PEDIATRICS - Official Journal of the American Academy of Pediatrics - PEDIATRICS Vol. 102 No. 1 July 1998 - An Epidemiologic Profile of Children with Special Health Care Needs
LDonline - Identification of Specific Learning Disabilities - This document addresses significant changes from preexisting regulations to the final regulatory requirements regarding the identification of specific learning disabilities. Lists IDEA Regulations - Adds procedures for identifying children with learning disabilities
The HRSA Maternal and Child Health Bureau improves the health of mothers, children and their families. Authorized under Title V of the Social Security Act, HRSA maternal and child health programs - Assure access to quality care, especially for those with low-incomes or limited availability of care. Reduce infant mortality. Provide and ensure access to comprehensive prenatal and postnatal care, especially for low-income and at-risk women. Increase the number of children receiving health assessments and follow-up diagnostic and treatment services. Provide and ensure access to preventive and child care services, as well as rehabilitative services for certain children. Implement family-centered, community-based systems of coordinated care for children with special healthcare needs. Provide assistance in applying for services to pregnant women with infants and children who are eligible for Medicaid.
National Newborn Screening and Genetics Resource Center web site: GeNeS-R-US, (Genetic and Newborn Screening Resource Center of the United States). The National Newborn Screening and Genetics Resource Center (NNSGRC) is a cooperative agreement between the Maternal and Child Health Bureau (MCHB), Genetic Services Branch and the University of Texas Health Science Center at San Antonio (UTHSCSA), Department of Pediatrics. Provides information and resources in the area of newborn screening and genetics to benefit health professionals, the public health community, consumers and government officials.
National Survey of children with Special Halth Care Needs CSHCN - Data Resource Center - The purpose of The Data Resource Center for Child and Adolescent Health (DRC) is to advance the effective use of public data on the health and health-related services for children, youth and families in the United States. The DRC does this by providing hands-on access to national, state, and regional data findings as well as technical assistance in the collection and use of this data by policymakers, program leaders, advocates and researchers in order to inform and advance key child and youth health goals. Currently, the DRC website includes national and state-based data on over 100 indicators from the National Survey of Children's Health (NSCH) and the National Survey of Children with Special Health Care Needs (NS-CSHCN). The DRC's easy-to-use interactive search feature allows users to select, view, compare, and download national survey data results for every state and HRSA region.
PEDIATRICS - Official Journal of the American Academy of Pediatrics - Abstract of Article PEDIATRICS Vol. 102 No.1 July 1998 - A New Definition of Children with Special Health Care Needs
National Scoliosis Foundation - The National Scoliosis Foundation (NSF) is a patient-led nonprofit organization dedicated since 1976 to helping children, parents, adults, and health-care providers to understand the complexities of spinal deformities such as scoliosis.
Scoliosis Association, Inc - An International Support and Information Organization - A non-profit, volunteer non-medical organization. Since 1974, we have been helping those with scoliosis by providing information and having support groups and information lines. We have a variety of ways by which you can get in contact with us as shown throughout our website. Additionally, you may have a support group or information hotline in your area. Please go to our support page to find the list of support groups or information lines. There are 54 active chapters (support groups) at this time.
Title II - National Center for Special Education Research at idea.eg.gov - Mission.--The mission of the Special Education Research Center is-- (1) to sponsor research to expand knowledge and understanding of the needs of infants, toddlers, and children with disabilities in order to improve the developmental, educational, and transitional results of such individuals; (2) to sponsor research to improve services provided under, and support the implementation of, the Individuals with Disabilities Education Act (20 U.S.C. 1400 et seq.); and (3) to evaluate the implementation and effectiveness of the Individuals with Disabilities Education Act in coordination with the National Center for Education Evaluation and Regional Assistance. (c) Applicability of Education Sciences Reform Act of 2002.--Parts A and F, and the standards for peer review of applications and for the conduct and evaluation of research under sections 133(a) and 134, respectively, shall apply to the Secretary, the Director, and the Commissioner in carrying out this part.
NECTAC is the national early childhood technical assistance center supported by the U.S. Department of Education's Office of Special Education Programs (OSEP) under the provisions of the Individuals with Disabilities Education Act (IDEA). NECTAC serves Part C-Infant and Toddlers with Disabilities Programs and Part B-Section 619 Preschool Programs for Children with Disabilities in all 50 states and 10 jurisdictions to improve service systems and outcomes for children and families. This web site is one of an array of services we provide to Part C Coordinators and Section 619 Coordinators and the resources on this site are available to all. Funded since 2001, NECTAC and its predecessor TA projects have a foundation of thirty-nine years of technical assistance excellence in early childhood services.
Editor, researcher, and writer for CPFamily Network. Mom to 4 great kids oldest of whom is daughter, Danielle, 25yo, Spastic Quadriplegia Cerebral Palsy.