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This is an online community for people dealing with colon cancer. It is part of my course framework to have my students participate in the community, as a way to have a personal experience with the disease, as well as obtaining additional infomration. This forum is moderated, for filtering of non-topic posts, such as posts that are really advertisement hooks. You can participate as a guest or by signing-in. As someone who participates/has participated in on-line and in-person support group, both are important for providing support and information at a peer level. One interesting difference, though, based on my observation only, is that anger venting seems more prevalent in the on-line groups. My belief is that this is because when people post they are by themselves and can be more reflective rather than reactive to what is immediately being communicated.

Great additions! I particularly like the introduction.

I tried to share it without the introduction and was questioned about what it was. I think I have a better understanding of collaborative documents, now. You have to have background on the document to invite others in, or it makes no sense :)

In her important, controversial new book, Sherry Turkle reads our leap into digital technology not as the unfettering of a deep, human urge to connect, but as a dire symptom to be understood within an older framework: psychoanalysis. Whether you find this book's analysis convincing depends on how you read the Rorschach test that is the Internet.

Bruce, CaringBridge has been a great support for so many people. I originally discovered the site while I was following the story of Baby Allie http://www.scotthousehold.com/allie.htm whose mom documented her short life battling with AML. A huge community grew around her little life, and I discovered many CaringBridge sites. Jenny went on to start the Heroes for Children foundation, raising more than $3 million for families in TX with children undergoing treatment. My own early blogging experiences were around my own grief and loss http://momrealityblog.blogspot.com/2006/01/it-began-with-tragic-ending.html I had previously been involved in several online parenting communities. They were a huge support to me during that time. We have the potential to do a lot of good online and off. I think we just need to be cognizant of how our messages are amplified, and how we amplify the messages of others.

Joy, I am so sorry for your loss. I think grief is different for everyone, and the internet is a place we can find other people who share similar methods of grieving, so we don't feel so alone. In our own families, it's hard to support each other through periods of loss. I've discovered a lot of online communities, some healthy, and some not, where people feel comfortable expressing their feelings about loss. I think the most important thing I learned online during that time, was "be gentle with yourself."

I just finished reading E-Habits, by Elizabeth Charnock, CEO of the company who puts out this blog. It was fascinating (and scary!).

I think there's more of an opportunity for us to recognize that with so many different ways to communicate, the nuances of interpersonal communication are more important than ever. I think the people who will be successful, are the ones who truly learn to connect with their audience and make the digital seem personal. I grew up with a dad who taught English and was an Air Force public affairs officer. My writing style has always been formal, and cold, and I've had to learn to add warmth in digital spaces. I'm still trying to figure it out!

My experience with your style is you are very intellectually based in your writing style, while your personal style when dealing with this student was warm and open, encouraging and sharing. Okay, it is one opinion among many, I am certain; but this one is mine. I spent many years with the military as a family member and the mother of soldiers. One has to be careful in the civilian world when it comes to interacting with others, because military directness and crispness can get in the way of showing warmth and interest. Hopefully, I have mastered a more civilian way of speaking over the past several years.

Jennifer's email to us was a catalyst for this post to inquire about your digital prescence experience. I, like Jennifer, have aliases that I use on social networks. It is a challenge, though, to manage multiple presences and even when I do, often have a feeling of unease about the information. For example, in this course a suggestion was for us to update our profile. Although I don't feel secrative that I am taking a course at Bellevue College, the email/signature I use for this course is also the one I use for some other professional endeavors (such a technology consulting). I is not something that is a "need to know" by everyone. I chose, in this situation, not to update my general profile. When we are conscious of what/how we are posting and putting up, is one thing. Often though, I get on a mailing list, that I have no idea how I was included, as I probably forgot to check a "do not include me" box on something I have bought on line. This article was particularly interesting to me, as it talks about a survey that 23% of children get a digital presence even before they are born - having a lasting imprint.

Good article to bring things into perspective about 'online presence.' I found a similar article that compared statistics relating to age and online presence. 92% of children by age 2 have online presence thanks to parents and grandparents. As Jennifer mentioned in her discussion of facebook -- maybe we don't want the world to see what we did in our high school days...we were 15/16. Can we separate a personal online presence from a business profile...

I do separate my profiles by having different email aliases. There is overhead in having multiple ones, however, so not ideal.

"For years, in our schools, teachers have told students that school is preparation for real life - a statement that divorced the meaning of school from the lives kids led in that moment. With the research, creation and networking tools at our disposal, we have the ability to help students see that the lives they lead now have meaning and value, and that school can be a vital and vibrant part of that meaning. We can help students to see the powerful humanity that exists both within them and all around them. And technology can be an essential piece of how we teach and learn about that. "

Joy, good point. The internet allows for international connectivedness that wasn't possible before.

I think we will be hearing more about this in 1-3 years Ann.

In today's Seattle Times, A3 section - interesting article which followed over 2,000 US students from 2005 to 2009. 45% made no significant improvements in their critical thinking, reasoning or writing skills during first 2 years of study. After completing 4 years, 36 % showed no significant gains in "higher order" thinking skills. Article also states some contributing factors, many students work part-time, however, most students only spent 1/5 time on their studies and 51% on socializing & extra-curricular. I have a strong hunch the internet is a big contributor to the socializing factor. When I read such statistics, it makes me ponder if on-line learning can truly change this social/educational trend. I am enjoying many readings on the diigo, both from Jennifer and others, however, I'm not sure I would design an on-line class which designated a considerable amt. of time to short readings and discussions. Your thoughts on this?

I too found the article interesting - thanks! I do wonder about the types of classes students completed especially in their first two years. The might be a marked difference in skills acquisition if students were completing many required large class survey classes to meet initial requirements vs. small, more focused classes in their areas of interest.

I am still trying to get the picture of "slogging" through studies! Is that what I am doing when reading all this material in Diigo? I don't think so.

"The current and future health of America's 21st Century Economy depends directly on how broadly and deeply Americans reach a new level of literacy--'21st Century Literacy'--that includes strong academic skills, thinking, reasoning, teamwork skills, and proficiency in using technology.", says the 21st Century Workforce Commission National Alliance of Business

Another great read and thanks, Ann. Something this article doesn't address is the growing concern about the "digital divide." Not all segments of our society has equal access to the internet. I recently heard a lecture at NSCC addressing this problem. Many outlining districts in urban areas(and rural areas) do not have the infrastructure to receive Wi-Fi. Students is poor neighborhoods (many who don't have computers at home) must go to their local public library to get internet access. Yes, our public school system needs to incorporate more technology "know-how" into their curriculum and instruction, but equally as important, our society needs to take a closer look at what segments of society are presently at a big disadvantage in terms of equal access to technology, both in and out of school. As technology redefines what it means to be "literate," then we also must address equity and accessibility to resources.

Helen, I like your astute comments and observations. The poor in this country may have access to computers in the library and at school, but many of them are homeless and living in cars. Anywhere from 2000-5000 people are homeless in King County and 80% of these people are women with children and suffering from DV incidents. If we go further, I have a friend working in Chimbote, Peru. Most of the people living in the barrios do not even have running water, much less the ability to buy or use computers. I suspect worldwide, you would see extremely large percentages of children without food much less computer access or skills.

Interesting perspective on attention. This addresses some of the issues we've discussed this week. I'd be interested to know if you're able to watch the entire video without doing anything else. I'm 6 minutes into it, and I'm composing an email for work, writing this, and texting a friend in the UK.

I finally had a chance to watch this talk by Rheingold. He's covering some of the issues that we've already discussed over the past couple of weeks. One of them is the need for our educational institutions to change in response to global communications changes (1 billion online users, 2 billion cell phone users). He says we need new forms of literacy both in terms of how to use these new technologies, as well as how to communicate effectively using them. He said this isn't a new situation - in the past, societies had to adapt to the technologies of the phonetic alphabet, the printing press, telephone, television, etc. One interesting quote: "Our educational system, our schooling system is very well tuned to creating good citizen workers for 19th and 20th Century industries."

This is related to some of our inquiry last week about open courses. ELI is an important conference. I hope you get a chance to check out some of the free sessions online. "Educating in the Open: Philosophies, Innovations, and Stories February 14-16, 2011 * Washington, D.C. or Online Free Conference Streaming SessionsJoin us for the ELI 2011 Annual Meeting "Educating in the Open: Philosophies, Innovations, and Stories," where we as a community will explore the theme of openness in Washington, D.C., February 14-16. If you can't attend in person, participate online. We'll explore the many meanings of "openness": open textbooks, open curriculum, open research, and open resources, as well as openness to new ideas. Today's technologies have transformed the way we interact and engage with the world around us. New devices, services, and effective practices have increased access to information while new policies and philosophies that explore openness have accelerated that change. The growth of social networks and virtual communities has transformed the learning environment into an interactive place to share and build content and community using collaborative systems. * What are the opportunities and the challenges associated with educating in the open? * How might our learners benefit from becoming producers and consumers in this environment? * How can we, as a community of teaching and learning professionals, collaborate more openly? * What evidence do we have that the trend toward openness is having the impact we hope for? Through a highly interactive and engaging program, we'll also examine the value of cross-campus collaboration in the creation of new learning environments and explore strategies to develop campus environments built on engagement, collaboration, authenticity, and co-creation."

My friend Chris Lott shared this with me to pair with the reddit illness posting.  Important stuff to know when you're dealing with online communities.

I think it was Barnum and Bailey that said, "...there is a sucker born every minute." However, history disputes this quote and states it was said by a competitor of P.T. Barnum .http://www.historybuff.com/library/refbarnum.html

I have joined this learning community. My membership is still pending. I think this will be a source of valuable information. This one did not cost to join. There was another learning community that cost $45.00 per year. I do not have the funds to do this.

The ability to have specialized communities that are so focused is another faucet of how technology is enabling learning and connection in a way it never has before. This site undrlines for me the evolution of libraries. My personal experience is that King County libraries now allow ebook downloads - to your PC, if you don't have an ebook device - allowing to read something for 30 days.

I have done these downloads and I love them!

Precisely how we communicate in these moments of historic crisis and transformation is important. The medium that carries the message shapes and defines as well as the message itself. The instantaneous nature of how social media communicate self-broadcast ideas, unlimited by publication deadlines and broadcast news slots, explains in part the speed at which these revolutions have unravelled, their almost viral spread across a region. It explains, too, the often loose and non-hierarchical organisation of the protest movements unconsciously modelled on the networks of the web.

I just discovered this. It might be an interesting community to join. "Welcome to the reborn home of the former DigitalDivide@ listserv - the new Digital Inclusion Network. Join over 350 members from dozens of countries exchanging knowledge on digital inclusion and strategies to close the many digital divides. This network is hosted as part of E-Democracy.org's Ford Foundation-funded "Participation 3.0" and will be used to gather input for our Inclusive Social Media initiative. This is a hybrid e-mail list and web forum with access via Facebook and Twitter. "

Since Minnesota is my home state, I decided to join this community. http://forums.e-democracy.org/p/joyannlajeret

An interesting, direct way to build political and social awareness through the internet. We really are a global community. Also, it allows - as Joy points out - to remain close to our roots, if we want.

Mashable Jobs listing and information in social media

This is a nice collection of papers debunking the myth of the Digital Native. My personal belief is that this myth has been extremely harmful. If you have a chance to read Selwyn's article, I highly recommend it.

Hmmm...after reading that Wiki explanation, I feel a bit of frustration and anger. White middle class youth are probably digital natives if one wants to put a label on it. But, after reading articles on the subject, many lower income families with high school and college age students do not have the funds for technological devices & services: computers; IPADs; laptops; Kindles and the list goes on. I am even more certain youth in other countries do not have access nor would they have high speed internet access on as broad a scale as we have in the US. I suspect they could not afford it either. So this label probably only applies to a small percentage of millennials or digital learners.

Or I should have stated, for those labelled as digital learners...they are only a small percentage of the worlds's millennials and even GenX. Ithink sociological studies would support this conclusion. I prefer using statistics to test hypothesis. Then one can thread these into a theory and test it statistically.

Matthew Taylor explores the meaning of 21st century enlightenment, how the idea might help us meet the challenges we face today, and the role that can be played by organisations such as the RSA.

I know I am certainly "split" on the internet - sharing more detailed information with family and friends, than professional acquaintances. For example, I have two Facebook accounts with different emails. Its not so much the boundaries are different, but how I implement them and the time and overhead I take to do it.

Ann, it's important that you feel empowered to have that kind of control over your participation online. I hope we'll start to see more of that. I love to introduce people to new technologies, and share how they affect me, but everyone has a different experience, and it's so important that we respect the way others choose to engage.