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What:
This webinar offers an overview of hospice care, grief, grief support and how it can help individuals with intellectual disabilities cope during these difficult times.  Throughout the presentation Amy Tucci and Kenneth Doka from the Hospice Foundation of America will touch upon the special issues involving access and services for individuals with ID and focus on the ways that families and persons with ID can more effectively utilize the services of hospice care, such as supportive counseling, pain management, and symptom control as well as grief counseling. Learn about their new CE credited educational program that deals with the challenges of accessing end-of-life care and bereavement support for individuals with ID coming up in late October.
 
When:
Wednesday, October 2, 2013
12:00 pm - 1:00 pm Mountain

Cost:
No cost

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What:
Talking about death, or the possibility of death is hard even for doctors and nurses. But talking about sudden unexpected death in epilepsy (SUDEP) is an important first step to understanding it. During this webinar the presenters will discuss when and how nurses and doctors should ideally talk about SUDEP with a patient and their family, what people with epilepsy and their families should be asking their doctors. Also included will be a review of what research studies say those living with epilepsy and their families want to hear from doctors about SUDEP. A review the ethics of SUDEP disclosure will also be included. Finally, the presenters will explore the perspective of those who are bereaved by the loss of a loved one to epilepsy and what information they believe should be disclosed.

When:
Wednesday, October 23, 2013
1:00 pm Mountain

Cost:
$25.00 suggested donation

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What:
Ending sudden unexplained death in epilepsy (SUDEP) is a shared responsibility. And you can help! Any successful effort will require doctors, people with epilepsy, nurses, researchers, coroners and those bereaved by the loss of someone to SUDEP to work together. It will require collaboration across many different organizations over many years. This webinar will begin with a look at what research is telling us about the possible causes as well as future prevention methods and cures for SUDEP. The second part of this webinar will explore how you or a loved one can help by joining a study. We will also discuss the support needs of research study participants and the resources available to them. The presenters will also briefly discuss the SUDEP registry and its role in SUDEP research.

When:
Wednesday, January 15, 2014
1:00 pm Mountain

Cost:
Space is limited. A $25 donation is suggested.