Cerebral Palsy

The Hydrocephalus Foundation, Inc. (HyFI) is a registered, 501(c)(3) nonprofit organization dedicated to providing support, educational resources and networking opportunities to patients and families affected by hydrocephalus. The Foundation also promotes related research and facilitates the training of healthcare professionals to improve patient outcome.

Hundreds of babies in the world are being treated with brain cooling to prevent brain injury after they lose oxygen at birth. This study will use the newly developed information from the magnet resonance image to determine the actual temperature of the brain. This will enable researchers to determine if the brain is being uniformly cooled and if techniques that provide cooling need to be changed to improve the injury prevention from cooling

Acute birth asphyxia is a cause of death and neurological injury. At present, there is no proven treatment; however, studies in animals suggest that brain cooling may protect against brain injury. This large multicenter trial will randomize term infants with a history of problems at delivery and signs of depression to total body cooling or standard care.

National Institute of Arthritis and Musculoskeletal and Skin Diseases - Questions and Answers about Scoliosis in Children and Adolescents - This booklet defines scoliosis and provides information about how it is diagnosed and treated in children and adolescents. You may be interested in contacting one or more of the organizations listed on the site for more information.

There are two rod sizes routinely used for the correction of juvenile and adolescent idiopathic scoliosis, 5.5mm and 6.35mm, typically stainless steel. Currently there is no scientific evidence supporting the superiority of one size rod relative to the other. This study will evaluate the amount of radiographic correction obtained using the 5.5mm versus the 6.35mm spinal instrumentation rods.

NINDS definition of dystonia

AUCD is a network of interdisciplinary centers advancing policy and practice for and with individuals with developmental and other disabilities, their families, and communities

The American Occupational Therapy Association (AOTA) is the national professional association established in 1917 to represent the interests and concerns of occupational therapy practitioners and students of occupational therapy and to improve the quality of occupational therapy services.

Look here for FDA Approved Drug Products, and medication information

"Clinical Neurophysiology(IFCN) has members operating in 54 countries globally. In so doing, the main goal of the IFCN is to strive to promote education and the attainment of the highest level of knowledge and understanding in the field of Clinical Neurophysiology

Deep Brain Stimulation: Beyond Movement Disorders By Brenda Patoine. 2010 Progress Report on Brain Research

PDF link on site directs to a list of more than 240 organizations in the United States likely to help those looking for information, referrals, and other guidance in connection with brain-related disorders. Listings provide mailing addresses, toll-free numbers, e-mail and clickable Web site addresses, and identify the primary services each organization provides. Brain Connections is provided by the Dana Alliance for Brain Initiatives. Your Source Guide to Information on Brain Diseases and Disorders

2007 Icelandic study to assess the incidence, obstetric risk factors and the squela of severe asphyxia at Landspitali university hospital.

American Academy of Pediatrics - Definition of Apgar Score

NICHD, NIH, Sponored and American Academy of Pediatrics, and American College of Obstetricians and Gynecologists co-sponsored study and Report of the Workship on Acute Perinatal Asphyxia in Term Infants.

Trakya University School of Medicine, Turkey study to evaluate the impact of the Neonatal Resuscitation Program (NRP) on morbidity and mortality of newborn infants with perinatal asphyxia. The study concluded that after Neonatal resuscitation (RP) courses, the number of patients with perinatal asphyxia and with no resuscitation and also the duration of hospitalization decreased significantly, whereas the first minute Apgar scores increased significantly.

Neuropathology online - Course material - Asphyxia and hypoxic-ischemic encephalopathy in mature infants

NIH Medline Plus encyclopedia article: Fetal heart monitoring

WebMd - Electronic Fetal Heart Monitoring

National Institute of Neurological Disorders and Stroke NINDS study will use high-resolution magnetic resonance imaging (MRI) to look for subtle differences in brain anatomy between patients with focal hand dystonia (also called writer's cramp) and healthy normal volunteers. Patients with hand dystonia have prolonged muscle contractions that cause sustained twisting movements and abnormal postures. These abnormal movements often occur with activities such as writing, typing, playing certain musical instruments such as guitar or piano, or playing golf or darts.