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Creates public databases, conducts research in computational biology, develops software tools for analyzing genome data, and disseminates biomedical information - all for the better understanding of molecular processes affecting human health and disease.

Only organization dedicated to providing families with the latest medical information, aggressively funding the most promising research, offering meaningful support, and raising public awareness and advocating for those living with the neurological disorder called Rett syndrome.Funds research for treatments and a cure for Rett syndrome while enhancing the overall quality of life for those living with Rett syndrome by providing information, programs, and services

American Academy of Pediatrics - http://www.aap.org/ An organization of 60,000 pediatricians committed to the attainment of optimal physical, mental, and social health and well-being for all infants, children, adolescents, and young adults. Preeminent provider of musculoskeletal education to orthopaedic surgeons and others in the world. Its continuing medical education activities include a world-renowned Annual Meeting, multiple CME courses held around the country and at the Orthopaedic Learning Center, and various medical and scientific publications and electronic media materials.

Only national voluntary non-profit membership organization in this field. Mission is to identify the cause of, find the cure for and control the effects of Tourette Syndrome. Offers resources and referrals to help people and their families cope with the problems that occur with TS. We raise public awareness and counter media stereotypes about TS. Membership includes individuals, families, relatives, and medical and allied professionals working in the field

AFB AccessWorld - News, publications, reviews. Technology for People who are Blind or Visually Impaired

"Float Wear offers the swimsuit diaper for babies & toddlers. This reusable swim diaper prevents leakage and meets all the new health regulations for use in private and public pools."

Charcot-Marie-Tooth, or CMT, is the most commonly inherited neurological disorder and is found world-wide in all races and ethnic groups. Discovered in 1886 by three physicians, Jean-Martin-Charcot, Pierre Marie, and Howard Henry Tooth, CMT affects an estimated 2.6 million people. The CMTA is a 501(C)(3)nonprofit organization founded in 1983 whose goals are patient support, public education, promotion of research and ultimately the treatment and cure of CMT. This international group of men and women are noted CMT experts in neurology, genetics, orthopedic surgery, physiatry, physical therapy and podiatry.

NADE's Purpose: To develop the art and science of disability evaluation. To enhance public awareness about disability evaluation. To further professional recognition for disability evaluation practitioners.

Bi-monthly update about the Civil Rights Division's activities in the area of disability rights. The Division enforces laws prohibiting discrimination based on disability in employment, housing, access to businesses serving the public, access to government programs and services including voting and public transportation, and unconstitutional conditions in institutions of confinement.

National Clearinghouse and Technical Assistance (TA) Center NCCIC provides comprehensive child care information resources and TA services to Child Care and Development Fund (CCDF) Administrators and other key stakeholders. Specific services include the following:Question and answer services - NCCIC Library and Web site Publication development and distribution TA and training delivery to State and Territory CCDF Administrators

The National Heart, Lung, and Blood Institute (NHLBI) provides global leadership for a research, training, and education program to promote the prevention and treatment of heart, lung, and blood diseases and enhance the health of all individuals so that they can live longer and more fulfilling lives. NHLBI stimulates basic discoveries about the causes of disease, enables the translation of basic discoveries into clinical practice, fosters training and mentoring of emerging scientists and physicians, and communicates research advances to the public. Creates and supports a robust, collaborative research infrastructure in partnership with private and public organizations, including academic institutions, industry, and other government agencies

Americal Association of Neurological Surgeons Publication - The American Association of Neurological Surgeons (AANS) is the organization that speaks for all of neurosurgery. The AANS is dedicated to advancing the specialty of neurological surgery in order to promote the highest quality of patient care

The Agency for Healthcare Research and Quality (AHRQ) sponsored preparation of this atlas to support local/regional planning and response efforts in the event of a bioterrorism or other public health emergency. In the atlas, case studies in six areas illustrate the location of nursing homes relative to population and various emergency preparedness regions. There are also maps of the location of hospitals and nursing homes in all 50 States and the District of Columbia. Atlas and Downloadable Information available

News from Johns Hopkins Departments of Neurology and Neurosurgery

The National Hydrocephalus Foundation (NHF) was incorporated in the state of Illinois in 1979 as a voluntary, not-for-profit, 501 C (3), public service organization. The objectives of NHF are: To assemble and disseminate information pertaining to hydrocephalus, its treatments and outcomes To establish and facilitate a communication network among affected families and individuals To help others gain a deeper understanding of those areas affected by hydrocephalus, such as education, insurance, tax and estate planning, employment and family To increase public awareness and knowledge of hydrocephalus To promote and support research on the causes, treatment and prevention of hydrocephalus

The Metropolitan Atlanta Developmental Disabilities Study (MADDS) was the first U.S., population-based epidemiologic study of the prevalence of intellectual disabilities, cerebral palsy, hearing loss, vision impairment, and epilepsy in school-aged children. National Center on Birth Defects and Developmental Disabilities (NCBDDD) staff have written scientific papers using information from MADDS. These papers look at such topics as how common autism spectrum disorders are and what causes hearing loss in children. You can see a list of these papers (starting in 1990) by using the keyword search on the NCBDDD publications Web page. Choose "MADDS (Metropolitan Atlanta Developmental Disabilities Study)" in the keyword box on the search page. You can choose whether you want the list to be sorted by author or by date

Many families raising a non-ambulatory child face the challenge of finding appropriate transportation when their child becomes wheelchair-dependent and can no longer be transported in a car seat. Parents struggle with questions of where to find financing, what vehicle to choose and what modifications are needed. The process can be overwhelming, but we have some suggested questions to ask and what to look for as you begin your search.

Deep Brain Stimulation: Beyond Movement Disorders By Brenda Patoine. 2010 Progress Report on Brain Research

NICHD, NIH, Sponored and American Academy of Pediatrics, and American College of Obstetricians and Gynecologists co-sponsored study and Report of the Workship on Acute Perinatal Asphyxia in Term Infants.

These toll-free numbers provide health-related information, education, and support. They DO NOT diagnose or recommend treatment for any disease. This directory is compiled every year by the National Health Information Center, which is a service of the Office of Disease Prevention and Health Promotion (ODPHP), Office of Public Health and Science, U.S. Department of Health and Human Services.