continuing their efforts to support better health for Montanans. We anticipate these efforts will show themselves with an improved report next year.
When Flu Hits, Kids With Neurological Problems Are Vulnerable : Shots - Health Blog : NPR - 0 views
-
Flu is most deadly for children with neurologic problems and disorders, an analysis of swine flu fatalities finds. The results come from Centers for Disease Control and Prevention researchers who looked at childhood fatalities during the H1N1 flu pandemic of 2009, when there were five times the usual number of deaths. In all, 43 percent of the deaths occurred in children who had neurologic diseases, such as cerebral palsy and epilepsy, or developmental disorders.
Collaborative Improvement & Innovation Network (COIN) to Reduce Infant Mortality - Webi... - 0 views
-
Click here to register for this webinar What:
Attend this one-hour webinar to learn how to maximize the resources available on the new and improved www.sidscenter.org website. By responding to user feedback, the National SUID/SIDS Resource Center has been able to update the design of its site to heighten access to research and educational tools that will help any professional on the local, state or national level address issues in sudden infant death. Learning Objectives: The QI process in developing/refining a grantee website. The resources available for professionals to address SUID/SIDS. When:
Thursday, August 23, 2012
1:00 PM - 2:00pm Mountain
Understanding SUDEP Research and the Role You Can Play - Webinar - Jan. 15, 2014 - 0 views
-
Register for this event
What:
Ending sudden unexplained death in epilepsy (SUDEP) is a shared responsibility. And you can help! Any successful effort will require doctors, people with epilepsy, nurses, researchers, coroners and those bereaved by the loss of someone to SUDEP to work together. It will require collaboration across many different organizations over many years. This webinar will begin with a look at what research is telling us about the possible causes as well as future prevention methods and cures for SUDEP. The second part of this webinar will explore how you or a loved one can help by joining a study. We will also discuss the support needs of research study participants and the resources available to them. The presenters will also briefly discuss the SUDEP registry and its role in SUDEP research.
When:
Wednesday, January 15, 2014
1:00 pm Mountain
Cost:
Space is limited. A $25 donation is suggested.
AWAARE Formed to Prevent Wandering-Related Deaths in Autism Community, Press Updates | ... - 0 views
-
CARY, N.C., July 7 -- A new coalition of six national autism non-profit organizations, Autism Wandering Awareness Alerts Response Education (AWAARE), launched its website today (www.awaare.org) in a collaborative effort to prevent wandering-related injuries and deaths, apparently on the rise in the autism community. Coalition member organizations are AutismOne, Autism Speaks, the Doug Flutie Jr. Foundation for Autism, the HollyRod Foundation, the National Autism Association (NAA), and Talk About Curing Autism (TACA.)
A thoughtful and sensitive review of the Adam Lanza Case - 0 views
-
From the office of the child advocate from the state of Connecticut, a very thoughtful, thorough review of this young man's life and death. http://www.ct.gov/oca/lib/oca/sandyhook11212014.pdf The group points out many of the failures along the way, including reluctance of the school system to accurately classify him in the autism spectrum when he was very young, and later not identifying and addressing his social and emotional deficits. They also highlight the lack of coordination between school, health and mental health providers, which allowed him to fall through the cracks in the system. Also it clearly shows the inappropriate use of homebound school as a means to avoid addressing problems, and the lack of transition from child to adult services and the problems caused when the school system graduated him early from high school, and no longer offered services. By his final year he was clearly isolated in his room, anorectic (6 feet tall and 112 lbs.), and his only forays outside of home were to spend hours dancing on the Dance Dance Revolution game at a local theatre, so he was not hidden away, many people saw his physical and behavioral deterioration on display in a public place. This may be a helpful teaching tool, not only as a case study that documents how untreated developmental disorder can evolve into severe psychopathology, but also as a lesson in the need to coordinate school, health and mental health services, and the potential risks when it is not done.
The Case for Inclusion: Does All Really Mean All? - 0 views
-
Things were so simple before. If a student was struggling in your classroom…there obviously was something wrong with them. Not your teaching methods (or curriculum for that matter). Things are not so simple anymore…nor were they ever…really. The prevailing attitude of “my way or the highway” in education is dying…albeit a slow death. There are those who cling to it because that is what they know. So…I can’t really fault them for it. As with any “practice,” one that involves a community, methods change and evolve…so the educational system of my days will look different 20 years from now.
Parents of micro preemie face heart-wrenching decisions - Tampa Bay Times - 0 views
-
In between those scenarios is a zone between life and death, between viability and futility. If a baby is born after the 22nd week of pregnancy but before the 25th, not even the smartest doctors in the world can say what will happen to it. New technologies can sometimes keep these micropreemies alive, but many end up disabled, some catastrophically so. Whether to provide care to these infants is one of the fundamental controversies in neonatology.
CDC - Seasonal Influenza (Flu) - Flu and Children with Neurologic Conditions - 0 views
-
Children of any age with neurologic conditions are more likely to become very sick if they get the flu. Complications may vary and can include pneumonia and even death.Neurologic conditions can include:Disorders of the brain and spinal cordCerebral palsyEpilepsy (seizure disorders)StrokeIntellectual disabilityModerate to severe developmental delayMuscular dystrophySpinal cord injurySome children with neurologic conditions may have trouble with muscle function, lung function or difficulty coughing, swallowing, or clearing fluids from their airways. These problems can make flu symptoms worse.
Bullying and Youth with Disabilities and Special Health Needs | StopBullying.gov - 0 views
-
Children with disabilities—such as physical, developmental, intellectual, emotional, and sensory disabilities—are at an increased risk of being bullied. Any number of factors— physical vulnerability, social skill challenges, or intolerant environments—may increase the risk. Research suggests that some children with disabilities may bully others as well.Kids with special health needs, such as epilepsy or food allergies, also may be at higher risk of being bullied. Bullying can include making fun of kids because of their allergies or exposing them to the things they are allergic to. In these cases, bullying is not just serious, it can mean life or death.
CDC Features - Newborn Screening Can Help Prevent Problems - 0 views
-
Newborn babies are screened, even if they look healthy, because some medical conditions cannot be seen by just looking at the baby. Finding these conditions soon after birth can help prevent some serious problems, such as brain damage, organ damage, and even death.
Physical Restraint and Seclusion in Schools: A CEC/CCBD Collaborative Webinar - Webinar... - 1 views
-
You can begin registration here! What:Participate in this webinar to hear Reece Peterson, Joe Ryan, and Michael Rozalski discuss the latest information on the legislative, policy, and practice issues concerning restraint and seclusion. Federal legislation is pending that, if passed, will regulate the use of physical restraint and seclusion in school settings. The webinar will also provide an overview of the content that will be covered in more detail in the strand on restraint and seclusion at the CEC Convention & Expo in Denver in April.Federal legislation is pending that, if passed, would regulate the use of physical restraint and seclusion procedures for students in school settings. This webinar will discuss the legislative, policy, and practice issues that have arisen because of the deaths and injuries of students due to these procedures. The webinar will provide an overview of the content that will be covered in more detail during the strand on restraint and seclusion at the CEC Convention & Expo in April 2012. Participants will be able to: Identify current laws, policies, and guidelines governing the use of physical restraint and seclusion procedures in school settings. Understand the lack of knowledge in many schools of the underlying ethical and moral problems and the role the media may play in covering abusive incidents. Identify recommendations for “best practice” in using these procedures, including training needs and the use of prevention and de-escalation strategies. When:March 8, 20122:00 pm - 3:00 pm MTContact:CECPhone: 888-232-7733 TTY: 866-915-5000
CDC - ACE Study - Adverse Childhood Experiences - 0 views
-
The Adverse Childhood Experiences (ACE) Study is one of the largest investigations ever conducted to assess associations between childhood maltreatment and later-life health and well-being. The study is a collaboration between the Centers for Disease Control and Prevention and Kaiser Permanente's Health Appraisal Clinic in San Diego. More than 17,000 Health Maintenance Organization (HMO) members undergoing a comprehensive physical examination chose to provide detailed information about their childhood experience of abuse, neglect, and family dysfunction. To date, more than 50 scientific articles have been published and more than100 conference and workshop presentations have been made. The ACE Study findings suggest that certain experiences are major risk factors for the leading causes of illness and death as well as poor quality of life in the United States. Progress in preventing and recovering from the nation's worst health and social problems is likely to benefit from understanding that many of these problems arise as a consequence of adverse childhood experiences.
The Answer Sheet - Ravitch answers Gates - 0 views
-
Gates, through his philanthropic foundation, has invested billions of dollars in education experiments and now has a pivotal role in reform efforts. Ravitch, the author of the bestselling The Death and Life of the Great American School System, has become the most vocal opponent of the Obama administration's education policy. She says Gates is backing the wrong initiatives and harming public schools.
Facing Death, Student With Special Needs Completes Master's Thesis on Accessible Housing - 0 views
-
It is well known that people with special needs can accomplish amazing things despite their so-called disabilities. But in the annals of such heroics, a special place must be reserved for Joshua A. Winheld. On February 5, 2010, Winheld was awarded a Master of Arts degree in urban studies from Temple University in Philadelphia. For his thesis, he explored factors preventing local real estate developers from building more housing that is accessible to people with physical disabilities. Accessible housing was a subject that had interested Winheld since the age of 10, when he was forced into a wheelchair by Duchenne muscular dystrophy.
What:
Talking about death, or the possibility of death is hard even for doctors and nurses. But talking about sudden unexpected death in epilepsy (SUDEP) is an important first step to understanding it. During this webinar the presenters will discuss when and how nurses and doctors should ideally talk about SUDEP with a patient and their family, what people with epilepsy and their families should be asking their doctors. Also included will be a review of what research studies say those living with epilepsy and their families want to hear from doctors about SUDEP. A review the ethics of SUDEP disclosure will also be included. Finally, the presenters will explore the perspective of those who are bereaved by the loss of a loved one to epilepsy and what information they believe should be disclosed.
When:
Wednesday, October 23, 2013
1:00 pm Mountain
Cost:
$25.00 suggested donation