For parents of children with multiple medical problems, keeping up with countless doctor's appointments, ongoing tests and a variety of medications can be overwhelming, especially for those in challenging socioeconomic situations.
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Novel 'medical home' program for pediatric patients, families cuts ER visits in half / ... - 0 views
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As a result, families often wind up using the emergency room, the country's most expensive form of care delivery, to get help for their kids.
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But a growing concept in health care reform called the "medical home" offers parents a way to simplify, organize and coordinate the complexities of their medically fragile child's health care needs. The medical home is not a location but an approach to care coordination designed to provide a constant trusted source of care, typically by a general pediatrician.
'Medical Homes' Help Kids Get Comprehensive Care | KPAX.com | Missoula, Montana - 0 views
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Children who have a "medical home" -- that is, a pediatrician or nurse they see regularly who offers comprehensive care -- are more likely to have their medical and dental needs met, new research finds. Yet it's the sickest children -- those who have a chronic condition or special need and require the most care -- who are less likely to get the sort of care a medical home offers, the researchers said.
Prescription Assistance Program - 0 views
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The Partnership for Prescription Assistance helps qualifying patients without prescription drug coverage get the medicines they need through the program that is right for them. Many will get their medications free or nearly free. The Partnership for Prescription Assistance will help you find the program that’s right for you, free of charge. Remember, you will never be asked for money by a PPA Call Center representative, or on this Web site.
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The Partnership for Prescription Assistance helps qualifying patients without prescription drug coverage get the medicines they need through the program that is right for them. Many will get their medications free or nearly free. The Partnership for Prescription Assistance will help you find the program that’s right for you, free of charge. Remember, you will never be asked for money by a PPA Call Center representative, or on this Web site.
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The Partnership for Prescription Assistance helps qualifying patients without prescription drug coverage get the medicines they need through the program that is right for them. Many will get their medications free or nearly free. The Partnership for Prescription Assistance will help you find the program that's right for you, free of charge. Remember, you will never be asked for money by a PPA Call Center representative, or on this Web site.
MT launching "patient-centered medical home" initiative | KXLH.com | Helena, Montana - 0 views
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"The State of Montana is planning to launch a pilot program aimed at changing how healthcare is delivered. One of the advocates of the new approach - called the "patient-centered medical home" - is Jon Griffin, a primary care physician in Helena who strongly believes there needs to be a fundamental change in the delivery of healthcare."
Bright Beacon - a social network for parents of children with medical needs - 0 views
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Bright Beacon exists to provide a safe haven for parents of children with medical needs to meet, discuss their children, their children's medical needs, and perhaps even their own personal stories: their victories, defeats, joys and sorrows.
Bright Beacon - social networking for parents of children with medical needs - 3 views
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Bright Beacon exists to provide a safe haven for parents of children with medical needs to meet, discuss their children, their children's medical needs, and perhaps even their own personal stories: their victories, defeats, joys and sorrows.
Epilepsy and Kids Information Series - Billings, MT - Multiple dates - 0 views
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To reserve your spot or find the video conferencing location in your area contact:
St. Vincent University at 406-237-ED4U (406-237-3348) or email svhu@svh-mt.org What:
Educational series that is offered to anyone that is interested in learning about epilepsy, and anyone who has questions that need answering or who wants to share their experiences with others in the same situation. When/Where:
St. Vincent Healthcare - Mansfield Health Education Center
1145 North 30th - Located in the Lower Level of the Yellowstone Medical West Building
Billings, MT 59102 -November 27, 2012
Working to Maximize Success in School -January 24, 2013
Epilepsy: What's New? -March 27, 2013
The invisible Disability -May 22, 2013
Living with Epilepsy, Tips and Traps Contact:
Cindy K. Leenknecht, MS, ACNS-BC, CCRP
Telemedicine Project Coordinator, St. Vincent Healthcare Foundation
Yelllowstone Medical Center,
2900 12 Avenue N, Suite 30W, Box 26,
Billings, MT 59101
work: 406.237.8652
cell: 406.698.9116
fax: 406.237.8655
cindy.leenknecht@svh-mt.org
Using Portfolios for Health Care Needs - Webinar - Sept. 20, 2011 - 0 views
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Click here to register for this webinar What: The Representational Portfolio was originally developed as a marketing tool for job developers to represent job seekers to employers. Portfolios are also used by youth to introduce themselves at their IEP meetings and to develop self-advocacy skills. During this webinar, you will learn how Portfolios can be an important piece of the health care transition for young adults. Through a Portfolio's concise text and photos, individuals with disabilities can describe the impact of their disability; list current medications and side effects they are experiencing; discuss seizures (what type, how often, etc.); introduce and explain medical equipment; share information about helpful accommodations and supports; and articulate what they want and need from their medical provider. Younger children can use Portfolios to learn to describe their own health care needs at an early age. Presenters will also share links to health care transition resources such as toolkits, web sites, and iPad apps that attendees may wish to explore. When: Tuesday, September 20. 2011 1:00pm - 2:30pm Mountain
Nurturing Parenting for Parents and Children with Special Needs and Health Challenges -... - 0 views
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Click here to download the flier for this series of classes Contact the Center for Families to register: info@forfamilies.org www.forfamilies.org Phone: (406) 294-5090 What: Nurturing Parenting with special needs and health challenges is designed to help parents and their children with chronic or life threatening medical conditions, developmental delays, and life-altering disorders and disabilities. Parents and their children meet separately for the first 90 minutes and meet together for the last 30 minutes. Light dinner included for children and adults. Designed for parents of children birth to 12 years. Two facilitators run parents' group; two facilitators run the children's group. The children's group is designed to meet the needs of all children regardless of abilities or health concerns. The program material is consistent with topics covered in the adult sessions and supports the healthy development of children birth to 12 years. When: Tuesday nights February 12, 19, 26, 2013 March 5, 12, 19, 26, 2013 April 2, 9, 16, 23, 30, 2013 5:45 pm - 7:45 pm Mountain Where: Center for Children and Families 3021 3rd Ave. North Billings, MT 59101 Cost:
$20 per session. There is a sliding fee scale so please contact for details.
Responsiveness, Respect, Self-Determination and Consent - Webinar - Aug. 14, 2012 - 0 views
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Click here to register for this webinar What:
Learning Objectives: Strategies for how to best provide health care to adults with developmental disabilities in medical offices/facilities Strategies for addressing the psychological and support needs of adults with special health care needs Click here to learn more When:
Tuesday, August 14, 2012
4:00 - 5:00pm Mountain
Little evidence supports medical treatment options for adolescents with autism | VUMC R... - 0 views
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“We need more research to be able to understand how to treat core symptoms of autism in this population, as well as common associated symptoms such as anxiety, compulsive behaviors and agitation,” said Jeremy Veenstra-VanderWeele, M.D., assistant professor of Psychiatry, Pediatrics and Pharmacology and Vanderbilt Kennedy Center investigator. “Individuals, families and clinicians currently have to make decisions together, often in a state of desperation, without clear guidance on what might make things better and what might make things worse, and too often, people with autism spectrum disorders end up on one or more medications without a clear sense of whether the medicine is helping.”
Post Traumatic Stress Disorder (PTSD) in Children with Complex Medical Needs - 0 views
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Most people know the definition of Post Traumatic Stress Disorder (PTSD), as it has become an unfortunate, common after-effect of war, terrorism and assault. What many people don’t know is that PTSD can occur in people who have had significant, complex medical issues. This is the case with my daughter Riley. I wanted to share our experiences, because I believe that it’s crucial to understand trauma from a child’s perspective, and to increase awareness of the connection between trauma and children with complex medical issues.
Defying the odds, conjoined twins in Chicago celebrate their first birthday - chicagotr... - 0 views
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Defying the odds, conjoined twins born critically ill last year in University of Illinois Medical Center at Chicago have reached a major milestone: their first birthday.
32 Vacation Destinations for Individuals with Special Needs | Friendship Circle -- Spec... - 0 views
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Summer vacation will be here soon. When planning a vacation with a person who has special needs, accessibility is the name of the game: wheelchair accessibility, accessibility to medical needs, a positive sensory environment, accessibility to old interests and new experiences. Every destination on this list welcomes and accommodates visitors with special needs. You’ve probably heard of some of these places before, but others may get you thinking about vacations in a whole new way.
Resources Directory | The Center for Children with Special Needs - 0 views
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Families who have children with chronic conditions often need to find resources to assist them in caring for their child’s needs. You may need help finding transportation to a medical visit or accessing therapy services near your home. You may want to find parent organizations or information about child care or insurance coverage. The resource search option lets you look for resources by topic. Most resources are in Washington, Alaska, Montana or Idaho but there are a few national resources available for other states. As you contact resources, make sure you are comfortable, know what you need, and find out about costs, their ability to work with you, within your budget or with your insurance plan.
6 Attributes of an Effective Special Needs Advocate | Different Dream - 0 views
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Get organized. Create an organized medical file and save every piece of paper pertaining to a child’s disabilities, services, needs and more. Make copies monthly and scan new documents into the computer. Get educated. Research your rights, therapies, and more. Be willing to learn, ask questions, and keep asking questions until you understand. Educate others. Respond patiently with the appropriate information when people say hurtful things or respond in ignorance. Be persistent. Don’t give up when you can’t get an appointment. Instead of getting angry, keep restating your need in a nice way. Look for solutions. Instead of talking poorly about a doctor or the insurance company, focus on finding solutions. Take care of yourself. Take some time to care for yourself; otherwise you’ll quickly burn out and be unable to care for your child. Find time each day, even if it’s only 5 minutes, to focus on your own needs.
Parenting Sessions - Billings, MT - Oct. 2, 2012 - 0 views
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Click here to Download the information for the parenting sessions
What:
The Nurturing Program for Parents and Their Children with Special Needs and Health Challenges is designed to help parents and their children with chronic or life threatening medical conditions, developmental delays, life-altering disorders and disabilities. Parents and their children meet separately for the first 90 minutes and meet together for the last 30 minutes, one day a week for 12 weeks. When/Where: October 2, 2012 - 6pm - 8pm Center for Children and Families - 3021 3rd Avenue N. Billings, MT Contact: For more information, or to register contact Julie @ 406-281-8574 or julieg@forfamilies.org
Creating Healthy Communities, one family at a time - Havre - Aug 6, 2013 - 0 views
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Download the flyer for this event
What:
The purpose of the training is to provide you with the tools needed to execute a Health Literacy program at your local level. Parents who take the Health Literacy training will learn to use the book, What to Do When Your Child Gets Sick, as a tool in promoting the safety and well-being of your children. Health Literacy Training proves that the challeng-es of low literacy can be surmounted: that parents can gain the knowledge and skills to care for a sick child, thereby relieving the pressure on the health care system and reducing medical cost to the public. In short, empowering parents in this way has enabled them to become the first line of defense for their children's health-and has untold benefits for society. This unique training includes in-struction in Strategy Implementation, Project Management, Parent and Staff Motivation, Marketing and Community Relations.
When:
Tuesday, August 6, 2013
8:00 am - 5:00 pm Mountain
Lunch provided
Where:
St. Jude's Parish Center
440 7th Ave.
Havre, MT 59501
Cost:
Free of charge
Complex Child Magazine - 0 views
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Complex Child is a monthly online magazine written by parents of children with special healthcare needs and disabilities. It is intended to provide medical information, along with personal experiences, in simple language that other parents can understand. Articles are on a wide variety of topics ranging from basic information on medical conditions and treatments to advice on how to beat insurance company denials.
Call-in: 866/214-9397, Pin: 5058724774
Webinar Link: https://www.livemeeting.com/cc/familyvoices/join?id=24R5TP&role=attend
The Family Voices National Center for Family and Professional Partnerships is hosting this webinar presented by Suzanne M. Bronheim, PhD of Georgetown University Center for Child and Human Development. Suzanne will share findings from a 2010 research partnership with three Family-to-Family Health Information Centers (F2F HICs) to better understand how Hispanic/Latino families' and African American families' utilization of F2F HICs might be increased. This research project is based on a social marketing theory that suggests that people try new things if that "innovation" fits with their values and experience, seems to have an advantage over other approaches, is easy to use, can be tried and dropped if they don't like it and if others they know and trust are also aware of it and have used it. The project has used this framework to study how Hispanic/Latino and African American families prefer to receive information and how they view the F2F HICs as a resource. In addition, this project has studied similar issues for the social networks of families to learn how they view and access F2F HICs. Suzanne will be joined by staff of the F2F HICs that partnered in this project to share lessons learned and suggestions of how other F2F HICs can use this framework.