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Roger Holt

Debunking 7 Common Myths About Autism | Care2 Causes - 0 views

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  • Autism spectrum disorders are surrounded by a haze of misconceptions, many of which are harmful for autistic children and adults. It’s time to straighten a few things out, and to spread the word on this complex series of cognitive and intellectual disabilities with a little good old-fashioned debunking. 1. Autistic people have no empathy. This is a common belief about autism; people think that because autistics are sometimes blunt or have difficulty navigating social norms, they aren’t empathetic. In fact, just the opposite seems to be true. Rather than not feeling enough, many autistics feel very intensely, and are easily overwhelmed by the emotions of those around them. 2. Autistic people can’t communicate. Autism spectrum disorders take a variety of forms, and some people with autism are nonverbal, but that doesn’t mean they can’t communicate. Some use communication boards and other methods to communicate with the people around them, but it requires patience to establish and maintain communication with them. Historically, people with more severe forms of autism were often isolated in institutions, but more modern treatment of autism encourages the use of therapy and other techniques to interact with patients and find a communication mode they feel comfortable with. 3. Autistic people are violent. This particularly damaging assumption about autism was widely bandied around in the aftermath of the horrific Sandy Hook shooting. In fact, autistic people are no more likely to commit acts of violence than anyone else, and when they are violent, self-harm is a much more significant concern. Autism and other disabilities also put people at an increased risk of violence, which means autistics have far more to fear about the world around them. Some autistic people do act out or have what are known as “meltdowns,” usually as expressions of frustration with themselves or situations, but this doesn’t equate to violence against other people; an autistic might throw objects in frustration, for example, without any desire or intent to hit people with them. 4. Autistic people are savants. Everyone who’s seen Rainman thinks autistic people are savants, capable of extreme feats of memorization and other amazing skills. While it’s true that some savants are autistic, not everyone with an autism spectrum disorder has these capabilities; some in fact have significant learning disabilities that require accommodations in the classroom. 5. Autism is the result of “refrigerator mothers.” This awful myth about autism has been largely debunked, but it’s still worth a mention. Some people used to believe that autism was caused by bad parenting, with a specific focus on cold or isolated mothers. The result was a lot of misinformation about autism, and terrible pressure on mothers who were already learning about how to navigate the world with autistic children. In fact, autism has no clear cause. 6. Autistics can’t make friends. Along with the belief that autistic people lack empathy comes the assumption that they live isolated lives and have difficulty making friends. Just like everyone else, though, autistics are perfectly capable of establishing and maintaining not just friendships but other kinds of relationships with the people around them. Isolating autistic people in a misguided attempt to protect them can be very harmful, just as it would be for anyone else. 7. Stimming (repetitive behavior like flapping or rocking), is undesirable and should be stopped. Stimming is familiar to many people who are at least vaguely familiar with autism — sadly, it’s often used in mockeries of autistic people, by individuals who think that making flapping gestures or imitative noises is funny. For autistic people, stimming is one way to deal with chaotic environments or stress, and rather than being something that should be suppressed, it can actually be a healthy method of personal expression and sometimes communication as well. Autistics who are forced to modify or hide their stimming behaviors can develop even more stress, which can interfere with focus, completing tasks of daily living, and other activities. It’s important to be aware that the autism spectrum is vast, and that autism spectrum disorders can manifest in a huge variety of ways. Every autistic is different, and every one deserves respect and dignity. That includes not perpetuating harmful stereotypes, and correcting people who falsely repeat them.
Sierra Boehm

Save The Date - The Rural Institute Transition and Employment Projects 2014 Webinar Series - 0 views

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    The Rural Institute Transition and Employment Projects is pleased to announce four webinars scheduled for 2014. Interested individuals may participate from their own offices or homes, and there is no registration cost for any of the sessions.

    Please note - all webinars are from 1:00-2:30 Mountain Time.
     
    January 14, 2014
    Systematic Instruction and Job Coaching - Part One          

    February 18, 2014
    Systematic Instruction and Job Coaching - Part Two          

    March 18, 2014
    Planning Your Transition from Pediatric to Adult Health Care      

    May 13, 2014
    Self-Management Strategies for People to Live and Work Independently

    Session fliers and registration information will be sent to Montana Transition Listserv members. To join the Montana Transition Listserv, go to the Transition and Employment Projects Home Page and enter your email address in the box provided.
Terry Booth

Health Care Transition and School Part 2: What Does it Look Like, Who Do You Involve? -... - 0 views

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    Click here to register for this webinar What:
    Got Transition recognizes that health care transition often begins at home with preparation and planning- but where else do young people spend most of their time?  School!  In the second part of this series about health care transition and education, we will continue the conversation about including steps for health care transition within the Individualized Education Plan (IEP) process. We'll also talk about the people to involve and explore what education system resources may be right in your own backyard! When:
    Wednesday, March 28, 2012
    1:00pm - 1:30pm Mountain
Terry Booth

Life Transitions from Pre-School to Adulthood - Billings - Aug. 2-3, 2012 - 0 views

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    What:
    Families and educators need continued assistance with resources that teach life skills to assist individuals with autism as they negotiate important transitions in their lives. This two day conference will provide information and hands-on experience that will help you assist children and young adults on the spectrum to discover their unique interests and abilities. Fostering self-identity that will prepare individuals with autism for lifelong inclusion in the community that will maximize their independence, productivity, and enjoyment. Successful early transitions will help pave the way for future transitions. Some individuals on the spectrum will pursue higher education and competitive employment opportunities while others are more limited. Beyond their varied abilities and interests, limited social skills for nearly all individuals with autism make it difficult for them to adjust to new school environments, different living arrangements, college and the workplace. With proper support and services from teachers, mentors, co-workers and job coaches who understand these special needs, we believe all individuals can be supported to lead happier, more productive and independent lives. In addition to information about transitions, educators and family members attending this year's conference will be able to participate in activities often used in therapy and successful educational environments. This will give you a unique opportunity to experience life from the perspective of a person on the spectrum and give you skills to help calm, teach, and care. Where:
    MSU-B Main Campus
    1500 University Drive
    Billings, MT When:
    August 2 & 3, 2012 Register:
    Call 406-896-5890 to register for this event.
Terry Booth

Health Care Transition: Status of the States - Webinar - March 23, 2011 - 0 views

  • Click here to register for this event What: This webinar presents findings from a January 2011 report, "Health Care Transition for Youth with Special Health Care Needs" published by Got Transition? The National Health Care Transition Center. The report authors, Peggy McManus and Katherine Rogers of the National Alliance to Advance Adolescent Health, will discuss their analysis of national and state transition outcome data from  the 2005-06 National Survey of Children and Youth with Special Health Care Needs . McManus and Rogers will also present a preliminary summary of Title V State activities and initiatives addressing transition to adult health care. When: Wednesday, March 23, 2011 12:00-1:00pm Mountain After registering you will receive a confirmation email containing information about joining the Webinar.
danny hagfeldt

Got Transition Radio- Episode 6: Let's Talk About Transition and School: Health & the I... - 0 views

  • Register here!What:Got Transition recognizes that health care transition often begins at home with preparation and planning- but where else do young people spend most of their time?  School!  Tune into this first episode of a series related to how healthcare transition might be addressed in the school setting.  In this episode, Eileen and Mallory will discuss the Individual Education Plan (IEP) process as a key element in transition, keeping it student centered, and real ways to incorporate goals related to health!When:Wednesday, February 22, 20121:00 PM - 1:30 PM MDTContact:Got Transition?Phone: 603-228-8811
Terry Booth

Montana Mental Health Trust Grant: Youth Transition Planning Meeting - Great Falls - Ap... - 0 views

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    Click here to download the Transition Grant Implementation Plan (PDF) Click here to download the Summary Transition Planning Grant (PDF) What:
    The purpose of this project is to improve the transition planning system for youth diagnosed with serious emotional disturbances (SED) transitioning from the children's mental health system to the adult mental health system. Young people with Serious Emotional Disturbance (SED) need a careful planning process to ensure they can set and successfully achieve their personal goals for independence. Currently there is no established transition planning process for youth with SED in Montana.  When:
    Wednesday, April 4, 2012
    10:30am - 11:30am Where:
    VR/SLTC Conference Room
    201 1st Street S., Suite 3
    Great Falls MT Contact:
    Jane Wilson- jawilson@mt.gov * 406-788-8167
    Sharon Odden- sodden@mt.gov
Terry Booth

Transitions - 0 views

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    This two-day Institute is designed for health professionals who want to better manage the transitional care required between sectors for people with complex health care challenges. Participants will have the opportunity to learn from experts, including those working in successful interprofessional models of transitional care.
Roger Holt

A Triple Aim Approach to Transition from Pediatric to Adult Health Care for Y... - 0 views

  • More than 90% of children with chronic illness now survive into adulthood, which presents a range of challenges for individuals and for the system of care. This Issue Brief describes key unmet needs regarding a) developing chronic disease self-management skills; b) enhancing the capacity of the adult health care system to care for young adults with special health care needs; and c) reducing lapses in care during the transition period. The authors, fellows at the Stanford University Clinical Excellence Research Center, offer recommendations for improving the transition.
Meliah Bell

Got Transition quarterly - Webinar - November 7, 2012 - 0 views

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    Click here to register for transition webinar

    What:
    In this Got Transition Quarterly Webinar, Susan Waisbren, Ph.D. will review research on identity development and its impact on health promoting behaviors and positive mental health. A panel of young adults with various health care needs will respond and share their current strategies coping with challenges as they move toward adulthood.

    When:
    Nov. 7, 2012
    12:00 PM - 1:00 PM MST Contact:
    Got Transition?
    18 Low Ave, Suite 1
    Concord, NH 03301
    603.228.8111  
Terry Booth

Heading for College with Special Health Care Needs; Student Preparation for a Successfu... - 0 views

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    Click here to register for this webinar What:
    Preparing to go "away from home" to college is both exciting and nerve-wracking. Concerns about the unknowns can cause student jitters: dorm life, being away from family, will I like my classes? my roommate?

    For students who have chronic or special health care needs, there are the additional concerns about "leaving for college when their health care support networks are left behind."

    This webinar will provide practical considerations for a student's health care transition, in preparation for a successful adjustment to college life. When:
    August 1, 2012
    12:00 - 1:00pm Mountain
Terry Booth

Input Needed from Family Members in Montana: Money Follows the Person Survey - 0 views

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    What:
    DPHHS is applying for a Money Follows the Person Grant. The "Money Follows the Person" Rebalancing Demonstration Program (MFP) helps States rebalance their long-term care systems to transition people with Medicaid from institutions to the community. Forty-three States and the District of Columbia have implemented MFP Programs.  From spring 2008 through December 2010, nearly 12,000 people have transitioned back into the community through MFP Programs. The Affordable Care Act of 2010 strengthens and expands the "Money Follows the Person" Program to more States. Click here to fill out the survey. MFP Program Goals Increase the use of home and community-based services (HCBS) and reduce the use of institutionally-based services. Eliminate barriers in State law, State Medicaid plans, and State budgets that restrict the use of Medicaid funds to let people get long-term care in the settings of their choice. Strengthen the ability of Medicaid programs to provide HCBS to people who choose to transition out of institutions. Put procedures in place to provide quality assurance and improvement of HCBS. If you are a consumer or family member, please take a moment to fill out the survey here.
Roger Holt

Got Transition? A national resource for youth transitioning to adult health care - 0 views

  • Got Transition? is a national resource for health care professionals, families, youth, and state policy makers focusing on a young adult's transition from pediatric to adult health care. This site serves as the basis for an information exchange about health care transition, particularly as pertaining to youth with special health care needs.
Kiona Pearson

The New Clinical Report on Health Care Transition - Webinar - August 10. 2011 - 0 views

  • To reserve your Webinar seat, Click Here What: Finally, planned proactive health care transitions are best practice for pediatric and adult health care settings! The American Academy of Pediatrics, the American Academy of Family Physicians, and the American College of Physicians have just jointly published a new clinical report (Pediatrics, July 2011) describing what is needed for smooth transitions from pediatric to adult health care. When:Wednesday, August 10, 2011 at 12:00 PM - 1:00 PM Mountain System Requirements PC: Windows® 7, Vista, XP or 2003 Server Mac: Mac OS® X 10.5 or newer
Roger Holt

Foundations of Transition for Young Children - Early Childhood Community - 0 views

  • Today, most families of young children use and move between different types of early childhood services -- like Head Start, private child care, public preschool, or kindergarten. Moving between and among these various programs is often referred to as ’transition’.” This 8-minute video provides an overview of the desirable outcomes of transition, research identifying effective transition practices, as well as the legal requirements of early childhood transition (running time: 8 min. 19 sec.)
Roger Holt

Health Care Transitions - Web, Video, and Print Resources - 0 views

  • Since You’re Not A Kid Anymore It’s Time To Be More In Charge Of Your Health Care
  • Now That You're In High School It’s Time To Be More In Charge Of Your Health Care
  • Envisioning My Future: A Young Person’s Guide to Health Care Transition
  • ...1 more annotation...
  • Health Care Transition Workbooks
Roger Holt

Videos | Health Care Transition: Jim's Story - 0 views

  • Transition is never easy, however this process is usually more difficult for young adults with special health care needs who have been receiving care from specialized pediatric treatment settings and providers.  This video looks at how Jim and his family prepared for health care transition and their current efforts to complete the process. Run time: 10 minutes  (2001)
Roger Holt

Health Care Transition: Jim's Story | ICHP - 0 views

  • Transition is never easy, however this process is usually more difficult for young adults with special health care needs who have been receiving care from specialized pediatric treatment settings and providers.  This video looks at how Jim and his family prepared for health care transition and their current efforts to complete the process.
Terry Booth

Using Portfolios for Health Care Needs - Webinar - Sept. 20, 2011 - 0 views

  • Click here to register for this webinar What: The Representational Portfolio was originally developed as a marketing tool for job developers to represent job seekers to employers. Portfolios are also used by youth to introduce themselves at their IEP meetings and to develop self-advocacy skills. During this webinar, you will learn how Portfolios can be an important piece of the health care transition for young adults. Through a Portfolio's concise text and photos, individuals with disabilities can describe the impact of their disability; list current medications and side effects they are experiencing; discuss seizures (what type, how often, etc.); introduce and explain medical equipment; share information about helpful accommodations and supports; and articulate what they want and need from their medical provider. Younger children can use Portfolios to learn to describe their own health care needs at an early age. Presenters will also share links to health care transition resources such as toolkits, web sites, and iPad apps that attendees may wish to explore. When: Tuesday, September 20. 2011 1:00pm - 2:30pm Mountain
Roger Holt

Videos | Health Care Transitions: College and Beyond - 0 views

  • In many ways, Jeff Walden is a typical college student, but in some ways he is not. He was born with a severe physical disability that has posed many challenges on his road to independence. This video explores the process of transition from pediatric to adult oriented health care and the influences that have contributed to Jeff's success. Run time: 24 minutes  (2004)
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